Sorry All ......Bedrest for next 24 hrs........

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Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/23/2005 6:45 PM (GMT -7)   
....Hey all just a quick update ,I am with an IV again and spent from early last evening till just shortly at hospital ........Have been ordered bedrest for at least 24 hrs so I am going to obey as I dont want to as be badly broken out as I was before with the pg......I would like to Welcome all the new members to HW and let you know this is a great place for care ,support and honest empathy.......the peeps on here are willing to help out anytime and answer your Questions (if possible) as well as give you the support you may need ....again welcome and I will be thinking of you all .......my body is tired and so am I lol .............be back tomorrow ...take care and be well ....God Bless ........Lyn
 
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    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/23/2005 6:52 PM (GMT -7)   
Oh . . . God bless you Lyn. I'm glad you are taking care of yourself. You should stretch that bedrest out too. When you start doing the next day, remember do a little and then rest!! You do too much.

I'll watch the AD board for you sis!!! I'm check in here most days anyway.

Rest well sis!!

Blessings!
In His Grip,
AlwaysRosie      "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis, High BP, GI Inflamation, Diverticuloses
Plaquenil, Methotrexate, Metanx, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel
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effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 6/23/2005 7:57 PM (GMT -7)   
Oh Lyn, my dear dear friend, I am so sorry to hear that you are not well. I can not imagine how you do all that you do. You are so busy and dedicated to everything you do. You give everything 100%. Now someone up above is telling u that u need to give 100% to taking care of Lyn. Please, please do.

I am so looking forward to our cup of tea or coffee. Perhaps some time this summer and if Cait likes to swim, I could bring her over to my sisters for a nice swim in her pool, with u and Howie of course.

Another member and her husband are talking about coming up this summer and spending a couple of days with Martin and I. I am sure you know her. I know she thinks highly of you. Anyway her husband wants to take in a show, like a live performance and dinner one night, and all going well perhaps you, Cait and Howie could join us. It would be neat for some of us HW members to finally meet. No pressure though. If you want we could just stick to original plan and have coffee or tea here, or at a local restaurant that is fine too!!!!

Please forgive my ignorance but what is pg? Do not rush back to respond. Maybe rosie will be able to tell me. She is a good friend to you and such a lovely, caring person.

Rest, drink lots of fluids and let Howie and Cait spoil u. And it sounds like its time for your family to play a more active role with your mom too. They never hesitate to ask your parents when they need something.

Take care. I will keep you in my prayers and I will do my best to answer a few posts with a shortened version to my normal ramble.

God bless you now and always and keep u safe in his ever loving care.
judy

Post Edited (effie) : 6/23/2005 9:01:33 PM (GMT-6)


howlyncat aka Lyn
Regular Member


Date Joined Feb 2005
Total Posts : 68
   Posted 6/23/2005 8:50 PM (GMT -7)   
.......I am so happy that my wife has people that care,she gets worried when she cannot fulfill her time on here,....her crohns in flare plus the PG is not good , I had to basically force her to the hospital .......Always Rosie ,Lyn thinks highly of you and embraces you as a dear friend ,thanks for being here all the times you are for her ....as she always says God Bless ..........Howie (lyn's hubby)..........Jusy we are looking forward to meeting up and doing whatever it dont matter it would be nice to meet for sure ,PG is pyoderma gangrenosum a rare skin/blood disorder that when she is stressed or crohns flares she will break out in really horrid painful skin sores ,look like ulcers and go right down to the bone ,she almost lost her finger ,the last time she broke out .......Maybe Rosie could find the thread with her pics on it for you to see how bad it gets .....she is really stressed right now as her son is going thru a nasty seperation and his ex took the kids and he is so attached to them it is ripping him and her apart ,so I think this is partly what has caused the breakout and flare ,....thanks for your concern and help ..looking forward to meeting up with yous in person .......taks care and God Bless ......(lyn always signs off that way lol)...Howie and Cait

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 6/24/2005 6:01 AM (GMT -7)   
Dear Howie, Lyn and Cait,

Thank you for taking the time Howie to respond. I trust you will take care of Lyn and insist that she rests.

