Partner Has Alzheimer's......I Need Help Please

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/10/2008 5:46 PM (GMT -6)   
ok ok okkkkkkkkkk........i need help.......if you knew me you would know how big this is........so please help me........my partner has alzheimers..i've dealt for years but i need help
 
Added a title to your thread so ppl will answer it more if they know what it is about .........
LYN

Post Edited By Moderator (Howlyncat) : 12/15/2008 4:51:44 PM (GMT-7)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/15/2008 6:54 PM (GMT -6)   
Welcome to the Alzheimer's forum and HW
Please do feel free to read the threads already up and they do explain AD and what to expect
If you are homecare provider for your loved oone there are threads on that as well
Could you plz give a few more details so we can understand just what is going on.........??
It would be a big help for me .......


Stay strong
STAY with us

LYN


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN

Post Edited (Howlyncat) : 12/17/2008 12:34:17 PM (GMT-7)


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/16/2008 6:06 PM (GMT -6)   
hi and thanks for the welcome.....i'm dealing with things a little better today, i just have moments where i feel lost.......
my partner was diagnosed with ad when she was 41....before that we went through 5 years of pure hades.....there were alot of things going through my mind at first, from maybe she's doing drugs to maybe it's a breakdown.....
she lost her job because she would get angry and aggressive if she was questioned or told she did something wrong.....she would sit in the car for hours....she lost interest in everything......
it took 5 years to get the answer...early onset ad.....and i detest it.....
we're now 4 years on with it.....she has been on different medications and some helped.....i suppose the word progression is appropriate....
i'm fortunate to have my own business and be able to work from home......
anyway it's time to serve up some ensure and cheese crackers......
thanks for listening.....
 

lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/17/2008 2:44 PM (GMT -6)   

hi again.....i have a question for someone who's been here.....is mumbling a common behavior? my partner will mumble to herself, sometimes while i am talking to her....she will look away from me and seem to carry on a conversation with someone else, always mumbling...


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/17/2008 2:55 PM (GMT -6)   
I am glad you reposted
I know I had many a bad day as well with looking after MOM and then Dad till they passed
I know Dad also went with a broken heart they were together fo more than 47 plus yrs
He did al for her and once she passed he was DX with this DD
I so despise what it does to them
They HAVE got to be scared....NOT all memory cells are gone IMHO

There is SO much info on the site here that you very well should read up on

Wasvshe DX wuth AD or any typoe of dementia like Lewy'sBody........Vascular Dementia??

What meds is she currently on if you dont mind??
............LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/17/2008 4:46 PM (GMT -6)   
she was diagnosed with early onset alzheimers....i was surprised to find out it could attack someone so young...
she is currently taking namenda and aricept....also xanax when she needs it  and trazadone...she was on paxil, but seems to get on better without it....along with a blood pressure med.....

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23353
   Posted 12/17/2008 5:31 PM (GMT -6)   
Yes, I do believe that mumbling is pretty common. My gma would do that a lot or even talk aloud to herself or the TV. My gma just recently started Namenda and is doing fairly ok on it. I am new to learning the whole Alzheimers thingy but that does seem awfully young! I'm sorry that you and your partner are going thru this. It is NOT an easy thing to deal with.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 
To help Healingwell - click here: DONATE
 
 
 
 

 
 


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/17/2008 6:39 PM (GMT -6)   

thanks....she seems a bit better on the namenda.....the mumbling is disturbing but i will deal with it.....i've learned alot about myself through this......still no matter how tightly i hold on she seems to be drifting farther away......


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/22/2008 9:11 AM (GMT -6)   
I too believe the "mumbling " is norm
Both Mom and Dad did this ......

Sweetie
I know it is hard for you to see and know she is slipping away
My HEART n SOUL go out to you and to her of course
I watched Dad go from active 170 plus lbs to a fetal poition in hospital on life support in a matter of no time
It is a horrid disease killing our most valued members of society

God Be With you

Email me if you want to talk
Red is great with input as are other members
'I have been sick sorry...........

Luvs
LYN


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN

Post Edited (Howlyncat) : 12/31/2008 7:14:50 AM (GMT-7)


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/22/2008 6:57 PM (GMT -6)   
it is just getting so hard to get legible sentences from her anymore that the mumbling makes me feel like i am missing out on something important she may be saying....does that make sense?
i'm sorry you haven't been well.....so thank you for taking time to answer me.......

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 12/23/2008 12:31 PM (GMT -6)   
Heaven forbid. I mumble because the verbal side is the strongest in my make-up. In order to work through a problem, I'll coach myself along, eg. "Well if this little piece fits there, no it's too big, I need a smaller piece". I am problem solving, coaching myself, I did that for as long as I can remember. If verbal communication breaks down, we just need to switch to writing things down. I'll sometime put a note on construction paper, and write with Sharpie, WE'll load the truck, 3:00 PM. That seems to work well in my Dad's case. I sometimes also use a tape recorder, to play back if we're discussing something important. Finally, we have to adhere to a schedule. This is helpful for dementia in general. It's a lot less worrysome if everything runs pretty much on a schedule. This lends comfort in allowing a confused person feel like they can at least predict what is coming next. I am very sorry this has developedso suddenly, at such an early age. However, if you can try to keep the victim fairly active mentally and physically, you will have a better time of it.     

Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.


