Binswanger Disease

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pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 4/10/2007 11:08 AM (GMT -7)   
Does anyone on this site have a rare disorder called Binswanger Disease?  There is dimentia, except not exactly like Alzheimer's.  A lot of other symptoms occur w/Binswanger including problems w/cognitive thinking, unsteady gait, TIAs, heart problems, etc.  Thanks for any info.  I've researched the disease, but looking for someone else who has it.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/10/2007 11:20 AM (GMT -7)   
Hi Pegleg
No I have not come across anyone with this and even in all my yrs of Nursing
I will do some research and call a few places it might be called something else as well?? or no
I am glad you posted and I hope you will continue to post here as this does seem like it fits in with AD,Dementia and all the others under the umbrella
Take care
Do you have this or someone in famil??
Be well
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pegleg
Regular Member


Date Joined Oct 2006
Total Posts : 257
   Posted 4/10/2007 11:52 AM (GMT -7)   
I have Binswanger Disease.  Since it's rare, I've been through a battery of tests.  There is no cure and no tx except treating the symptoms.  The prognosis is not good.  I could not bring myself to tell my husband until this past Saturday.  He knew I had a neuro problem, that there is not cure and only tx symptoms, but he did not know that it will shorten my lifespan.  We've been through our house being severely damaged by Katrina, our only g'daughter diagnosed w/leukemia, me being out of work for almost a year due to this and our son is going off to college this summer.  I do not want my son to know at this point.  I've had a stent placed in the right coronary artery which has tremendously helped w/heart arrythmias (not nearly as many).  I'm on 3 BP meds, but still BP goes up & down for no reason.  I experience TIAs on a weekly basis (used to be daily).  I eat nutrious meals, weigh what I'm suppose to weigh, etc ... looking at me I look in perfect health.  I never know what each day holds ... some days are as "normal" for me as normal can get.  My left side is weak (left arm seems to be getting stronger ... I use a 6 lb weight), but left side is constantly numb and doesn't work like the right leg.  I've practiced for months, gave away all shoes w/heels, and have developed a walk that unless you stare at my feet, you'll never know. It's affected my cognitive thinking, gait, balance, etc... in other words, it stinks!  Just hoping to find someone out there who knows what I go through & wants to talk.  Thanks for listening! yeah

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/10/2007 12:12 PM (GMT -7)   
My heart goes out to you hun
You have been thru Hades and still going thru it
I dont know much about this other than your input but I do know I WILL be here for you to talk to about this and a soft pillow to land on

I also have a rare skin eating disease that is horrid and very painful but like I said very rare it too shall cut my lifespan and I have a teen daughter Cait whom I adore I cannot bring self to tell her this part of DD ....she has been thru enough with my crohns and another illness( severe) I have not brought to the boards ......it is scary when you have no one to talk to isnt it
Maybe just maybe fate has brought us here together to be one anothers shoulder..........

I am here for you you need to talk privately let me know k email me its under my name
My name is .LYN.........
Post again please
God Bless and Hold you thru all this
I am so sorry (((((((lots of Gentle ones)))))))
    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Co Mod A/P Forum
Moderator ....Alzheimers Forum 
 
Dx with Crohns ,pyoderma gangrenosum ,Anxiety and panic
 Way to many meds to put down ..........
 
Take that Lil step ..I will hold your hand and we will make big strides
 
                             
 
   LYN                               
                          
                                  


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/20/2007 4:05 PM (GMT -7)   
Pegleg
Would like to learn more from you about this Disease
    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Co Mod A/P Forum
Moderator ....Alzheimers Forum 
 
Dx with Crohns ,pyoderma gangrenosum ,Anxiety and panic
 Way to many meds to put down ..........
 
Take that Lil step ..I will hold your hand and we will make big strides
 
                             
 
   LYN                               
                          
                                  


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/18/2007 3:21 AM (GMT -7)   
Pegleg
How are you doing
Long time no see

LYN
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 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
 Your Mind is like a Parachute...Works better when IT IS Open
 
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