well we figured out why my nana has been shaking lots the last couple of days

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/5/2007 6:32 PM (GMT -6)   
Hello everyone,
 
It really makes you wonder how much the nurses and doctors that prescribe Rxs in nursing homes read patients charts.  My nan has recently been Dx with AD and placed in the nursing home since thursday.  She has been taking adivan for 19 years and recently was taking 3 a day.  I know this is bad for people with AD but at the nursing home they just stopped giving it to her altogether.  After my mom talked to the head nurse she informed her about the adivan dose she had been on.  Luckily my papa had 1 with him, the nurse said give it to her but dont tell anyone I said that and she was going to get adivan approved for her tomorrow.  They should cut her down slowly not just stop after the lebgth of time and dosage she was on.  My papa doesnt understand that my mom is not going to go over there everyday until 7pm or so, she explained her job, family, house, dogs etc.  My nan understands that she cannot continue to go over there daily forever better than my papa.  She is going to continue to go for a little bit until she is a bit more settled.
 
Dinner time came and papa told my om okay you go help her and she said no you have to get use to it cause I wont be here everynight.  She told the nurses ground (not puree) food would be best at the moment since her bottom dentures she says are bothering the inside of her mouth.  She had complained of that in the past as well.
 
I just dont understand how they did not see that she had been on the amount of adivan and length of time.  Soon after she took it she relaxed and stopped shaking a bit.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/6/2007 8:13 AM (GMT -6)   
THis should all have been in her records on admittance and it will all have to be straightened out
Someone with all the knowledge of your G's meds foods likes dislikes ect HAS to do the paperwork with the nurses or sit at home and do one up hotocopy it and give to head nurse
NO you are totally right she was going thru withdrawal I would say .......from the ativan .......
I am praying that this will all work out for you dragon as it is not helping your CD either ......I have a cream I use for the sores I get from dentures and crohns in mouth clears them right up it is called
* Oracort* I am sure you have heard of it ....ask them for something for her
When is she expected to stay there full time

I am praying and thinking about you all

Luvs
N God Bless
LYN
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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/8/2007 11:15 AM (GMT -6)   
While my mom was at the NH Sunday or Monday she went in her room (my nan usually is in the sitting room most of the day watching TV with papa) and looked on her cork board.  Luckily she did because my papa didnt see that there was a paper about the monthly family meeting.  The meeting was today so my mom went to work early left for the meeting and is now back at work.
 
My mom wrote a letter of things that have been going on tremors, pain in her mouth etc.  She included her past meds, doses and length of years on them.  I guess in the hospital they took her off of her Paxil in about 3 days, she had been on that for about 8 years.  That could be contributing to the tremors she also talked about the adivan and they said you can stop that cold turkey...not her though since she had a nervous breakdown due to hypocondria after her mom passed in 1988.  She brought the oral pain to their attention and my nan while at home use to take about 1 hour for oral hygene at night and probably 15 mins in the am (denture cleaning was done at night)  She would brush her remaining teeth, floss use the water pic she had 1 case for the top dentures and 1 for the bottom ones.  We found out that no one has brushed her teeth (she has always needed sensodyne(sp?) toothpaste as well) eithr there nor in the hospital she has teeth only on the bottom. My mom use to be a dental assistant for years until arthritis was affecting her hands.  My mom went gently brushing and rinsing which my nan said hurt but my mom told her that is normal and will get better the more it is done.  The Physical therapist said thatr she does not have the tremors while walking.  My mother expressed concern learning that there are seizures that can occur and the patient is aware of them and since she is newly Dx with seizures she also brought that to their attention.
 
I forget many of the other things my mom informed me of even though it was just a short while ago...I am still on pain meds from my 3 intestinal surgeries that I have had this year.  They do have an account that family can put money in so that if the patient wants the hair cut or a manicure the family doesnt have to go down there each time.  The haircuts include washing cutting setting and styling for $ 18.00
 
