Well, things are smoothing out some!!!

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Traveler
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Date Joined May 2007
Total Posts : 35853
   Posted 2/4/2013 11:56 AM (GMT -6)   
I just wanted to do a little update, as things are *overall* smoothing out some!! Woo hoo!!! smilewinkgrin

'Dad' now has an electric bed in, bedside commode, he now wears disposable boxer shorts (YEA!!!), and we are getting good with his meals - he enjoys them even though everything has to go through a blender! LOL!

Home health nurses have been by and we are getting set up for occupational therapy and hubby and I will be taught how to deal with each stage of the physical decline - how to turn him safely without injuring anyone and things like that!

The Nurse-Practitioner that he now sees has done some basic blood work and that has come back good, and he had an Xray of his shoulder and a CT scan of his head because he took a fall and was never taken to the doc to be checked out, and they came back as good - although we now know that he had moderate arthritis at least in his shoulder. At least now we can ask the NP for pain meds that will help with his pain!

Although yesterday was a hard day - he was being difficult and hubby got a bit short which sent him into hallucinations and confusion about being back where he was and getting bullied into doing everything. Fortunately I was here to 'run interference' and we got through the day with only hubby being incredibly sad over the "loss" of the man he knew as his Father.

Today 'Dad' is a happy, compliant man!! turn

Thanks for being here! Even just typing this out here on the forum is a form of release and coping for me!! :-)
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23547
   Posted 2/4/2013 12:17 PM (GMT -6)   
Than type away! :) You are going to face many challenges with your FIL and we will be here for you.

Try to reassure your hubby that the man he knew is still there, maybe a bit buried, but there nonetheless. Yes he will get confused, obstinate, angry, lost, scared and just imagine how hard that must be for your FIL. Knowing that things are not right but unable to figure out why. People with dementia or AD revert back to being a child more or less. Yes even children can try our patience, but it seems more difficult when it's a parent. Hang in there!
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Colazal, Remicade (6mp discontinued due to neuropathy)*Unable to tolerate ALL mesalamines*, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 2/4/2013 12:40 PM (GMT -6)   
Thank you so much, Sherry!! Yes, we do know about him reverting, but coming face to face with it yesterday was a bit harder than I think my hubby was prepared for.

I had to live through some really scary loss of cognitive function with the Lyme infection that I had - complete with a full paranoia period of about a week long, not knowing where I was, how to do many things, loss of both short and long term memory, not being able to use the English language much and so on, so I do have some idea of what poor 'Dad' is going through. Fortunately it's not the same, as I've healed and of course we know that he won't. It does, however give me the ability to talk to him in ways that he understands! At least I didn't go through all of that in vain! :-)

I did discover that being here for hubby is sometimes harder than being there for my FIL! At least I can ease things for my FIL!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 2/4/2013 7:54 PM (GMT -6)   
Yes, I had a feeling it would hit you hard Traveler. HUGGGSSS Keep on typing hon! Remember you can email me anytime :)
~Moderator - Allergies & Asthma , Alzheimer's~
"The Walking Medical Mystery"/~Medical Caregiver and Doctors Worse Nightmare~/ And Doctor's Worse Nightmare DX: Lactose Intolerance, Gluten Sensitive, ADD, Fibromyalgia, Carpel Tunnel, Arthritis, Clasterphobia, Anxiety, Diabetes Type II, Grave's Disease, Tachycardia, GERD, PCOS, Migraines, UARS, Anterior Scleritis, Orbital Tumor

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 2/5/2013 8:45 AM (GMT -6)   
Thank you so very much, SmurfyShadow!! Yes, I do believe that I will be doing a lot of typing!! LOL!

'Dad' is having a tough time today - lots of confusion. Poor guy.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 2/7/2013 1:43 PM (GMT -6)   
It's a tough thing Traveler, and I'm so glad that you are here! My Mom is as sweet as anything, and to lose her is so hard. She still makes me laugh; to her, I now live in the mountains(?) and she always wants to know how the weather is up there. Even though a live in the suburbs, I tell her how the weather is. ;-) Some days she's totally confused, other days she is semi-okay. I think it depends on how much stimulation she's had during the day and how tired she is. I lost my Dad a little over a year ago, and it gets to me sometimes to think I don't have my Mom or Dad per se....but I love to see Mom and hug her and also talk to her. "Dad" living with you might be tough for awhile because any move is confusing for them -- I remember my Mom calling my sisters in the middle of the night not knowing where she was. Now she is pretty used to her surroundings. Take care, and kudos and hugs to you and your husband. Keep writing! ;-)

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 2/8/2013 7:58 AM (GMT -6)   
Thank you so very much, Lonie!!
Wow, you are in a tough position. My heart goes out to you. I know that it's easier on me than it is on my hubby, since it's not my own Dad, and it breaks my heart to watch sometimes. On the other hand, I know that we are giving 'Dad' the best care he could possibly get.

I'm glad to know that the confusion of where they are is common, as Dad is dealing with this a lot right now. Poor guy, he was sooo confused two days ago as to how his bedroom got attached to our house, but at least he now recognizes and really likes his room!!!

I do still get pretty nervous when hubby has to leave for several hours to go to his own doc's appt's though. I'm always concerned that Dad will want/need to see hubby bad enough that I won't be able to calm him. Hopefully I can get past this soon too.

A whole bunch of adjustments for everyone! I have confidence in us though, all of us, as the love that's there for each of us is very strong and I feel that we should be able to work through most anything!
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name
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