I too am looking forward to our get together. My husband is a teacher so anytime in July or August would be best for us. but right now the most imortant thing is for Lyn to get better.

thanks for filling me in on what PG is. It sounds awful.

If you could tell me the first name fo Lyn's son I will pray for him. That is awful that both him and Lyn have to be going through an unnecessary stress.

I will pray for all of you.

Your wife is one special lady. I will pray for a speedy recovery and wisdom for the doctors to take care of her and give her the bat pssible care.

Lyn is very fortunate to have you, and you her.

We all love her. She is such a deeply caring and understanding person.

I have to run now to make it in time for a physical. i will write mroe later. I just wanted to say thanks and please keep us up to date on her condition.

May god bless all of you.

sincerely, Judy/effie

p.s. please let me know if I can call her on the phone and what would be the best time to do this.

Once again thanks, take care judy/effiey

howlyncat aka Lyn
Regular Member


Date Joined Feb 2005
Total Posts : 68
   Posted 6/24/2005 7:10 AM (GMT -7)   
Judy,thanks for everything the best time to call would probably be Sun night after 8 pm ok ,you take care as well and she is sleeping pretty soundly ,am and have pt my foot down this time lol ..be good and thanks again ..Howie

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/24/2005 4:45 PM (GMT -7)   
Effie,

I see that Howie filled you in on the PG. *Rosie shudders* I never looked at the pics . . . uh uh. I would if I could help bandage or take care of them, but not just to peek.

I have marveled many times at the wonderful peope, like you Effie and Lyn, that we meet here. Sounds wonderful that you are getting together with some of the HW family!!!! I hope you'l make a post about it aftword. I met HW Laura for B'fast one morning!! It is really nice to have a face for our friends here. Hmmmmm wonder if we could have HW year book online!!

Take care Effie, Lyn and Howie!!!

Lyn, I hope you are resting!!

Blessings!
In His Grip,
AlwaysRosie      "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis, High BP, GI Inflamation, Diverticuloses
Plaquenil, Methotrexate, Metanx, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel
Please help HealingWell help others. Donate today: http://www.healingwell.com/donate/


howlyncat aka Lyn
Regular Member


Date Joined Feb 2005
Total Posts : 68
   Posted 6/24/2005 7:30 PM (GMT -7)   
Always Rosie,thanks for all your kind words and concern ,she is still in bed (or just gone back ) she posted on Mod forum ,is still in pain and very tired but hopes to be back with all by tomorrow.............................Judy and us have plans to hook up in toronto and it will be great to put a face to the name lol,have lunch and visit ......take care and hope you are well ...........Howie ,Lyn and Cait

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 6/26/2005 5:36 AM (GMT -7)   
Dear Lyn, Rosie and Howie and Cait,

It is the wee hours of Sunday morning and as I sit here meditating, wondering what today will bring, I think of all of you. With a smile on my face and peace in my heart, I think of all of the new friends I have made on HW.

I pray Lyn that you have gotten some rest. I pray that somehow your body is healing and that the doctors will find God’s wisdom to guide them to make the right decisions so that you can be healed once and for all. I pray that you will not have to go through this “PG” again, and that all of your other health issues will be cured. I pray for you to find the strength to get through this. I pray for your family that God will give them courage too. I pray for your mom and dad and siblings. I pray for your siblings to learn to see the joy that they will receive in giving of their time to help take care of your parents. I pray that they will awaken and remember how fortunate they are to have living parents. I know that your path along the journey of life has been far from easy. Yet, who was the first to reach out to me in one of my darkest moments. It was not my sisters, or one of my friends that I had thought I had been close to for more than 30 years. It was YOU! Lyn, reached out to me and shared a hand and promised to be a friend. Your beautiful words of encouragement brought me to tears. How could this total stranger understand my pain so well? I believe that the Lord brought you to me. I hope that I can somehow comfort you the way you comforted me. You are so loved by so many people. You give and give and give. You meet people from all different roads of life, and yet I have never seen you judge or be harsh. You are kind and sweet and honest. You are a disciple and an angel all in one. You give from your heart, to your family and to so many people here at HW. You give wise advice. You share your endless patience. You rarely take time off from your commitments. You are a hard worker. You are truly a beautiful person. I am blessed to have met you and honoured to call you friend.

