lewy bodies & relatives

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Regular Member

Date Joined Aug 2004
Total Posts : 274
   Posted 3/6/2009 2:24 PM (GMT -6)   
Janice and I went to see your mother last Saturday. I have such mixed emotions. She was being fed when we arrived so she was awake. She appeared to know us and was able to carry on a limited conversation. It appears that all she can do now is lie in bed and eat. It makes me so sad.

hate these "caring" notes (like the above) from relatives. makes me crazy! what am i supposed to do? sent her the post about lewy bodies, but my cousins still expect more. i "almost" like my mother without her caustic comments and emotional abuse i lived with for years. i have ms and can barely do some things for myself, no less a mostly bedridden old lady. mother's body rejects moving on its own, so she needs the care she gets at a nursing home.

they used to ***** & moan about how much better care mother would get at a nursing facility near them, but everything happened during a time i could not drive (for 2 years) due to ms so i had her taken to a home near me. they are about 40 minutes from here.

guess the saying about choosing your friends but not your relatives bears repeating!

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/6/2009 7:08 PM (GMT -6)   
Dont let what they do or say boiher you
YOU have done the best
I have seen what you have done
I know you are a great daughter


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

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