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Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/2/2013 6:35 PM (GMT -6)   
Some good news .........
 
   After my primary doctor meeting last Friday, it was confirmed that I do not or did not have pneumonia. It is or was Bronchitus ... but it did affect me seriously due to my COPD!
   And today, I had blood tests, a meeting with the oncology nurse practitioner and a chemo treatment. I reviewed quite a few things with the ONP, and she did examine my lungs and my blood oxygen reading before approving me for the chemo treatment.
   I slept 3+ hours this afternoon after getting home.
 
   Tomorrow, I'll get more results from the blood tests. But today, the results from my catscan on last Monday were in ... and the pelvic mass of metastisized cancer was reduced slightly from the last pelvic catscan in August. And no additional movement toward the bones (ribs).
   Feel like celebrating!!!!!! But i'll wait until tomorrows balance of test results first.
  
   Peace and wellness
 
Rob and Gizzy
 

SFGamerBabe
Veteran Member


Date Joined Oct 2013
Total Posts : 1380
   Posted 12/2/2013 10:16 PM (GMT -6)   
I am so glad that your cancer is shrinking. Yay! I hope and pray that you continue to receive only good news about all your medical issues.
28 Female.

Bipolar
Depression
Thyroid disease
GERD
Panic&Anxiety


Amitriptyline-10mg (sleep)
Paroxetine-40mg (anxiety)
Oxcarbazepine-300mg *2 day and night (bipolar/depressio

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/5/2013 8:23 AM (GMT -6)   
Great news Rob! So good to hear it was not pneumonia. Glad that the cancer is shrinking -- celebating with you!!

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/6/2013 8:58 AM (GMT -6)   
Thanks Carol and S2S .........
 
   I forgot to list here my PSA results received on Tuesday. The PSA is a number ... that is used most often to determine the severity or likelihood of having prostate cancer or, in my case, advanced prostate cancer (cancer that has spread to other areas)!
 
PSA baseline (before latest chemo start)              83.09
PSA after three weeks (one chemo treatment)      64.78
PSA after six weeks (two chemo treatments)        43.01
PSA after nine weeks (three chemo treatments)    25.19
 
The target is to get under 4.0 .... but a 69.7% reduction in 9-wks is good!
 
A happy camper here!!!!
 
Rob and Gizzy
 
Initial Dx of PCa in 2003/2004
Radiation (5x5wks) & Brachytherapy (96 seeds) in 2004
Low PSA for 6-years then Casodex briefly
Lupron from 2011 to current
Zytiga 2012 (5-months) - PSA increase
Prednisone & Xgeva from 2012
Taxotere - August 2012 (30-weeks) - PSA from 54+ to 12+
No chemo (8-wks) - PSA to over 23
Xtandi - June to Aug - 2013 - PSA increase
Jevtana + Lexapro - from October 2013

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/6/2013 10:30 AM (GMT -6)   
Wow, what a difference Rob! That's just excellent, and I'm doing the happy dance for you! Congrats, and I'll keep sending healing thoughts your way.

How's Mom doing?

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/7/2013 8:31 AM (GMT -6)   
Hi Carol ..........
 
   Mom is OK. I got a call from hospice two days ago letting me know she didn't eat too well that day at lunch - but was otherwise doing pretty good.
   I got a call from my youngest daughter last night, as she was boarding a plane to come back to the Chicago area, and she suggested coming over on Christmas Day - then going to see Grandma - maybe have lunch with her on Christmas.
  Christmas is just two days after my next chemo treatment - so I may have to wear one of those surgical masks to go see her, but it was very nice of my daughter to think about that and suggest it!
   Hope all is well with you and your family!
 
Rob and Gizzy
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/7/2013 12:16 PM (GMT -6)   
I'm so glad your daughter is coming to visit you and her grandma -- what a special Christmas gift for you! Hospice is a great organization, and they are so on top of things.

Keep us updated on both you and Mom!!

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/8/2013 11:11 AM (GMT -6)   
Hello Carol ......
 
