OUR 36-hour day

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Snowden
New Member


Date Joined Nov 2005
Total Posts : 5
   Posted 11/26/2005 4:39 PM (GMT -7)   
Hi again everyone......for those of you who read that book they're probably familiar with the topics it addresses,for those of you who are not it said on the cover :for family members of Alzheimer patients, other dementing illnesses and memory loss later in life...... My mother has some sort of dementia which i hope is reversible or at least gonna get better........everyday is a new experience,,,,,....
 
Back to the book "The 36-hour day" it gave me some pointers, things i wasn't aware of,,,,,,But every human is different.......some tricks in the book work,others don't....we acknowlegde every minor improvement, we sit back and look.....every setback on the other hand is really depressing for the two of us.....yes she is mom is aware of her deteriorating memory and mental capabilities.....
 
So how about we share day to day experiences, new tricks,,,,,,,,i tried a couple i read in the book, some i made up.........
 
e.g. the book said involve them in preparing a meal,,,,,,,now mom was a great cook,,,, i used that as a memory trick,,,,being a mediocre cook myself i asked her about a pasta recipe, nothing too complicated,,,, she stumbled a bit but then she got it. most of it.......
 
e.g we work on reading a bit everyday, i was not aware that was becoming difficult,,,,,i knew it by accident.......i got her a prayer book, asked her to read a praye, i got one i knew she knew by heart (cheating? still a memory trick and reading all in one),,,,,,,she was starting to get really frustrated, so you might wanna take care when you do that,,,,,,,lines tend to cross over,,,,,,,,i kept my finger on the word i wanted her to read  all the while keeping the next line covered with a piece of paper....
 
and finally we keep a log book in our heads, when we go to bed at night we try to count where we got better and plan the next day's project.......
 
P.S. if the patient has progressive dementia, Alzheimer sort of thing i don't know if these tactics will work, they might do more harm than good....again every human is different, his illness, his life, spirit......etc.
 
REALLY looking forward to hearing tips from you,,,,,,,,I'm afraid i'll run out of those eventually....
 
Thanks everyone
XXXXXXXX 

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/27/2005 2:05 AM (GMT -7)   
In the good weather I took Mom out to her garden it was her pride and joy.........another thing we did was make all kinds of collages of the family coming up with 6 generations of peeps pics.........Mom loves to cook as well but has forgotten most of it but I still will try and do it with her.................plenty times food is really REALLY salty but I eat it anyways lol........she loves to go to Wednesday market just to look at things so off we go with her walker ............another thing to try is jigsaw puzzles ....not too hard at first but she likes them and we do other crafts as well ............great thread........God Bless .....Lyn
 
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    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
 
 
                              


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 11/27/2005 10:00 AM (GMT -7)   
Thanks for this thread Snowden.

One thing I do with my sister is to sit down with different types of craft ideas,quilling,glass painting(although the set I have is actuely plastic lol) I start off painting or whatever and then I will say somthing like "oh I am no good at this,(usuely a fact lol)do you have an idea on how I should do this or what colour should this be?"

My sister used to be a very talented Artist so somtimes it can be very rewarding to see her take part in these activitys,even if it is only for a few moments before she becomes confused all over again. We were out walking in the park the other day and she was commenting on the beautiful coloured leaves that had fallen from the trees,and she was picking one or two up. I think that is the Artist still within her struggling to get out.

Lynne... we also visit a wednesday Market. Stella enjoys looking around at the antiques and book stalls.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/28/2005 3:54 AM (GMT -7)   
BL.........I am so glad you are doing these things as well with Stella .........It would have made my day to hear her comments on the colours of the leaves,.......that is the perfect way to get her involved in the painting with you ........may have to borrow that idea ....lol........Mom loves the antiques and the books always looking for Danielle Steele ( although I do think she has triples of all her books already ) as well she loves the veggie vendors ......she will tell them their prices are too high lol,and I just carry on with her ...........lately she is into shopping I have no idea where that comes from as she has never been one for going into crowded stores (nor am I have A/P disorder),,,,,,,but we are getting thru it I think it takes my mind off my anxiety when I have to keep her in line .......or we just go for rides anywhere in the country looking at the scenery.......God Bless you hun for all you do for Stella ............Take care and yak soon .........We are here for you .........Lyn
 
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    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
 
 
                              


Snowden
New Member


Date Joined Nov 2005
Total Posts : 5
   Posted 11/28/2005 2:19 PM (GMT -7)   
Lyn,,,,Bag Lady.....thank you bothe very much for your replies.....please do keep it coming....
 
