This is Kitt and I am with you on this one..........my sister was flown from North Dakota on 8/13/2008 and directly admitted to the U of MN Hospital's OB/GYN oncology unit.
Her PCA 125 test was 22,000............yes I did say 22,000. She has ovarian cancer and she was in so much pain and so ill by that night she was on a respirator.
After many , many tests and teams working with her she has completed her series of 7 chemos and her PCA 125 is down to 35. Although she spent much time in the hospital she is doing so much better she lives at the Cancer society Hope Lodge. Her daughter and I are her care givers so she has never spent one single night alone.
She reacted to many of the meds but they fine tuned her chemo to run over 24 hours, very slowly and she has been pretreated with meds to avoid the nausea etc. She also has to have a unit of blood plus some platelets so don't let those things scare you. It is common for cancer patients. They would take my sis to Interventional Radiology and we would go along. She has a nephrostomy tube in her right kidney as there is blockage around her ureter.
Her hair fell out so we snuck in a beautician to shave her whole head. I rub her bald head for luck. We laugh and tease and we discuss every aspect of her case.
We have had care conferences with her Doctors and we have asked for the best case scenarios verses the not so good outcomes.
My sister has such a will to live that I do believe she will make it.
We drag her out in the car to look at Christms lights etc. We go to nice restaurants and even when she says something looks good but she is not sure she can eat much of it..........we say just order it, we won't make you clean your plate.
She did have a down time when she wore only a hat on her bald head so my daughter, my niece and I took her wig shopping. We had so much fun making her try on all the wigs.............but she found one she really liked and did not have the money right then. My wonderful daughter and I bought it for her so she could go home for Thanksgiving with hair. She cried her eyes out as she felt human again.
When she first came to MN I thought we had a matter of weeks and here we are looking at surgery the first part of January.
Just be you but keep in perspective that this is your sister's life right now and find ways to keep her spirits up. Now is the time to share memories, make new memories and give to her what she needs to get through this, love.
And give yourself permission to cry, it helps and you feel better once the tears are out.
I have cried on my sister's shoulder and she told me if I did not cry she would wonder if I loved her lol.
Do ask the Doctor to premedicate your sister and hopefully she won't feel so bad. I have met many people at the Hope Lodge that are saying the meds now being used preprocedure are wonderful.
You will make it and your sister will too. Email me anytime..............I find when the cards are on the table I can be extremely strong.