Just a minor clarification:
 
   My youngest daughter does live in this area, but she was out in Missouri on a business trip. So, she came back home two days ago.
   I am going thru some very difficult times with one of my daughters - my oldest! She has kind kissed me off ... or deleted me from her life for at least the past 4-months. I wrote her a long letter asking why - earlier this past week, and copied my youngest daughter.
   I got a short defensive letter from my oldest .... and got an absolutely wonderful long letter from my youngest. I wrote a return to both of them. My oldest is ignoring me. My youngest gave me a call from Missouri Friday night and two e-mails yesterday ... as well as, saying she will call me tonight to finish our disussion - mostly about Christmas plans.
 
   I'm so glad to hear that your own family was or is - close knit. Mine is not and never will be as a family. But my youngest is doing everything to help me feel less lonely. She is a wonderful person .... so proud of her! It's the closest I'll get to a close family. Until this past week, I wondered if anyone in my small family cared.
   My daughter, Amber certainly does. I'm so lucky to have her.
 
   Sorry, it's a bit of an emotional time for me right now. And sorry to say, my Mom was not the angel you've described as your Mom .... but I have to respect the fact she is my Mom ..... old school I guess!
   My oldest daughter has not spoken to Mom in 15 years. My youngest saw Grandma a couple of weeks ago - the week of thanksgiving ... and wants to see her for Christmas with me.
  
   Hope your family is totally at peace ... and will enjoy the coming holiday season.
 
Rob and Gizzy
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 12/9/2013 8:22 AM (GMT -6)   
I'm sorry about your oldest daughter, Rob. It's tough to fix something when you don't know what the issue is.
 
My husband has this issue with his son. My husband and his wife divorced about seven years ago, but the son still has issues. His daughter has been okay, but I wouldn't say totally immersed in our lives. On Thanksgiving, she started talking about her mother's side of the family. Her interpretation of what went on in the family, and what her dad's interpretation was-- were totally different. When she realized that maybe she hadn't see the whole picture for quite some time, it was quite a revelation! Sometimes younger people just don't realize that there are other factors of life that contribute to feelings...the world doesn't revolve around them.
 
I'm so glad that your youngest daughter is a big part of your life. She sounds like a gem!

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/17/2013 3:33 PM (GMT -6)   
Went to see Mom today .......
 
   Even though she had hospice started two weeks ago, she looked and acted just like she did a couple of months ago.
   While I was there, the hospice Chaplain came - so I got to meet him - and was there for Mom taking communion. She reacted well to the chaplain as he had told me by phone the last ime he was there 10-days ago.
  
   I had some news for her. Her closest (and only remaining) sister-in-law is OK. I had talked to her a couple of days ago, and told Mom that she lives close to 400-miles away, so she wouldn't be able to come see her. Mom had forgotten where Aunt Betty lived.
   Then I told her that I had talked to Mom's niece also a few days ago - although she's about 300-miles away. Mom couldn't remember her favorite niece. And then Mom asked where I lived. I told her the same place, and she said she hasn't been there ..... but she was. In fact, 12+ years ago, when I was in the hospital, Mom stayed at my place and took care of my dog for a week.
 
   Oh well ...... she did recognize me - from 20-feet away shortly after i walked in. I told her I would be over on Christmas Day - along with my youngest daughter - to see her next time.
   She doesn't seem to realize or remember our last conversation - when I mentioned about her house being sold ... and that I had all of her out-of-season clothes at my house.
 
   So .... it was a mixed bag of some progress and some regression. But she looks and sounds healthy.
   I'm glad I went today ...... but, I didn't take my dog Gizmo with. They are very big on animal therapy there, and all four buildings have live-in pets. Maybe on Christmas ... if the walks aren't too sloppy from the snow and ice.
 
Peace and wellness
 
Rob & Gizzy
 

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1380
   Posted 12/18/2013 2:44 PM (GMT -6)   
Rob,

I'm glad you had a nice visit w/ your mother. It's hard when you don't know the reception you will receive.

As I read about the chaplain visiting w/ your DM, it reminded me of my DM & the chaplain. Usually the priest came and gave her communion, but a cpl of times the rabbi came in to see her. He asked her if she wanted to sing some Irish songs, she said ok - and he started to sing 'Danny Boy'. Well, she jumped right in. Her voice wasn't very strong, but she knew all the words. I was torn between smiling and crying.

