50 and diagnosed with AD

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HopeFloats
Regular Member


Date Joined Dec 2005
Total Posts : 123
   Posted 3/9/2010 5:45 PM (GMT -7)   
Hi Everyone -
 
Most of the threads I am reading all deal with seniors and their families that are effected by AD.  Does anyone have advice for me.  I am 48 - my husband is 50 - we have twins that are 14 years old.  I think I have come to terms with the diagnosis - 20 mg of Lexapro doesn't hurt either.  I have stopped thinking about the things we won't share as we get older and don't wake up thinking OMG one less day - My mindset is THANKD GOD - another day with him - I love him so much more than words can say - I also think my husband has - his take on it - I can't control it so I am going to take one day at a time.  He reads constantly and just finished our taxes and did a great job.  He keeps very active.  He is currently on Aricept, Namenda and the Exelon patch.  He also has chronic neurological lyme disease.  I wonder how much of this is the lyme too.
 
Does anyone have any advice or wisdom to share with me......
 
HopeFloats

AngelsmamaDorseysdaughter
Regular Member


Date Joined Sep 2009
Total Posts : 142
   Posted 3/9/2010 6:36 PM (GMT -7)   
No, I am sorry I don't have any advice, but I wish you the best. It is devastating, I know. I am so sorry.
 
AngelsMamaDorseysdaughter

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 3/9/2010 6:48 PM (GMT -7)   
Why is he on 3 meds for AD? generally its Aricept,Razadyne,OR exelon with Namenda......not all 3 at the same time.Maybe the Dr thinks more is better....NOT!
SnowyLynne


HopeFloats
Regular Member


Date Joined Dec 2005
Total Posts : 123
   Posted 3/9/2010 7:27 PM (GMT -7)   
Hi SnowyLynne
 
How are you doing?
Why not all three - he seems to be holding his own.
Is it dangerous

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 3/10/2010 1:57 AM (GMT -7)   
Not sure if its dangerous but iffy i would think.......I'm holding my own on Galentimine(razadyne)..But then I have vasular dementia.........According to my Neuro.I'm doing great.......
SnowyLynne


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/10/2010 7:48 PM (GMT -7)   
I would be asking the doc why all 3 as well..i totally agree its a bit iffy as snowy put it ....i wish you all the best n plz keep us posted...lyn
                                        Long  Time Member of da Family
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betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/22/2010 6:44 PM (GMT -7)   
Hi Hopefloats,

I am 49 and suffer from nuerological lyme disease like your husband. I spend most of my time on the lyme and ms forums and dropped in here expecting to find a mostly senior group discussing the challenges of AD. I was not expecting to see your post here as you guys are roughly the same ages as my wife and me. My uncle was diagnosed with early onset AD at age 56. Sometimes I wonder if perhaps my uncle might have been exposed to lyme disease at some point in his life. Have you posted your husbands issues on the lyme forum?

Are you comfortable that you have a definitive diagnosis of AD? Praying that your husbands issues are lyme related.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


HopeFloats
Regular Member


Date Joined Dec 2005
Total Posts : 123
   Posted 3/23/2010 6:31 PM (GMT -7)   
Hi Betterhealth -
 
Yes I have been on the Lyme Disease forum and have had a great experience with all of the people there.  Very knowledgeable and caring.  I am learning to deal with the diagnosis of AD.  His grandfather suferred from it.  It is/has been devasting news to digest.  I have learned many things about AD.  Jim having neuro lyme (encephalopathy) is one of the things that can cause early onset lyme.  Plus he had a severe head injury when he was 18 years old.  Hit head on by a drunk driver and spent several weeks in the hospital with head trauma.  We have twins that are 14 years old.  A boy and a girl.  I don't tell them much - not sure they need to know right now.  They take great care of their Dad.  I have the mind set now that every day is a gift. 
 
Take Care,
 
Hope

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 3/23/2010 6:53 PM (GMT -7)   
Hi Hope,

I know how difficult this must be for you and your family. We are here to listen and offer spiritual comfort when you need it.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/26/2010 8:38 AM (GMT -7)   
Keeping you in heart thoughts n prayers for sure
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

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