learning to cope with my mothers AD

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yls87
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 2:00 AM (GMT -7)   
My mother was diagnosed with AD when i was 16 years old and in my junior year of high school. At that time she was only 44/45 years old. It's now 4 years and i'm on the verge of my 20th birthday and still haven't come to a way of how to deal with my mothers illness. She is currently 48 and lives with me in the house we've lived in for the past 9 years. Im her only child but all of our immediate family live close by and help if and when they can. The biggest help currently is my grandmother but i'm worried that with the stress that this situation is putting on her that she land herself in either the hospital or worse.
 
The problem that i have is that instead of facing it head on i like to turn away and i'm ashamed of that. i want to learn to (if there a way to learn) a way that helps me face the problem head on instead of running away like i have in the past. the other part thats hard for me is why now?  i could understand maybe if she was older but my mother is 48 years of age and is diagnosed with a disease that is most commonly found in people way older than her and because of this i was wondering is there was anyone else on this forum that had a loved one diagnosed as young as she is or if it actually a rare occurance.
 
thank you for your time and care,
    bek

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/6/2007 5:56 AM (GMT -7)   
Bek
welcome to HW
You have made me happy knowing that you want to educate yourself about this Horrid Disease
All thru the threads we have info please read the posts and information plus at the side is Resources to help you

Padraigs thread is the best for doing alot of education from a Husband and caregiver's point of view most of our members are or have posted in there

Please know we are here to help you anyway we can

Stay with us
I lost MOm a couple of yrs ago and now look after dad it is hard but rewarding too
I am glad you do have family that helps out

Be well and Thanks for being you

LYN

Also THANK you for the active INTEREST in AD.......more ppl neeed to educate selves on this DD
I am sorry about your mom hun

LYN
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minmark
Regular Member


Date Joined Mar 2007
Total Posts : 182
   Posted 9/6/2007 7:10 AM (GMT -7)   
Bek, although I don't have Alzheimer's Disease but like your mom I was diagnosed of Parkinson's Disease when I was only 37. Now I"m 54. Like alzheimer Parkinson is also incurable, a delibitating
disease, a horrible disease. In Alzheimer the memory was the affected one, in Parkinson, it's brain cells producing dopamine that control your movements that dies. But just the same, both are neuro-degenerative disease and incurable.

But what I have is courage to face the disease. Firstly you have to accept it. It's hard but this is the best way to cope with it. When you are in denial you will never learn how to live with it. But acceptance make it easier for you to make plans how to handle it. This way, there will be a slowness in the progression of the disease. You can make your plan in your life. You can make a program that will help you enjoy life and make the most of it everyday. One more thing, be positive. Don't be overwhelmed with the porblem. What your mom need now is love, compassion and understanding.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/6/2007 7:18 AM (GMT -7)   
Thanks MM great support and input
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          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  


yls87
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/6/2007 11:59 PM (GMT -7)   
thank you guys for you input it means alot. the biggest problem that i currently have is that is that, even though i have my family for support i feel like that, even though it does effect them, it doesn't effect them as much as it does me. My father left when i was 2 years old and i was raised solely by my mother and i didnt realize it then but i do now how much she's had to give up to give me the life she thought i deserved. The other thing is that i accept the fact that my mother has this disease. The problem is the fact that beside suporting her there is really nothing else i can do to help her and the fact is that after all she has done and given up for me that i can hardly do anything except sit and watch her fade away devastates me, yet i understand that all i can do i give her support and help her when she needs it.

minmark
Regular Member


Date Joined Mar 2007
Total Posts : 182
   Posted 9/7/2007 7:05 AM (GMT -7)   
You can do a lot of good things to your mother Bek. But like Lyn said you have to go to their world to understand her. You can slep a lot for the slowness pf the disease. You san have a memory enhacement with her. Read a story to her then after reading ask her questions about the story you read. From time to time you can ask the time, the month, the year that we have now or ask her what city and state do you live. These are simple questions to know her memory capabilities. You can sing with her, with her favorite singers and songs. You will be amazed, with their memory problems, they still know the lyrics of the songs. You can do gardening with her. JUst keep her active, mentally and physically, talk to her, so that she won't forget to speak and keep giving her small task that will keep her sense of independence. You can do arts and crafts together or play cards, bingo and a lot of activities that you can enjoy together. These will gonna help her a lot and you will develop a much closer relationship ever.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/8/2007 11:51 AM (GMT -7)   
I agree hun you and your support is NEEDED and it is the best you can do along with some things as MM posted

Make memories you will never reget those believe me
I draw on that and mom daily just for my own piece of mind
Mom did and gave alot for me like yours did

All the best hun
WE are here for you
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  

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