My mother knew all of us, but she had a hard time w/ issues such as, was there enough money in her acct to pay her bills - especially the bills for the house. I reminded her that the house was sold, so no 'house' issues, but worry she did.

I'm glad you were able to get in touch w/ your aunt & cousin. I bet it was a comforting thing for you and very nice to share w/ you mother. I have one aunt left, and she is a delight, but I do miss my other darling aunts. They were treasures!

It was good to hear that she looked and sounded well. I hope she stays that way for a long time.

Your plans to visit your mother at Christmas sound nice. I know you said your your DD will be going w/ you, I hope you are able to bring Gizzy. Hopefully, the weather won't be toooo terrible and slick.

Personally, I can live w/o a White Christmas! I've seen enough snow this autumn to last me several decades. lol

Have a great day and pls give a good scratchin' to Gizzy for me.

God bless. Alice.

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/19/2013 8:42 AM (GMT -6)   
Hello Alice .......
 
   I can't get it out of my mind of .... a Rabbi singing "Danny Boy"!
 
   Mom was really close with her SIL. I wish they could see each other at least one last time, but besides the distance - Aunt Betty must be close to 90-years old. Mom will at least get a card from her within a few days. And she should have two more visiters either today or tomorrow at the Home for Assisted Living.
   I have to say, since her house was sold/closed in August of this year, I have not been over to her area - the suburb she lived in. For a year, I was going over there to the vacant house every week - thru early August. What a relief to not have to do that anymore ... and Mom's got enough of a bankroll now to keep her in this Assisted Living Home for close to another three years.
   Depending upon the weather, I may bring Gizzy with on Christmas. Mom would like to see him ... so would a couple of the caregivers there who like him a lot.
 
   Thanks for staying in contact .... and hope you and yours enjoy this Christmas.
 
Rob & Gizzy
 
P.S. - ditto snow!
 
  
  

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 12/29/2013 9:40 AM (GMT -6)   
Hello ......
 
   What a week!!!!
 
   A week ago, Gizzy got very sick thru the night - pacing constantly and crying (first time ever). By Sunday night (a week ago) he finally would lay down and sleep for 15-minutes at a time.
   By Monday morning, his sleeping was better ... and I had a pre-scheduled chemo therapy treatment. So I went to the doctors office, did my 4-hours there and came back home. Gizzy was not eating.
   The next morning, I took him into the vet, as an emergency, and left him the morning for blood tests and eventually x-rays. The vet called me back to pick him up and cautioned that he was slightly dehydrated and the tests showed he had a kidney problem. He gave me two meds for Gizmo.
   The next day, on Christmas, the vet called me to check how he was. He was drinking water well ... but still not eating. By Thursday morning, about 2:30am, he did finally eat a couple of crackers. So later that morning, I made some scrambled eggs for him - suggested by the vet.
   By Friday morning, the vet called again and wanted to see Gizzy that afternoon. He had another blood test .... and in three days his BUN level went from a very high 96 down to a normal 21!
   For a couple of days, I thought I was going to lose him ... and he's not even three years old yet. Now, two more days after the last blood draw, he is eating nearly normal like and he's acting just like he was two weeks ago - a little mischievous and very loving at the same time.
 
   On Christmas day, my daughter did come over and we went out for lunch then to see Grandma at the Assisted Living Home. Of course, Gizmo did not go. Mom/Grandma was OK - not very talkative but not in a bad mood.
   Last night, I got home from having a be-lated Christmas dinner out with my daughter and her BF. There was a message from Mom .... very unusual!
   I called back and talked to her. Her mind was totally somewhere else. Thirty to fourty years ago, both of my parents had West Highland White Terriers that they showed and had a stud service for. My father was a part-time groomer of Westies and similar terriers.
   I can only guess Moms mind was going far back when she said .... it was important for me to come over tomorrow because someone was delivering a dog to her. When I asked questions, she became mad and frustrated with herself that she couldn't remember exactly why she called me an hour earlier when leaving her message.
   She did say her friend knew what it was about - so I called her friend. Her friend knew nothing about any dogs being delivered or that she had talked to Mom that day.
   It's so confusing. Mom really sounded like this was happening - even though she couldn't remember just what it was.
   This is the first time a major event was created in her mind that I know of. There have been many minor ones before, but this time she sounded so convincing - but frustrated. This can be a cruel disease!
 
