Paid Alzheimer's Survey- Requires Online Responses From Both the Caretaker and Patient

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Student Researcher
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/31/2009 1:01 AM (GMT -6)   
**permission for this post has been attained from founder Peter Waite

Dear Mild or Moderate Alzheimer's Patients and Caretakers,

Hello I am an undergraduate biomedical researcher at the UC Irvine Medical
Center, asking if you can fill out my surveys (contained in the link at
the bottom) for mild or moderate Alzheimer's patients and their
caretakers. My study was approved by the Institutional Review Board on
June 10th, 2009 (IRB#2009-6884). My supervisor is Rimal Bera, M. D.

I issue these surveys in pairs- one for the caretaker and the other for
the AD patient- since I must compare your responses to assess awareness of
chronic pain. I want my results to allow others to draw meaningful
conclusions, hopefully removing some of the struggles that Alzheimer's
patients and caretakers experience every day.

These surveys take ~20 minutes to complete and there is no follow-up. I
have done my best to protect patient and caretaker privacy- I never record
the name of the patient or the caretaker, and questions are answered with
brief responses/scales/checked boxes.

Please read over the "Reminder of the qualifications" in the link below.
If applicable, proceed to the caretaker and patient surveys that follow
(both of you must be present to complete your surveys).

I will provide $20 to each caretaker-patient pair that completes the
entire survey. Please make sure to indicate, in the box at the beginning
of the survey, which means of compensation you would like. Here is the
link:

http://www.kwiksurveys.com/online-survey.php?surveyid=LBJNN_e8afd4e9

Thank you for your consideration!


Sincerely,
Matthew Keating

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 2/2/2010 10:05 PM (GMT -6)   
hi just saw this again will respond tomorrow how do i donate he money thru you to ad society..i think they really need money for more awareness ..jmho..lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


Student Researcher
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 2/3/2010 1:45 AM (GMT -6)   
Wow thank you for bringing up this idea! I cannot think of a way to redirect the $20 to a donation for Alzheimer's awareness (definitely open to suggestions), beyond simply promising that I will donate $20 to an AD society of your choosing. However I would feel comfortable sending the donation to the Washington University's Alzheimer's Disease Research Center, since they offer to send a notification letter to individuals (i.e. I would verify each donation by having a notification letter sent to the respective participants). Please indicate your desire for such a donation in the first text box on the survey.

Another option is to receive my payment and subsequently make a donation on your own. Forums made possible by HealingWell.com allow for incredibly supportive feedback among AD patients and caretakers, far beyond providing opportunities to recruit participants for research (but believe me I have nothing but good intentions!). So why not reinforce this support with a small donation? Yet another option, I like how the Alzheimer's Association donor site allows you to search for your employer when you donate; certain employers will match the donation thus doubling its impact (oftentimes the minimum donation to match is $25 so I will send this amount if you indicate your intent at the beginning of your survey).

Here are the links to donate:

HealingWell.com: click on Donate at the top of your screen

Alzheimer's Association:
https://act.alz.org/site/Donation2?1760.donation=form1&idb=932446963&df_id=1760

Washington University's Alzheimer's Disease Research Center:
http://alzheimer.wustl.edu/about_Us/Donate.htm

But whatever you do, know that we will beat Alzheimer's Disease!

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/17/2010 1:14 PM (GMT -6)   
i think this is great and my prayers are we do beat this dd soon...lyn
                                        Long  Time Member of da Family
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     2010       
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 
                                      Lyn..........AKA...........Howlyncat             
                  
                                                                                           


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/7/2010 7:56 AM (GMT -6)   
i believe your intentions are sincere so i have no problem with donating funds to Alzheimers societ
i live in Canada and here the numbers are sky rocketing with our seniors..this is a very sad n lonely dd
no way should our elders have to go thru this with all they have done for us imho
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Student Researcher
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 4/21/2010 6:54 PM (GMT -6)   
It's inspiring to hear your perspective on Alzheimer's. Not only do you see suffering put into words on this Alzheimer's forum, but you are also surrounded by it where you live. Yet it won't bring you down. Could not agree more from my limited experiences with AD in my family, my friends' families, and inside clinics- no one deserves to go through this, whether it be those with AD or their caretakers and relatives.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/22/2010 8:04 AM (GMT -6)   
So very well stated n so true..ty for your interest in helping our loved ones caregivers n relatives..friends

respectfully
lyn

plz feel free to email me as well
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN

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