I just wrote an article (based on personal experience) to help explain Alzheimer's to people who don't know much about
the disease. It's short and simple and maybe you could find it helpful.
The issue is obviously much more complicated however this can be a good start, especially if you would like to send others info that would be easy to read and hopefully encourage them to give you better support.
The article is here: http://forestrain.wordpress.com/2013/04/28/cruel-time-warp/
If it helps even one person a little bit, I'm satisfied.
Wishing you best of luck,
lots of patience and
lots of strength.