   On a brighter note - in celebration of Gizmo's return to normalcy, I have four photos of him for anyone who would like to see him.
The photos are:
1) lower photo is of Gizmo and his Bro - before I chose which puppy.
2) upper left photo is of Gizmo at 4-months old - portrait.
3) upper middle photo is of Gizmo at 15-months old - portrait.
4) upper right photo is of Gizmo at 15-months old - looking at a squirrel.
 
In order to view the photos just:
1) click on www.postimage.org
2) the family button should be already pushed
3) click on "to view"? or similar category at the top of the page
4) if needed (may not be though) e-mail is agizmo2@att.net
5) password is .... gizzy
6) then you'll see under file ...... 101 .... and his 4-month portrait.
 
   So happy to have him back!
 
Peace and wellness
 
Rob & Gizzy
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/5/2014 10:48 AM (GMT -6)   
Hey Rob and Gizzy, Happy New Year! Rob, love the pictures of Gizzy -- what a gorgeous boy you have! :)

How is Mom? Sounds like you've had a busy time, and I am so glad Gizz is feeling better. How are you feeling? So glad you were able to spend time with your daughter during the holidays.

I've been off for a couple of weeks, so it's been busy with family, and trying to get Mom's things in order.

I tried my first yoga class yesterday, and it brought some peace to my mind. Thinking about you!!

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 1/5/2014 7:05 PM (GMT -6)   
Hello Carol .......
 
   Happy New Year!
 
   I hope all is going OK with your Mom's things ... and of course the family too. I am so happy to have my Gizmo back to normal.
 
   I got a call from the Hospice nurse two nights ago saying that Mom was having a little difficulty in swallowing liquids at times. The nurse said she was going to have a powder added to her drink to thicken it, so that it should help her swallow properly.
   The weather here has been horrific ..... 18 to 20" of snow in the past 5-days and tomorrow it's going down to -18 degrees with a high still below zero. Yesterday was a reasonable day with little snow - so i went to see Mom yesterday.
   She looked pretty good. The Hospice nurse was there, and she told me that Mom was much better after just that one day. I brought Gizmo with - and she liked seeing him again too.
 
   I've been OK except for the weather. My next chemo is a week from tomorrow, and I'm hoping for slightly better results than the last time with my blood tests. Time will tell.
 
   Congrats on the yoga. It sounds worthwhile.
 
Rob & Gizmo
 

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 1/11/2014 9:37 AM (GMT -6)   
Annual Evaluation .......
 
   Two days ago, there was a telephone meeting with the Assisted Living Home and Hospice and me.
   There have been no medication changes - and Mom's condition is generally pretty good with mostly good days and a bad day here and there. The signal seems to be when Mom goes for breakfast, if she has put on make-up, it's going to be a good day for her.
   The Hospice care does not signal her end .... but it has provided a lot of additional care. Mom really does like the chaplain coming over to see just her every 10 to 15-days - and getting communion. And the Hospice social worker sees her weekly while the Hospice nurse is there daily - with several people to see.
 
   After our talk, something became clear to me. Mom's memory is now way back in time. She thought my dog (last week) was her dog. My parents used to show dogs, groom dogs and three of their dogs were champions that were used for a stud service - all about 40-years ago.
   Mom did ask me last week if Grandma (her mother) saw Gizmo ... and my grandmother has been gone for 25-years - after a long bout with alzheimers herself.
   BUT ...... nearly every day, Mom is in good spirits. Her world is just getting smaller and smaller!
 
Rob & Gizmo
 

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 1/14/2014 2:21 PM (GMT -6)   
A TURN FOR THE WORSE .......
 