This next part is not AD related just responding to Howlyncat
 
Lyn, as for my CD I started flaring about this time last year Dr kept saying you are having D and you typically have C when you flare so it has to be a virus, this kept on for months.  In january I had a CTE which confirmed the flare and he just wanted to keep meds as they were...every time I actually got off the pred 2 weeks later the symptoms were back.  In Feb I had emergency resection ileum perforated also a fistula from intestine to intestine was removed (I had no idea I had one), complications arose, toxic megacolon, abscesses etc, 2nd Sx was 1 week later had temp ostomy done dumb resident got feces in my incision claimed she didnt need to flush it...wound got infected got wound vac, got readmitted to the hospital 2 more times in March due to abscesses, while my Dr was on vacation his assoc had a drain placed next day no drainage so they pulled the drain.  Readmitted first time abscess was back, next day ct revealed it was gone went home a week later.  Readmitted 1 week later abscess was back, got drain placed the next day determined abscess made fistula to stoma and incision and was being sucked out by wound vac.  Abscess would not stop producing fluid once it got to be between 20 cc and 10 cc a day it no longer decreased in amount.  Reversal was done 4 months post op of ostomy due to abscess issues.  Five procedures were done in that Sx he had an assoc assist rather than an intern due to the complexity of it.  They removed more of both intestines, removed the abscess, reversed the ostomy, removed multiple adhesions, and had to scrape the internal abdominal walls due to inflamation and infection from the abscesses.  It has been 7 weeks since that surgery & have a localized infection in the incision but it is superficial so I just have to pack a corner of gauze in it so it wont heal the infection inside...and finally cutting down off of the Fentanyl patches, I have a high tolerance for pain meds and the Oxycontim was not staying in my system long enough to even begin to work (with ostomy I was still able to read the writing on the pill while in the bag), after reversal it was a hope that it would stay in longer but it just would come out when I would use the bathroom.
 
I had to call my GI this week my joints are swollen and still having abd discomfort he suggested waiting another week or 2 (he put me back on pentasa to try to delay more CD) before placing me back on entocort for a short burst and see if things subside on low residue again and due to all of the stress.  Hopefully it will stop on its own, my belly was good until I ate some raw veggies and an orange last week.  He also told me that my iron is low ( I have not been anemic in a long time but probably due to my Sx (plus I cannot eat too much red meat without it bothering my stomach...at least before Sx that happened) so I started back on iron pills yesterday he also said that there are some liver changes but he was not worried about that.  I wonder if that has to do with the pain meds that i have been on since February.  I just called my surgeon this week to mail me a script for the 25mcg patches so that I can switch to that this weekend I have 5 more of the 50mcg but my TDI runs out the end of this month and my husband wont let me drive while I have the pain meds in me.  Therefore to return to work I need to get off the pathces (and obviously have the ok from the Dr).  I have had the withdrawal when I went down to the 50 from 75mcg ( I started the fentanyl in mid april and jut placed my 5th 50mcg on last night ...they are used for 72 hrs).  I am to change the patch again friday and rather do it while I will have someone else at home whiel I have the withdrawals.  My nan's symptoms started getting worse about 1 week after I was discharged from the hospital...needless to say its been a heck of a year.  Both my mom and I are only children so I cant even imagine how she is staying held together, just lots of prayers and family support I guess....and some xanax now and again but not daily or even weekly at times.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 8/15/2007 8:19 AM (GMT -6)   
HI D
Sorry took so long to resp[ond have been moving self and daughter as well as my Dad to a Seniors bldg close to me ........

Hades you have been in and for sure my heart so goes out to you hun........

NO ativan can and should not be stopped cold turkey ...I tried that .it would be like you taking your xanax daily everyday for 2 or more yrs and then not at all ....going cold turkey.........withdrawel would happen as would all that goes with it confusion fevers D all of it .......I am so sorry she has been put thru this Hell .....same with Paxil it is not one drug either to stop cold you have to wean off it .......

I do bleeding hope they get all this straight for her and soon I might add it is only adding to the AD IMHO......

As for you OMG
I will never again c/o about my CD being bad ...I too have D every morning........have had since prior to DX and yet I dont have half the hell you do I am so sorry about all you are going thru .......
Know you CAN come here or email me ( have new addy) to talk about this and anything else you would like to talk about

I am HERE for you
Please know this and you and your MOm are doing a Fantastic job with your Grama....

Please keep me posted I am back now lol just got done moving a two bdrm to a 3 bdrm and setting it and dad's place all up in less than a week .......waiting for the flare to begin .........

Take care sweetie

Luvs
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  

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