Rosie, always Rosie, your name describes you perfectly. Despite all the twists and turns you have gone through in your own life, you are there, offering help to others. I feel like I know you so well. After I met Lyn, I met you one day. You reached out to me when I was feeling insecure about the posts I was writing. I was worried that by sharing my own stories, I was boring people and writing too much. Yet you did not dismiss my worries. You somehow knew how much I really was worried about this. You wrote me kind words of encouragement and reassured me that my words were fine. You promised me that it was okay to share my stories and that perhaps in telling them, someone would find something useful. I was not just wasting space on the site. You embraced me and made me feel like I was part of the HW family. I admired you so much. I had seen how often your words had helped others. Your wisdom, patience and faith were there to guide others. People from all different walks of life and people who had so many different life experiences. You never judged any one. Your words were kind and uplifting. They oozed out love for mankind.

Both you and Lyn will never truly know how many lives you have touched or saved. How many people’s days were a little or a lot brighter because of the words you wrote to them. One can easily see how close you two sisters are. They say twos company, threes a crowd. Yet you have never made me feel like I was invading that very special place the two of you have found with each other. You have invited me to share your friendship. You are both confident and strong. You fear not inviting others into your world. I am blessed to be a small part of that world. If I could have three wishes right now they would be that all here at HW would get better, that all HW families would be safe and strong and that Rosie you could come for our tea party. Oh how I would love to meet you. I do not even know where you live, but I wish somehow we could all get together for a lovely cup of friendship.

Well my dear friends I will bid adieu for now. I will keep you close in my heart and prayers.

Judy/effie

effie
Regular Member


Date Joined Mar 2005
Total Posts : 344
   Posted 6/26/2005 3:54 PM (GMT -7)   
Dear Lyn,

I have just spent some time researching PG. I am so sorry. I had no idea you were going through something so potentially serious. I wish I could just come over and move in and take care of you and your family. Please let me know if there is anything we can do. If there are doctors in Toronto that can treat this better, please feel free to book the appointment and you and Howie and Cait can stay in our guest bedroom. I had an excellent dermatologist when I had the palmar pustular psorasis on my hands and feet. That could get quite bad. I found buying Kling wrap in bulk, and using some of the more old fashioned treatments like, "burosol" really helped. I actually read one article that said sometimes nicotine gum helps with your condition. I hope you are seeing the best doctors Lyn. You really need to take the time to let your body rest and reduce your exposure to unwell people. I will be calling you in a couple of hours, if you are up to talking. If not, trust me I will understand. You are in my prayers. Your son remains in my prayers as do your mom and dad and of course Howie and Cait.
Sincerely,
judy/effie

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/30/2005 7:12 PM (GMT -7)   
OH Judy, I just now read your post.

You are so kind. I've been feeling a bit down this week . . . thought I was really past that, but one of my most fun adventures, backpacking, has been out of the question at least temporarily. I was invited a few days ago to go on a 4 day hike with my son and his wife. I was honored that they would want a 52 year old along with them, but they do seem sincere. Anyway you mesage is so kind and uplifting. Thank you sis. Timing was perfect.

BTW: I chose my name because my cheeks are "Always Rosie". It is the classic butterfly rash of lupus, which brightens with sun exposure. I get the same rash on my arms, neck and v of neck if I don't cover up real well in the sun. So, if you see a plump, 52 year, old blond walking around with long sleeves, collar up, hat and backpack on, that is likely me!

Oh . . . I live in Ohio and am east of Cleveland, 1/2 mile from Lake Erie. Toronto is about 4 hour drive from here. All my relatives live in Ontario. Most are in Penetang and Midland (on Georgian Bay). Small world!!

Thanks for the encouragement sis!! I enjoy your posts as well!!

Blessings!
In His Grip,
AlwaysRosie      "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis, High BP, GI Inflamation, Diverticuloses
Plaquenil, Methotrexate, Metanx, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel
Please help HealingWell help others. Donate today: http://www.healingwell.com/donate/

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