Is it possible to be misdiagnosed as having Alzheimer's?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 6/18/2007 10:55 AM (GMT -6)   
Hi.  My name is Kristin and I'm 38 years old and have Lupus of the central nervous system.  Two or so years ago,  I came down with severe dementia.  I couldn't even remember who my children were at that time and lost them for a year.  I think it was a year ago, I was diagnosed with Alzheimer's and given Aricept.  My memory has been getting better but I still get lost on my street sometimes and need to make notes of everything (and then loose the notes).  Still it has improved greatly as I can cook, work part-time (it is hard though), clean and care for my children.  I can make decisions now but still get real confused, frustrated and anxious if more than one thing needs my attention at any given time. 
 
My question is whether or not the doctors could have misdiagnosed me since I am much improved.  From what I read Alzheimer's doesn't start quickly then gets better years later.  This is confusing to me.  That and I am too young for the disease.
 
Was hoping maybe someone could shed some light on what may have happened to me and/or why I am getting better.  Should I get retested?
 
I've kind of ignored these questions for a long time because what was going on was scary.  I was told I did all these odd things like set the stove on fire, put mail, etc. in the refridgerator, kick people or hide when I was confused, etc.  I feel real bad about that and that they had to put up with me and I scared my kids.  I don't want it to happen again. So I am hoping to find a more logical answer for what is going on.
 
I would appreciate any thoughts you may have.  This is a very upsetting thing for me to talk about still.  Thanks - Kristin

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/18/2007 7:01 PM (GMT -6)   
Yes you should and NEED to be retested your feelings on this I believe is stright on

Keep us posted please
I am sorry for what you are going thru hun BUT like I said retest asap

God Bless you

LYN
** email me if you would like info at side **
    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Moderator .......A/P Forum
Moderator ....Alzheimers Forum 
 
DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
Take my Hand ...I will WALK with you
 
When the GOING gets TOUGH..The TOUGH get GOING 
 
 God Bless All
 
LYN    
                                  


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 6/19/2007 8:37 AM (GMT -6)   
Thanks Lyn, I will try to get that done. It did seem odd to me. Any ideas on what they should be looking for or the tests I could request? All I remember is a neuropsych test, but have been told I had other tests done at that time. Don't know what doctor I saw or what tests though. God bless you too - Kristin
  Best wishes,
 
  Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurgitation, dementia/Alheimer's (improving); GERD; blood clots in eyes/vision loss, narcolepsy, rheumatic arthritis and arthralgia, IBS, ovarian cysts, raynauds, EBV/CFS, mild inflammation of liver and spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin, just off Provigil 
Previous 1996-2006 - discoid rash, hemi-pelagia, migraines, hands/feet sensory loss, anmesia, PTSD/Depression, imbalance, weakness and muscle spasms, shooting pain, dizziness, fine motor movement problems, miscarried 2 children & severe complications w/2 I managed to get out, False positive syphilis, swollen glands, high fine speckled & homogeneous ANA; Positive IgM; constant staph and strept UTI infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, high Methylmalonic acid, high Epithelial cell counts, off and on low red/white or pallet counts, hypothyroidism/Hashimoto's disease, postural hypotension, dyspnea, periods of hypertension/hypotension, lipedemia, mouth/lip ulcers, pneumonia, skin tightness/hardenes, ligament conjectures, weird purple pimple rashes on legs, hypopigmentation (leopard spots) on legs and arms, vein swelling, abnormal menustration, uterian fibroids and some of the current problems.  Rx: usually Toridol, nerve blockers and antibiotics. 
 
  P.S. You asked....  Probably forgot a few.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/19/2007 9:09 AM (GMT -6)   
I will bring to the top Snowys retesting thread and that should help or I am sure she will post on this thread hun

No problem any time

Many ppl are being mis DX with AD and it is not that at all .......

God Bless

I wish you all the best
Keep coming back here k and get the support you DO need right now

LYN
    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Moderator .......A/P Forum
Moderator ....Alzheimers Forum 
 
DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
Take my Hand ...I will WALK with you
 
When the GOING gets TOUGH..The TOUGH get GOING 
 
 God Bless All
 
LYN    
                                  


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/22/2007 8:23 AM (GMT -6)   
Have you read Snowys thread on " retesting " yet Kris ??
How are you doing

LYN
    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Moderator .......A/P Forum
Moderator ....Alzheimers Forum 
 
DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
Take my Hand ...I will WALK with you
 
When the GOING gets TOUGH..The TOUGH get GOING 
 
 God Bless All
 
LYN    
                                  


beachcomber1
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/19/2008 10:56 PM (GMT -6)   
Hi Kristin, YES, CNS lupus definitely can cause everything you describe. I have watched my daughter, who has this type of lupus have significant cognitive decline and memory loss. She has problems with reading comprehension and doing any complex tasks, plus being forgetful and losing things. She has had lupus for over 20 years, since teen years and takes Cellcept, Plaquenil, and 5mg. prednisone. She just started taking Provigil, which has really helped her to focus, but now we find that the insurance is denying coverage (Medicare part D & medicaid).  I am trying to find if any of the different drug ins. plans will cover this important drug, as it really helps with the lupus fatigue and brain fog issues.  You should definitely be retested......it does not sound like alzheimers, but more like central nervous system lupus.
Good luck with your treatment and recovery.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/20/2008 3:06 PM (GMT -6)   
I am hoping you have been retested and find that it is NOT AD you are suffering from but it has to do with the other DD Lupus ............
I am also finding issues myself with fog and forgetting with my short term memory of which I never ever had a problem with before
'
Keep us posted please Kris
THanks BC for your invaluable input

LYN
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 


goldilocks57
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/23/2008 1:39 PM (GMT -6)   
Yes, it is absolutely possible to be misdiagnosed with early onset Alzheimers. Please see the note regarding Hashimoto's Encephalopathy (not to be confused with Hashimoto's thyroiditis.) Many neurologists don't even know what H.E. is, but they can certainly find out and test you for it.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/23/2008 5:05 PM (GMT -6)   
Welcome Goldilocks and you are so right about the H.E.
Thanks for your input and I do hope you will become active in this forum

Take care

LYN
Contribute Today ..Click On         
Moderator,Anxiety/Panic, Alzheimers,Co Mod for Crohns                     
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 27, 2016 12:16 PM (GMT -6)
There are a total of 2,694,758 posts in 297,498 threads.
View Active Threads


Who's Online
This forum has 152183 registered members. Please welcome our newest member, montimori.
392 Guest(s), 14 Registered Member(s) are currently online.  Details
Migz27, Michael_T, Katerina-b, Mrs. Brady, 1000Daisies, Fronton, pmm73, Excavator, Yankee, quincy, Ill42long, Traveler, Tigerwithlyme, jerryrosen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer