I'm so confused, not sure if this fall in the guidelines or not..........

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hekofaride
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/17/2009 3:28 PM (GMT -7)   
I read the post from the Moderators, however; I'm not sure if my question or request for advice is allowed or not.  I'll post it anyway, and if there is a problem, I apologize.
 
I've been on Effexor for a few years, I'm wanting to get off of it because after years of it working, it seems to have pooped-out.  I'm getting terrible anxiety, strictly the physical kind.  Where the adrenalline just keeps attacking me from out of nowhere!  It's not situational anxiety, everything at home is wonderful, it's just become very physical.  At night, I also getting these surges of adrenalline when I am sleeping (I just read in Oprah's magazine that she suffered from that as well).
I'm going on 45, I know my hormones are somewhat out of sync, to what degree, I don't know.  I want to get off the Effexor so I can see if I still suffer these horrible anxiety symptoms while off the medication.  I want to know if it's possibly fluctuating hormones that are the culperit.  Perhaps I'll get off of it successfully, and not have any symptoms.  Perhaps I'll still have terrible symptoms and realise it's perimenopause (and if that's the case, I might look into other means of treating the anxiety).  I don't think I'll know for sure until this medication is out of my symptom.
Anyway, my doctor prescribed Klonopin to take so I can at least be somewhat comfortable while getting through this.  I only take a small amount twice a day.  HOWEVER, he wants to put me on Prozac as well to help me get off the Effexor.  Now, if I go on Prozac at the same time, how will I ever know if I'm okay w/o medication and if there's something else causing all this anxiety discomfort?  In other words, he wants me on the Effexor every other day while weaning-off, Prozac to take every day, and the Klonopin to get me through it all.  He said using Prozac is the best practice for this situation.
Am I just being a stubborn patient by wanting to get off the Effexor before starting anything else?  Or am I being incredibly unrealistic, and I should follow his method?  If it were you, would you not even question it and just do what the dr suggests?  I don't know what to do at this point, I can't even believe this is my life right now!
I'm going to see an Endocrinologist on the 30th, I want every single hormone checked.  For anxiety to feel completely physical and not emtional just has me wondering if it's due to hormone fluctuations.
 
I would be very grateful for any feedback.
Hugs,
Karen

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/17/2009 3:36 PM (GMT -7)   

.....HI there

I was the Mod I believe lol

NO you are not out of line hun with what you are asking

I did say we can and SHOULD still share our experiences

What the rule means is not to TELL someone to go off meds or act like you are a profesional on the forum .........

Now as for your ?

This is only my opinion but I have heard very different sides of the coin when coming off effexorand yes AD's can poop out on  you also from what I have read members going thru

My daghter is on Prozac and thank God she was in a bad way and hurting self a few mths back but she is doing awesome now

 

The benzo will help you and you may want to try the prozac something is defintely going on with you and the anxiety coming at you like that

**I am sure more will post there experiences with both mds and what they have done to get thru this

I am going to welcome you as I was away for a bit but I am glad you found us here at HW and sure hope you plan on staying a great caring family here

 

God Bless and keep us posted

 YOUR doc is the one that makes the decision with you ..........he is the pro......lol

LYN


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN

Post Edited (Howlyncat) : 1/17/2009 5:03:18 PM (GMT-7)


hekofaride
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/17/2009 3:50 PM (GMT -7)   
Hi Lyn,

THank you for your post. I'm so happy to hear that your daughter is doing so well:)

So in your opinion, you do feel I should take the Prozac while weaning-off the Effexor? Did your daughter suffer any side effects when she first went on it? I'm just so afraid to jump from one to another, however; this might be the right thing to do.

Hugs,
Karen

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/17/2009 3:59 PM (GMT -7)   
HUn
I honestly believe your doc has your best interest at heart
I know I would do it if it were I
I am on a different SSRI
I was not wanting to go on one for over 20 yrs but I finally caved after losing my dad ......Mom just 2 yrs prior and having had surgury on lung for cancer..........

Cait had a wee bit of the weepies and some tiredness when first going on the prozac but now she is on 150 mgs and I have a daughter back..........

If you trust your doc hun then do go for it
The decision has to be yours in the end
WE all will support you in any way we can
WELCOME to or "Family"
YOU are no longer alone sweety
My email is ther if you need it as are the other mods............
Be well and keep us posted
Wknds are slower so you might not get too many replys yet but dont give up hope k
Luvs
LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


Junebug05
Veteran Member


Date Joined Sep 2006
Total Posts : 717
   Posted 1/17/2009 4:12 PM (GMT -7)   

Hi there,

I don't want to offer an opinion on the medication as I have no experience with either of those meds.  I did want to say that, in my opinion, hormone fluctuations can definitely cause anxiety levels to rise.  I've been in peri-menopause for a while now and know that it has caused a huge difference in my anxiety.  I had a pretty good handle on things anxiety wise for a while and then the hormonal imbalances kicked in and wow, things went hairwire.  I'm learning to live with it, using xanax, and keeping close track of my cycle as there are certain times of the month that are much worse for me. 

I'm very interested to hear what the endocrinologist has to tell you, so please post when you have any information, I have been considering having my hormone levels checked as well.  Hope you find some answers and find some peace. 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/17/2009 5:07 PM (GMT -7)   
I did forget that part Junebug.......
I had a radical hysterectomy so I get out of most of the goodies of Menopause

Fluctioning hormones would also be something that could be the culprit
This is a great way of showing others opionions and I appreciate your post JB

PLZ do keep us posted
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/17/2009 5:49 PM (GMT -7)   

Hello Karen,

Bet you knew I would be along soon........... smhair

Effexor is an antidepressant in a group of drugs called selective serotonin and norepinephrine reuptake inhibitors (SSNRIs).

Effexor is used to treat major depressive disorder, anxiety, and panic disorder

Adverse effects that can arise from reducing the drug dose have been given a name: SSRI Withdrawal Syndrome or SSRI Discontinuation Syndrome. To avoid this syndrome, very gradual withdrawal-as little as 5% dosage decline per week-has been recommended; rarely are the drugs withdrawn at a rate of more than 20% per week. Unfortunately, many patients are hesitant to spend this much time withdrawing from the drug, and many physicians do not recommend such gradual dosage decline, believing that the majority of the patients will do well with relatively rapid withdrawal, so SSRI Withdrawal Syndrome can readily occur; some patients may experience the symptoms even with very gradual tapering of dosage.

As far as adding in the Prozac to cover your withdrawal sx sounds like a responsible plan by your physician.  Many people come off the drugs with little to no trouble so try not to be fearful.

Do you have to use the Prozac............you are your own best advocate and if you would rather just slow down your withdrawal schedule from Effexor then please do talk to your physician. My Pdoc tells me I am very insistant re what I want..........she is right to a point but it is my body and I have the right to say yes or no.

I am not a professional but I am weaning off Cymbalta and I was heavy into worrying about what might happen but I want to try going without any AD and see how I do.  My Pdoc disagrees with me but like you if I am not allowed to try it how will I ever know? I am weaning off with the guidance of my  Pdoc and we have a plan if I fail.  But I am going to give it my best shot.

I am willing to go back on med if I need to.  It has been 24 years of AD's for me and I want the chance to see if I will be okay on my own.

As far as the rules and guidelines of HealingWell, we always want members to know each person is different and telling someone what they should do is inappropriate. Sharing your own personal experiences is a completely different story.

Our goal as Lyn has stated is to keep everyone safe and let them know we are all members and peers here. 

On HealingWell we strive to seek a balance between alternative and traditional approaches. I feel strongly, both approaches have value for anyone seeking healing.

Wow, I got carried away.............I am so glad you are with us and post away.  Ask your questions and if we don't have an answer we will try to point you in the right direction.

Gentle Hugs to you and let me know how your weaning is going?

Gentle Hugs

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


hekofaride
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/18/2009 9:07 AM (GMT -7)   

Thank you eveyone for your support and encouragement.  I just finished my first week of every other day with Effexor, and second day on Prozac.  I have to say, the only side effect I'm feeling is very jittery and anxious.  I don't know if that's due to weaning-off the Effexor or getting started on the Prozac.  I have been told that Prozac causes for anxiety and jitters when first going on it.

Kitt, I was wondering how you are doing tapering off the Cymbalta.  Being that Effexor and Cymbalta are in the same family, I am very curious to follow your progress (if that's okay).  How long have you been on the Cymbalta for?  How is your dr tapering you off?  I have always been on the lowest dose of Effexor so I honestly didn't think it would be this difficult (though I'm sure my mind is making it that much worse!).  Had you ever heard of Prozac being used to withdraw from Effexor or Cymbalta?  My friend is weaning-off of Cymbalta as well, she's taking the Prozac route and is doing quite well.  That said, we are all different arent we?!

I'm sending you strong, good vibes that you will get through the process without little to no discomfort :)

Hugs,

Karen


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/18/2009 9:23 AM (GMT -7)   

Karen,

I have been on the Cymbalta for over a year and I did not feel it was helping me as well as it should so we have done many adjustments..............even went to the 120mg which was a disaster............. redface

Then I was at 90 mg and I still felt it was to strong and mostly I have no motivation so I sit and worry as we have tried a lot of meds and here I was 3 years later still hiding out and fearful of crashing.

So we dropped the Cymbalta to 60 mg and added Wellbutrin.........way to much drug.

Back to just Cymbalta.................I dropped down to 50 mg for 2 weeks,  then 40 mgs for 3 weeks over the holidays and 2 days ago I went to the 30 mgs..............

I can feel the headache but so far no brain zaps but the anxiety is up which happens when you wean off.

I have a wonderful supportive husband and my Big Sis here that have been supporting me. Also many other friends on the forum that know I am weaning so if I get wiggy they will know.............. smhair

I tired Prozac years ago and the side effects kept me from being able to do my daily activities.............so no I am not using the Prozac.  It all depends on which school of thought your Pdoc comes from and your right to make decisions.

I will keep you posted.

Good luck to you and again I am glad your part of the family here.