CharleyRice1931
Regular Member


Date Joined Apr 2006
Total Posts : 397
   Posted 12/24/2008 5:04 AM (GMT -6)   
I solved the problem when my wife could no longer talk, (of course she was in the so called 'end stage' for about six year) by asking 50/50 questions i. e. 'yes' 'no' answers. In the final few months I tried to get the yes/no nod but it was not forth comming, I did try to explain to her: "When I kiss you and you kiss me back, it's a yes and when you don't, it's a no." Only a matter of weeks before she passed away I was explaining it and gently told her how very much I loved her and asked: "Do you love me?" For the second time in five years she gave me the best gift anyone could ask for, a very quietly whispered "Yes". The first time was just over two years earlier as I strapped her into her wheelchair to take her out on our 50th wedding anniversary. As I knelt to strap her legs in: "This day 50 years ago you took this stray on, would you do it all over again and marry me." I can picture her now as she summoned up the effort, with a strangled "Yes". Though two yeses I'll treasure till I die. The light has gone out of my life now, but the caring for her on my own 24/7 365 days for the final five years has given me a strength and fulfilment that keeps me going. I'm one very lucky person to have been fit above average to do the caring. I wish you all a peaceful Christmas and that your cross be a little lighter in the future.
May your God go with you. Padraig

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/26/2008 4:18 PM (GMT -6)   
I so remember you posting abot this G Padraig when G Jean said
"YES"


BTW......That is a good way to do it
Coach them or teach them a sign or a nod or one word even .........IMHO

God Bless
'
LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 12/28/2008 10:01 PM (GMT -6)   
thank you so much for your advice.......i'll pray i have half of your strength.......
 

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/31/2008 9:15 AM (GMT -6)   
How are you making out Lynnie
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/1/2009 12:32 PM (GMT -6)   

a home nurse is coming this afternoon to help make sure my partner has what she needs so i can bring her home tomorrow.....she'll be on oxygen and have some breathing therapy for awhile but she'll be home......i think they keep her too medicated at the hospital instead of dealing with her..

i may be able to get some sleep once she is home and i know she is ok.... i just need to know she is where she feels safe and secure.....thank you for asking.....


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/1/2009 6:40 PM (GMT -6)   
the nurse asked me about involving hospice in my partner's care now....does that mean she's dying.......why would she bring that up to me.....i was sort of in shock after that and didn't comprehend much else

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/2/2009 11:57 AM (GMT -6)   
Are you sure she said HOSPICE
A Hospice is where they can keep them more comfortable and they have more nursing staff at least here in Ontario thats the case
Are you able to still fully function ( even though I am sure you are drained emotionally and physically)
I have NO idea why this would be brought up
BUT I do know I would call your Case Workers Supervisor and get the total answer as to what they are talking about if it were I
PLEASE hun know I am holding your hand
SHE does not need to go away from you
YOU rae what she needs IMHO
Luv
and God Bless
LYN
Email me if you care too
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/2/2009 3:41 PM (GMT -6)   

hi, thank you for your concern.....they say i can get home hospice for her if i talk with her dr...i'm not sure how i feel about that yet, it's still sinking in....right now, i'm just glad i have her home with me.....

we've been together for 20 yrs....i'd never send her away to a hospice......i don't know what i'm going to do without her when the lord calls her home.......


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/2/2009 3:59 PM (GMT -6)   
OKAY hun it is help caring for her thats what it is
Community care access
It might help out and you can spend more time with her while they do the things you normally have to do that take up your time from her
Think aboiut it
No rush right
keep me posted plz

Luvs
LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/2/2009 4:08 PM (GMT -6)   
thank you so much....

lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/13/2009 2:35 PM (GMT -6)   
my partner had to be taken back to the hospital after only being home for 2 days, she had a collapsed lung and we couldn't get a grip on the fevers.....she just came home yesterday and is doing some better....
i'm not sure about the hospice help, i am used to doing things for her myself and she gets frustrated and anxious around others....she will have a home nurse coming for a few days until they are sure she will be ok at home.....so far she so good with that....
i thank you so much for your concern and help....
lynnie
 

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/15/2009 1:04 PM (GMT -6)   
I am glad she is home with you
She does know the difference of who is looking after her and with the love she gets from you

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


lynnie771
Regular Member


Date Joined Oct 2008
Total Posts : 53
   Posted 1/17/2009 8:34 PM (GMT -6)   
she definately does know the difference.....
before she was this bad she would get very nasty with anyone different doing anything for her.....now it's just evident with body language and i can tell she's uncomfortable around others....there is still a home nurse who visits because of the iv medications, and my partner will sort of drift off when she is working with her, sort of distancing herself i guess....
you know, i feel out of place around here a little....everyone here is dealing with a parent or grandparent and i hope i am not out of line or making anyone uncomfortable, i'm just looking for help and understanding like everyone else....
i've gotten so much information from this site for a long time now and it has all been helpful....... 
 

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/18/2009 3:22 PM (GMT -6)   
YOU have no need to feel that you are not wanted nor get an uncomfortable feeling by posting
'You have a sick partner and you need all the support you can get now and learnig things helps as well

DO not stop posting plz
You are an asset to the forum

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 01, 2016 1:56 PM (GMT -6)
There are a total of 2,697,207 posts in 297,723 threads.
View Active Threads


Who's Online
This forum has 152342 registered members. Please welcome our newest member, Squint.
273 Guest(s), 12 Registered Member(s) are currently online.  Details
Jukke, Bowdren, Mrunc136, Serenity Now, Suzee, Huddie, AK, Old Mike, claude783, jowie, Tall Allen, halbert


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer