what can be done?

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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 8/3/2007 3:40 PM (GMT -7)   
Hello everyone,
 
I know I am new to this forum I am usually on other ones but it seems as though my grandmother has AD.  It is tough I hear to determine if it is infact AD or dementia especially if she wont take tests to rule out the other possibilities. 
 
My question is what can be done to help aid her in her condition?  At the nursing home they have her walking around a little, she still wont eat but has only been there about 24 hours now.  She doesnt want a phone due to it costing extra (it is $250 a day without a lot of things).  Her meds are purchased extra and if she wants tv she brings her own.  as for cable that too is extra.  They have never had cable but I wonder how many chanels she will be able to get insude the nursing home (it use to be a hospital).
 
My family informed them today that she does not eat anything with butter or cheese but this was after they served pasta with sauce and cheese for lunch.  We were glad to hear that she slept a couple of hours today which she has had trouble sleeping lately.  She has been on adivan at least 15 years and that wasnt helping she was still agitated.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


SnowyLynne
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Date Joined Apr 2004
Total Posts : 1539
   Posted 8/3/2007 4:21 PM (GMT -7)   
Ativan,or other benzo meds is detrimental to anyone with dementia.Aricept,Razadyne or Exelon are the prefered drugs to help with Dementia.Also Namenda which is taken with one of the other meds to help stablize the person.Antidepressants also are of a great help.Sometimes Antipshycotics are needed for extreme agitation,anger or combativeness............Hope this helps.
SnowyLynne


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 8/5/2007 9:07 AM (GMT -7)   
I am going to bring forth an old post on NH and what there ratings are as per care and all of it
That seems to be QUITE costly IMHO especially with no real added extras ya know

Snowy's input is right spot on .I know your Gradma is on Namenda for one and I do hope they take her off the ativan and give something else .........

Please stay with us D we are here to support you and help you thru all of this

You are so caring and loving
I am proud to know you are a great grandchild ....with Empathy
LYN
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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 8/5/2007 1:32 PM (GMT -7)   
When I was at the nursing home yesterday she kept having shaking fits. The nurse in the morning gave her a pill which neither my grandfather (papa) or grandmother (nan) knew what it was. The nurse was around later and my papa had her come to the sitting room we were in. She said it was trazadone (which both my mom and I have been on to aid in sleep), the nurse when speaking to my nan would notice the legs shaking and body shaking would stop. Therefore she knew it was not one of the seizures but knew it was anxiety. When I informed my mom that she has trazadone (2 per day prn) my mom wondered how many anti-depressants they had her on, they got her off paxil but she is on I think it is called remeron.

My nan also has an itchy rash on her back which my mom told the nurses about which thankfully they knew about however they are only puttingh lotion and powder on it. I wish they would give her something to stop the itch or figure out what kind of rash it is so it can be treated properly. My papa has never been much of a phone person so when he is concerned about my nan he calls my mom and puts my nan on the phone which my mom cannot even hear her speak she is being too quiet. The nurses could not even hear her when they spoke over the intercom at the hospital.

Yesterday she ate some breakfast, no lunch, half of an ice cream cup, and my mom said she ate about 1/3 of dinner which was hot dogs, beans and italian wedding soup so at least she is starting to eat there. What I also like about this place is that you get no urine odor while walking in (unless a patient has the odor on them which unfortunately happened she sat in the room with us for 2 hours and no nurses noticed the odor). My nan had her dentures in early in the day but is complaining about the inside of her mouth hurting therefore my papa took them out for her and cleaned them.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/6/2007 6:27 AM (GMT -7)   
I really do feel your concerns and I know this has to be hard on all especially your Nan
She loses all her independance and is now with ppl telling her what to do when and how

I hope this will all be calmly settled and she will be looked after appropriately

All you can do is keep bringing it to the attention of the head nurse or nurses on her floor ......constantly or as I have posted write it down and photocopy it all keep a file on what is going on
Did you look at the ratings in thread on NH and find the one your Nan is in??

Luvs
LYN

Prayers and thoughts always


    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  

Post Edited (Howlyncat) : 8/7/2007 5:28:46 AM (GMT-6)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/6/2007 7:38 AM (GMT -7)   
the thread olnly lists 2 Nh for my state and the one she is in is not listed. However I went to abuse.com and granted the info there is old but it is one of the better ones in the state. This NH was highly recomended my many including a family friend who is a nurse. I also found a sit that ranks NH and the top score a NH couls get was 88 and hers got 86 the survey was completed latst month.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/7/2007 4:36 AM (GMT -7)   
I am sooooo bleeding happy to hear that D

Good ones are hard to find I am glad yous did find a good one for her but with the love you's have it is no surprise

be well friend

LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  

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