The hardest part

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Jeni102
New Member


Date Joined Oct 2003
Total Posts : 1
   Posted 10/17/2003 9:01 PM (GMT -6)   
My grandpa has alzheimers disease. Every time I see him it gets a little worse. The hardest part is watching the effect it has on his mental health. He knows that he keeps getting a little worse. He can't put his sentences together which makes him embarassed to communicate. He often asks if someone could give him a brain. My grandpa is the greatest man in the world kind, caring, generous, and wonderful in every way. I sit back and watch this HORRIBLE thing begin to take over. I feel so helpless. I am supportive in every way but I just I could make it stop. I try not to think about this to much becasue I break down every time.

Sassy
Veteran Member


Date Joined Apr 2003
Total Posts : 646
   Posted 10/22/2003 2:19 PM (GMT -6)   
Yes,this is a sad disease. Especially for the person him or herself who realises they cannot remember things or say what they want. 

Sounds like you are a wonderful grandchild and just by being with him and understanding it makes all the difference to how he copes with his changing world.  You may have to repeat yourself, to learn a type of sign language or quessing game.  But just reasuring him that its not his fault could help too. 

Keep loving him...

Jeanie
New Member


Date Joined Nov 2003
Total Posts : 1
   Posted 11/25/2003 12:18 PM (GMT -6)   
Please let me know if I am doing this correctly.  It is hard to imagine, but I am a retired teacher who has never posted to a chat room.  I have an 82 year old mother who has been diagnosed with Alzheimer's for about 5 years.  I am finding it very difficult to deal with the continual deterioration that I see almost daily.  The guilt is also difficult to handle.  Have I done the best for her (she now lives in a nursing home)?  Is there something more I could be doing to help her and keep her from getting worse.  Any ideas or suggestions would be very welcome.

pikake
New Member


Date Joined Jan 2004
Total Posts : 1
   Posted 1/26/2004 3:06 PM (GMT -6)   
justme52

I just had to reach out to you today and let you know you are not alone.  I've been lurking out there for a while, but your story got to me.  When my AD mom moved in with us three years ago I also felt helpless.  By calling the local Alzheimer's chapter I was put in contact with many wonderful resources, especially a local Adult Day Care Center which has proven to be a Godsend.  Even though you live in a small community the closest chapter should be able to give you some suggestions over the phone.  Please call them.

Also, Pfizer (the company that distributes Aricept) has a wonderful program available to those of lower income.  It's called Pfizer for Living Share Card and allows qualified members to purchase Aricept for $15 per month directly from the member's own pharmacy.  To learn more visit www.pfizersharecard.com or call them at (800) 459-4156.  My mom's insurance didn't cover her Aricept either, but Pfizer did accept her.  They also have other drugs available too, such as Zoloft for $15.

Hope this helps.  God bless you.




Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 5/4/2004 3:06 PM (GMT -6)   
I remember the frustration watching my grandfather slowly go downhill. MY grandmother and Aunt took care of him for as long as they could. We took him to an adult day care for awhile to give them a break and it was a nice thing for them both. We did put him in a nurseing home 2 years ago. He is now tied in a wheel chair. I use to think that was awful but I also thought seeing him fall trying to climb things or just fall walking was not so great either. he doesn't seem to mind.

He was quite a pest when he was first there! I walked in one day and he came running out of a room holding his head. The lady in that room apparently didn't want him there so she bopped him in the head with her cane! He was always taking things apart, toilets,doorknobs, he was very good at helping some of the woman get untied from their wheel chairs too!

He still talks some. Always asks for me. He says wheres Cindy? I tell him right here and he says you aren't her. So I tell him she loves him and misses him and he seems happy with that answer. I do take some comfort in the fact that he has 5 children but it's my name he remembers.

This has been so sad to watch. My grandparents raised me and I hate what this has done to both of them. My grandmother wants to go see him every night and it's getting harder to get her there. She can barely walk. But as long as her mind is good I could never take her there. I know she is afraid that her kids will want to put her there. No way. I guess she'll have to put up with me!

Take care and God Bless all of you going thru this.
Cindy  (Csimplywood)
 
God will not give me more than I can handle,I just wish he didn't trust me so much!


Ozzie
New Member


Date Joined Apr 2004
Total Posts : 12
   Posted 5/4/2004 7:13 PM (GMT -6)   
All of these posts bring back the memories of when my parents were suffering with Alzheimer's. It is a dreadful disease. I went to Alzheimer's support group meeting for quite a while and found it to be really helpful. They gave out printed materials with tips for caring for the patient. They also gave a lot of advice and insight. You could ask questions and you could share your pain with others who were going thru the same thing. I would highly reccommend the meetings.

Airy
New Member


Date Joined Jun 2004
Total Posts : 5
   Posted 6/14/2004 10:08 AM (GMT -6)   
It will be a year this August since I lost my grandfather to Alzheimers.  It was the hardest thing I've ever had to watch.  My grandfather was like my father and I've a really hard time with this.  I gave a year of my life to help him and he did not even know who I was.  He cried all the time.  For the longest time he knew something was wrong with him but did not know what.  Then we totally lost him (mentally).  It really was the saddest thing I've ever seen.  I think about him everyday and I am very glad I was able to be there for him as much as I was.  But it still hurts.  He was the greatest man I've ever know.  He will always be my hero!  Airy

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 6/14/2004 1:42 PM (GMT -6)   
Just me,& anyone else.Will your Insurance pay for Reminyl??My ins.pays for my AD meds.He will go down hill faster not being on any meds.at all.......
SnowyLynne

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