   We knew it was going to happen - just didn't know when! But I got a call from Hospice this morning at 12:30am ... and Mom was much worse. I called again at 6:30am to see if there was any progress - and there was none. And then at 1:00pm I checked with the daytime Hospice nurse and she said there isn't much time left!
   So ... Mom is on morphine and an anti-anxiety med and a med to try to control the fluid in her lungs. She has also not been responsive at all since yesterday ... eyes closed and no talking!
   I was encouraged this morning to start making some final plans. So I did go to the Funeral Home that my Father was at so many years ago. I picked out a casket and the brief service type - and with pricing. Later i got a call about the pricing at the cemetary. This stuff is sure expensive!!!!
   As of this afternoon, the Hospice nurse told me Mom has somewhere between hours and maybe days left. BUT ..... she seems to be having no pain - and should peacefully pass when it happens.
   I need to find a recent picture of her today so i can bring it in tomorrow along with the clothes she wanted to be buried in.
 
Peace and wellness
 
Rob & Gizmo
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 1/15/2014 7:41 PM (GMT -6)   
Aw heck Rob. I'm so sorry, but I suppose it's inevitable -- the cycle of life. Please know I'm thinking of you; big hugs, and if you have any questions, please ask away. I'm thankful you Mom is going peacefully -- Hospice is so wonderful. Take care. (((HUGS)))

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 1/16/2014 9:23 AM (GMT -6)   
Thanks Lonie ........
 
   Mom did pass away Monday night. Hospice was terrific. And the past two days, necessary things have been busy here. A few more details to finish today - then a short wake/service is tomorrow. But you were there recently - so you know!!!!!
   A couple of good things though. Recent blood tests did show that the chemo I have been on the past 4-months is still doing some positive things. And ... a big and .... my oldest daughter and I have talked. She is going to come to the wake/service tomorrow.
   Must go for now - with more details to finish. I will write something longer and positive in a few days.
 
Rob ....... Gizmo too.
 

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 1/19/2014 10:41 AM (GMT -6)   
Hello all .........
 
   Mom was buried on Friday, January 17th. It just so happens that January 17th was my fathers birthday. He has been gone now for 19-years .... but
 
                       Mom would have liked that she was buried next
                                to her husband on his birthday.
 
 
Peace and wellness
 
Rob & Gizmo
 

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 2/14/2014 8:57 AM (GMT -6)   
In memory ....... for Valentines Day:
 
   It has been one month since Mom passed. I am missing going to see her - and the thought that I'll never go to that Home for Assisted Living again is sad - but we must go on.
   She will not continue to decline - as of a month ago. She still did have many of her memories in tact up until the last two weeks. For that I'm grateful!
   Love you Mom .... so does Amber.
 
Rob
 

chinki
Regular Member


Date Joined Feb 2013
Total Posts : 47
   Posted 2/14/2014 4:30 PM (GMT -6)   
So sorry for your loss Gizzy.
Dad PCa... 68 yrs
PSA 4/12-34 ( Possible bone mets in one spot)
Started on Lupron and Casodex- PSA 0.4 on 5/12
12/12- PSA went up straight to 100 ( Bone mets at 5 places)
1/13 started Taxotere
3/13 PSA 85
Did PSA once more two days ago...went upto 280

long story short: PSA 2000+ and now on Xtandi 7/1/13

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 3/2/2014 12:00 PM (GMT -6)   
Thanks Chinki
 
      and my very best wishes to you and yours!
 
 
Rob & Gizmo
 

Gizzy'n me
Veteran Member


Date Joined Jun 2013
Total Posts : 1870
   Posted 5/12/2014 10:52 AM (GMT -6)   
Mothers Day .......
 
   Yesterday was the first one spent alone.
 
   But ..... time moves on.
 
   Got a call from my daughter though -
 
   and everything is good there!
 
   But ...... time moves on!
 
 

Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1380
   Posted 5/12/2014 1:14 PM (GMT -6)   
 
Hi Rob,
 
Yeah, that first Mother's Day after losing your mother is tough. I'm sorry.
 
I am very glad that you got a call from your DD. I'm sure that had to lift your spirits. Glad to hear she is doing well!!
 
My DM passed 3 yrs ago, and this was my 4th Mother's Day w/o her. It still doesn't feel right.
 
Our 3 adult children took us out for breakfast yesterday. We had a lovely time, but it still seems as if it is her day.
 
It hurts, but as you said, time moves on. Whether we are ready or not.
 
Prayers to you.    Alice.
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