Downs Syndrome and Alz

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BAK
Regular Member


Date Joined Jul 2005
Total Posts : 44
   Posted 12/6/2006 7:20 PM (GMT -7)   
I was wondering if anyone here has any good information/links/books, etc. on working with a man who has Downs Syndrome and Alzheimer's. I believe that he is now in the later-middle stages and is having aggression issues, wandering, sundowners, confusion, constantly asks what his sister said (as though he thinks we just talked to her), and also has a pace-maker. He is quite overweight ...huge tummy and short.

I have taken care of him for 3 years and he is very attached to me since the rest of his staff has changed over the years. He often doesn't want other staff to help him even though, as a supervisor, I have other duties that I need to tend to.

He attends a dayservice/workshop for the mentally disabled during the day and lives in a residential home. I used to work in both areas but now I am just with him during the day.

Any resources that you know of may be helpful. THANKS!!

Beth

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/7/2006 5:14 AM (GMT -7)   
I am not aware of any but have a look in resources on the side perhaps there is something there
I would be interested myself I am going to check into this as well and keep you posted
Lyn
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 One thing I know for sure is we have each other and in times of need no one could be better off IMO
 
 Never compromise your self nor your dignity...with that ...My God
 Family and Great Friends ........I have it All
 
        Lyn
 


BAK
Regular Member


Date Joined Jul 2005
Total Posts : 44
   Posted 12/7/2006 6:02 PM (GMT -7)   
Thank you, Lyn!

I looked at several things and got some good info but not specifically with Downs Syndrome, yet.

I will also post if I find anything. I did find info somewhere a while ago that said that if someone with Downs gets old enough that they will most likely get Alzheimer's. Since so many live much longer now then it seems to me that caregivers will need to have some more training pertaining to Downs and Alzheimer's.

Something fast and easy to read like "Caring for Alzheimer's for Dummies" might be nice ....since many caregivers don't really have much time to spend on reading. However, I get to read and surf the internet a lot on my 2nd job (security guard for a huge building when it is closed) so I'm looking for stuff online and books.

God bless you,

Beth

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/8/2006 7:35 AM (GMT -7)   
Still looking and trying to find something viable
I did have a patient in my home that had both but it was not really well known about back then ( 1998) and still isnt
I think as you do we need more research and info on this
God Bless You as well
Lyn
    Contribute today to support Healing Well Forums...Donate @
 
 One thing I know for sure is we have each other and in times of need no one could be better off IMO
 
 Never compromise your self nor your dignity...with that ...My God
 Family and Great Friends ........I have it All
 
        Lyn
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/8/2006 5:26 PM (GMT -7)   
bump
    Contribute today to support Healing Well Forums...Donate @
 
 One thing I know for sure is we have each other and in times of need no one could be better off IMO
 
 Never compromise your self nor your dignity...with that ...My God
 Family and Great Friends ........I have it All
 
        Lyn
 

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