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Bella33
Regular Member


Date Joined Aug 2008
Total Posts : 478
   Posted 10/22/2009 2:31 PM (GMT -7)   
Hello everyone,

My mom's neurologist said my mom's brain functions are declining very rapidly from the EEG test result. She suggested my mom must take another med in addition to Namenda which she's been taking for the past 2 years. Aricept gave her nightmares and Exelon raised her blood pressure. This leaves with Razadyne which is the only one left of the cholinesterase inhibitors that she hasn't taken yet. Does anyone have an opinion on this older medication? Is it worth my mom to give it a try. Will it cause her more harm then good?

Thanks!

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/22/2009 3:46 PM (GMT -7)   
I take Galenyimine ( generic Razadyne) I have had no problems with it.Been on it 8 yrs.Nameneda is supposed to be taken with another AD medication,not alone.......I tried Namenda & it was a disaster so I threw it away.........It's NOT for everyone.......
SnowyLynne


Bella33
Regular Member


Date Joined Aug 2008
Total Posts : 478
   Posted 10/23/2009 9:26 AM (GMT -7)   
Just the fact that you've been taking it for 8 years now and can post on this forum shows me that it's working wonders for you. My mom's only had the disease for 5 years and has stopped reading and writing for 2 already. Namenda is for the really advanced people I assume and being that she was only on that alone is not helping but... like you said not everyone can take a combo drug. Hopefully it will help her and not give her side effects. She's starting it tonight.

Bella33
Regular Member


Date Joined Aug 2008
Total Posts : 478
   Posted 10/29/2009 6:44 AM (GMT -7)   
Hi SnowyLynne,

What happened to you when you combined Namenda with Galenyimine? My mom has been taking 8mg just once a day at dinner time. She's been on it for about a week now and yesterday she had an episode while we ate lunch at a restaurant. She played with the zipper of her jacket non stop and I ended up feeding her in order for her to want to eat. When we were leaving the place she held the front door open and wouldn't let go. This concerned the waitress who watched this behavior. I gave my mom my car keys so she got distracted and finally let go. This was a big mistake because when we got to my car in the parking lot she wouldn't give the keys back to me. We then stayed there for 15 minutes while I tried to persuade her to hand them back to me. The manager of the restaurant then came out and asked if there was a problem.

During this ordeal my mom was also flagging down people who drove by us. She seemed to be paranoid and very nervous and was babbling the whole time. Each time I said please give me the keys so I can drive us home she would say "yes I know you need the keys" It's like she says one thing but does the exact opposite. I think she got tired at the end and gave them back to me. When we got home she was back to her old self again. It was very strange. I don't know if it was Galenyimine that did this or something she would do anyways.

Last week my sister experienced a somewhat similar experience at the hair salon with my mom. When she was done she refused to get out of her seat to leave the place. This happened before she started on the new med. It's getting so that I don't want to take her anyplace public anymore. I feel so self conscious and pathetic as to how people see us. We were quite a spectacle at the restaurant.

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/29/2009 7:27 AM (GMT -7)   
After being on the Namenda for 2 months,I didn't know what i was doing,& was droolong.I still knew what was going on & I didn't like it.We didn't know If I would come back to where I was before starting the Namenda or no,but I did...........Not doing that again.........
SnowyLynne


CharleyRice1931
Regular Member


Date Joined Apr 2006
Total Posts : 397
   Posted 10/29/2009 8:44 AM (GMT -7)   
Hi Bella,

I think it's a sad reflection on society that anyone should stare at people with a disability like Alzheimer's. Can't say I know anything about the drugs you mention, but what I do know from my experience was that I stopped all medication, with the exception of liquid pain killer my wife after I took her home. It's just my view, that a lot of medication is prescribed for aspects of the illness, rather than treating the underlying causes the victims experience. I do know that, had I been treated as many patients were, I would in turn be frustrated, angry and depressed. Imagine what it must be like to be so confused and unable to express yourself?

Holding on to the door may indicate the early signs that your Mom is beginning to lose her sense of spacial awareness. This I learned through bitter experience was a time my wife started to have falls. Her final fall resulted in her breaking her arm and ending up in hospital. That was the beginning of the end.
It's a sad fact, that each function she lost I failed to spot the early signs. Suddenly she was unable to walk down stairs, moments later she walked down without effort. Her loss of speech was the same.
Right up to weeks before she died I took her out shopping and I had these trips recorded. There was no way that I was about to hide her away from the outside world. Too bad if people didn't like me taking her to the bank, shops and any place we wanted. As far as I'm concerned disabled means; being unable to cope in one way or another. That means we are all disabled in some way, only in most cases the disability is not visible.
Many loved ones fail to complete the journey to a final stage my wife did, where they become exactly like an adorable baby, in a loving environment.
Lyn, I was sorry to learn you have been so very ill. I'll always remember you for your tireless efforts on behalf of so many people. I wish you well.
May your God go with you.
Padraig

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 10/29/2009 10:06 AM (GMT -7)   
my friend i was on some of your journey with jean and i saw a loving giving husband at all times you gave me strength to go on n i ty for that .Both mom n dad are gone now and it is sad for me i feel like have become a burden to cait now ......... the circle of life..LOOKING forward to talking soon with you k .. have really missed your wittiness and thoughts on this dd so much MAY your God bless you n keep you safe always here for you luvs lyn
                           co mod crohns ......anxiety /panic.....alzheimers....


Bella33
Regular Member


Date Joined Aug 2008
Total Posts : 478
   Posted 10/29/2009 9:19 PM (GMT -7)   
Ignorance is bliss. Of all the diseases out there I think this would be the best to have for the individual. You feel no pain and the burden falls on the caretaker. My mom always loved to look good. Now that she's not aware of this preference I do it for her instead. My older sister always thinks how her appearance is not important but I told her that is so wrong. We must keep up what always mattered to her. Later on when we look back at her photos I don't want a single bad one in there to reflect on her poorly. That's the least I can do. But then I always told everyone that my wish is to die a minute before her so I will never have to be around to see her go.

CharleyRice1931
Regular Member


Date Joined Apr 2006
Total Posts : 397
   Posted 10/30/2009 1:49 AM (GMT -7)   
Bella, The Irish have a saying: "May I be in haven half an hour before the devil knows I'm dead."
I think it's wonderful the way you car for your Mom. Never having had parents or family, I came to understand the meaning of love from my wife and the strength it fuels to return that love in their special time of need.
May your God go with you.
Padraig

Bella33
Regular Member


Date Joined Aug 2008
Total Posts : 478
   Posted 10/30/2009 9:59 PM (GMT -7)   
The one who goes first is the lucky one. The ones left behind are people who are emotionally scarred and lonely. I never understood people who want to live a long life. What's the point? I think the quality of life is so much more important. If you can be disease free, plenty of $, lots of family and friends around you then yes by all means live it up. Unfortunately not too many of those people around.

My mom is very loved and she knows it. I sometimes think she chose to live in her own world to shut out all the unhappiness that surrounds her. Total denial city.
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