Clinical trial failure

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Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/9/2008 12:07 AM (GMT -7)   
I was on the waiting list for an online clinical trial of patients with A/P & Agoraphobia. there were limited positions in the study, run by a well known and respected hospital in the city. the idea was to take part in 10weeks of online CBT as well as other things. there were several rounds to go through before you could be accepted. i made it to the phone interview stage, which was the last step. the interviewer (pyschiatrist) called me and said i was a good candidate, then asked me what meds i was on. as soon as i mentioned Xanax, he said i was disqualified from the program due to Xanax's dependency issues.
 
he was very friendly and kind, i was just so bummed cos i felt that although ive lived with this since i was 10, im still none the wiser about what caused it, other than genetics. i was hoping to educate myself more about A/P as it has dominated my life for so long and monopolised my time and none of my pyschiatrists have ever been genuinely helpful. they are good at doling out meds, and then they ask me if i was abused as a child. no, i wasnt. i had a happy childhood. ive spent so long researching and reading/studying A/P, as i want to know as much about my condition as possible and be educated and informed.
 
i know Xanax can be dangerous, but it works for me and has done for several years. i was really disheartened by this.
 
Maz XX
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


Buddha443556
Regular Member


Date Joined Jun 2008
Total Posts : 293
   Posted 11/9/2008 1:42 AM (GMT -7)   
Hi Maz, sorry you didn't make it into the clinical trail. Don't let it get you down.

Did you find the clinical trail on Craigslist? I've see a number of different one on there just in the Tampa Bay area. Personally the trails and tribulation my own doctor are putting me through are enough for me. Sitting here still unable to sleep and twitching from the Zoloft I stopped a couple weeks ago. Your braver than me to be trying to sign up for a clinical trail.

Hang in there,
Buddha
You must do the things you think you cannot do. -- Eleanor Roosevelt


Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 11/9/2008 3:43 AM (GMT -7)   

Thanks Buddha,

I hope you start to feel better soon, nothing worse than coming off meds- what a strain on you body and mind. i just wanted to try the online trial as they sounded very switched on to the needs and worries of A/P patients and as my pyschiatrist wastes my time, i thought i may benefit from the program- it would have been hard though because they required you for minimum 40mins per day online doing 'homework' etc and cos im a high school teacher with Fibromyalgia, all i want to do when i get home is nothing.

 

I really hope you feel better soon, and thankyou for responding, you are a kind and empathetic. Im sending a prayer that you will sleep nice and deep and that the nerves will lay off.

Maz XX


'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
Chronic Fatigue, Fibromyalgia, TMJ disorder, Endometriosis, Polycystic Ovaries, Chronic ear/nose/throat infections, Panic Disorder, Reactive Arthritis, Agoraphobia, Migraines, GERD, Anaemia, Sinusitis, Chronically perforated eardrums, Pinched Nerves, IBS, Tachycardia, Allergies, Insomnia, Trichotilomania, Glandular Fever, Bursitis, Encapsulitis, Seasonal Mood  Disorder, Mild OCD.
Meds: Zoloft 150mg. Xanax 4mg. Nexium. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie. XX.
 
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/9/2008 5:44 PM (GMT -7)   

Maz, I am sorry you did not get into the clinical trial.  There is still the CBT free online therapy..........look above a references by Wendy.

You will see a link for CBT.

Take care and gentle hugs.
KItt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
& GERD  Forums
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percycat
Veteran Member


Date Joined Jul 2005
Total Posts : 1952
   Posted 11/10/2008 10:01 PM (GMT -7)   
Maz,

That sure is disappointing, when you were hopeful you'd learn some new and useful things. All you can do is keep your eyes open for another opportunity - maybe the free online CBT in the resources will be a better fit for you time and energy-wise.

percycat

Green Grove
Veteran Member


Date Joined Oct 2008
Total Posts : 2424
   Posted 11/11/2008 12:10 AM (GMT -7)   
Sorry Maz. . . I would like to do something like that myself, but they would say the same for me because of the Clonzepam :( I am working on some CBT stuff online, but I'm curious about the link posted by wendy that Kitt posted??? Keep your chin up Maz:)
Much Love, Hugs, Peace & Comfort :)
Sam
 
God Bless Each & Every One Of You :)

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