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


hekofaride
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/18/2009 9:58 AM (GMT -7)   
Kitt,

Do you ever just get so sick of this trial and error?! Everyone seems to respond so differently to different things, it's very frustrating!

It sounds like you are doing really well :) I haven't had any brainzaps as well, hmmm......Okay, then perhaps it's the weaning-off that is causing the extra anxiety and not the Prozac. The dr said Prozac is the choice AD when helping to come off a drug like Effexor or Cymbalta. This doesn't mean that it will be the one I stay on. He said Prozac is the easiest to wean-off of so if/WHEN we get off the Effexor and I want off the Prozac, it will be much easier. I hate this increaed anxiety! Now that you're on the 30mg, will you start taking it every other day? That's where I'm at. I can see how incredibly supportive everyone is on the board, it helps tremendously! My family is wonderful, however; my friends say the most insensitive things to me. The best one yet........my friend told e that her husband and brother-in-law tried to kill themselves when coming off of Effexor. Now come on, who says such horribly, insensitive things to someone who is fearful and struggling?!
ANyway, I'll keep you posted with my progress...........
Hugs,
Karen

Hibee
Forum Moderator


Date Joined Oct 2008
Total Posts : 6499
   Posted 1/18/2009 11:12 AM (GMT -7)   
Hi hekofaride

Welcome to healingwell. I take 150mg of Effexor daily and you are right every one does respond differently, I am yet to find medication that works for me and I have tried lots. In regards to coming off Effexor I have read that it can in some cases be difficult but I am not a doctor and do recommend you talk to your doctor and take there advise. As far as i know to reduce withdrawal affects it is best to come off Effexor very slowly, I know some people open the capsule and take a couple of the small balls out at a time and gradually reduce the dose this way. I think your doctor is good to put you on prozac and i would listen to his advice and this may work better for you and is worth a try.

I hope things work out for you and do trust your doctor.

Take Care

Ben

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/18/2009 11:51 AM (GMT -7)   
PPLE that tend not to understand or like to make you more afraid are those types of ppl IMHO

I am glad the family has come together to help you out
I knew Lil sis ( Kitt) was going thru this but I wanted her to explain it to you properly ..........

Keep us posted plz

LYN


 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN

Post Edited (Howlyncat) : 1/19/2009 5:04:21 PM (GMT-7)


hekofaride
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/19/2009 10:38 AM (GMT -7)   

Hi there,

I just wanted to give an update........I'm starting my second week of skipping a dose of Effexor every other day.  After this week, it will be every third day.  I did take the advice of my doctor and I'm using the Prozac to help me get through the withdrawal process.  I've taken it for three days now and I have to say, it is getting easier.  The only side effects that I have (from withdrawing from the Effexor) is a bit of nausea and lightheadedness, not a big deal at all!  I did do a lot of research on the internet and at thye book store, it looks like Prozac is a common practice when weaning-off an AD, especially Effexor.  I also understand that Prozac is the easiest AD to come off of, so if I don't feel I need it I won't be afraid to come off of it.

I can't re-call who, on this thread, said the are taking Effexor.  Anyway, I just want to tell you that for the several years I took it, it helped tremendously!!!  I was a new person when I was on it, unfortunately for me, it pooped-out (that doesn't happen to everyone).  I still think it's a very good medication, and there is certainly a need for it.

Kitt, I hope you're continuing to do well in coming off the Cymbalta.  A bit of a rollercoater ride, isnt it?!  Thanks to everyone for supporting this journey I'm on.

Hugs,

Karen


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/19/2009 10:44 AM (GMT -7)   

Karen

If all I had to do was come off of the Cymbalta..............life would be easier...........lol.  It is all the other demands on my life that raise the anxiety level and then I start to doubt my wisdom......but I am moving ahead...........slowly.

I am glad to hear you are doing well.  ((((((((HUGS))))))))))

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


Hibee
Forum Moderator


Date Joined Oct 2008
Total Posts : 6499
   Posted 1/19/2009 12:03 PM (GMT -7)   
Hi Karen

It was me who is taking Effexor at the moment and have not had much joy with it, this will be the 5th antidepressant i have tried and dont seem to have much luck with them. Im glad that Effexor did work for you and hope you find something else.

Ben

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/19/2009 5:05 PM (GMT -7)   
Karen
KUDOS for doing what you are doing
YOU are at least giving it a shot and remember we
are here for you and will help you thru

Keep us posted plz

Luvs
LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/22/2009 10:11 PM (GMT -7)   

Karen,

Thanks for you sweet note in the thread Lyn started for me. I have anxiety and depression and main g the decision to go off the Cymbalta was scary for me but I am working on it. 

I start to worry about the brain zaps etc and I have just started a new job, my sister is having major cancer surgery on 2/16 so I have to stay in the moment and  not lose it.

I just want to be off so many meds..............it has been 24 years of pills and  therapy and I am tired.  But I will go shopping tommorow and buy a new attitude............I am a veteran of this disorder.............I will make it through and so will you my new friend.

Hugs

Kitt


 

Kitt, Co-Moderator: Anxiety/Panic & Depression
&  Moderator GERD  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources

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