Lyn, mother is in a wheelchair and sensitive about it so going out isn't an option but the jigsaw puzzle idea is fun, i also found out she liked dominos........she liked card games but she's not that articulate yet to manage one....i hope she'll be soon
 
Bag lady: I know what you mean about your artistic sister,,,mother LOVED her work, and since we're both doctors so i go to her with problems from MY WORK and ask her what she thinks, what i should do......I sometimes really need her answer and they are really good........I ask her for advice as a WOMAN,,,,she likes that, she's still one :-)
 
She had a flu the past couple of days so i didn't try to push things but i found out something: although she's not that talkative (very silent acually the past two days) she doesn't want to be left alone even if i'm sitting in the next chair, she thinks i'm ignoring her if i'm on the phone for too long, SO TOUCHING works wonders, foot massages....etc. There's a plus in foot and arm massage: it keeps her aware of her limbs......last week i asked which foot i was touching she said "right" (correct answer) then i started on the left and asked which foot was it again she said "right" nono  i laughed and pretended she was making a joke,,,Then i slid my hand up her leg, told her to look at he "LEFT SIDE" , she got it right after a couple of times.......so i try to keep her aware of different body parts.....simple yet i think is important......... 
 
XXXXXXXXXXXXXXX

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/29/2005 2:34 AM (GMT -7)   
Snowden.......so glad you have found some great ways to interact with your Mom......and keeping her mind active is great as you know ........my Mom was not a person who gave hugs or showed emotional feelings very often when growing up but she does now........when she feels like it lol......I rub my Mom's legs every night for her as she had some clotting going on I was told by her doc this would help ......she likes it and it gives me the chance to spend "our time" together at night prior to her going to bed .........I just recectly flipped out on her doctor here in town as I found out he was giving her Ativan to take ,..........A big no no for AD peeps as you no doubt know yourself ......hope you keep finding things to do together as well ........God Bless .........Lyn
 
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    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
 
 
                              


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/9/2005 11:25 PM (GMT -7)   
Dad and I do small jigsaw puzzles too. He really can't place the pieces in the right spot except occassionally, but when I find a piece, I leave it sticking up a bit and he loves to snap it into place. When the puzzle is complete I slide it onto a piece of waxed paper and have Dad grout it. LOL . . . we use Elmer's type glue and squirt it all over the completed puzzle and he uses a trowel (kitchen tool w/flat blade) and he works reall hard at getting it all smoothed out and into the cracks. It dries clear and then we hang it on the wall. We've got a huge collection and he loves showing people when they come to visit.

He also likes to paint, so I have a big supply of popsicle sticks (big and small) and I make things for him to paint. He will spend lots of time doing the painting and he really works hard at it. He shows everyone his huge collection of crafts.

Great string!!!

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis, High BP, GI Inflamation, Diverticuloses
Plaquenil, Methotrexate, Folic Acid, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel (Centrum Silver, B12, B6, Calcium+D,)
 
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AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/9/2005 11:30 PM (GMT -7)   
OH!!

Something else which has been a big help. Dad will ask the same question over and over and he'll worry about what day it is or when mom is getting back etc. I use a small sheet of paper and write a very simple message for him. Such as "Mom will be back at 2:00. Please wait here". He takes the paper and reads the message out loud about three times and then puts it in his wallet and takes it out repeatedly . . . but he stops fretting over it. It often has a great calming affect on him.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Plantar Fasciitis, Inflamatory Arthritis, High BP, GI Inflamation, Diverticuloses
Plaquenil, Methotrexate, Folic Acid, Synthroid, RX Motrin, Lexapro, Amitriptelyne, Salagen, Lotrel (Centrum Silver, B12, B6, Calcium+D,)
 
For lots of clickable links, click here LUPUS RESOURCES


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/10/2005 5:45 AM (GMT -7)   
Great Idea Sis ........am going to give that one a try for sure .......how are you and the family doing ???? My thoughts and prayer's are with you always ........God Bless ..Lyn
 
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    I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn  
 
 
 
 
                              

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