Involuntary twitching; muscle spasms; high startle response: help please!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 227
   Posted 4/9/2009 10:23 AM (GMT -7)   
I'm posting here b/c I'm not sure what this is. And it's probably the first thing my doc will say when I tell him.

I do have panic disorder, which has gotten much better in the last 10 years. I've had it for 19 years.
But the last 2 weeks, I feel like I have more involuntary movements/twitching...I know some of this is normal..like when your leg jerks out of nowhere; its not a huge motion but it moves. Like a few times a day (legs, arms hands).

I recently went to the doc for vertigo symptoms and he gave me a medication (meclizine) for 5 days. It may have helped a bit (the room doesn't spin) but I still feel a general dizziness (not completely "stable" when walking; head feels well, dizzyish). I don't know if that has anything to do w/the twitching.

Also, the littlest thing will startle me. As well as my ears are extremely sensitive (the ear sensitivity I've had for a while, though not to this degree; my ENT had said, before, that it's due to TMJ, so I've been wearing a store-bought night guard; I do clench my teeth at night. Another ENT said she thought it was due to my being always congested; my head does feel constantly full and my ears feel clogged).
I do feel my muscles tense but all this is involuntary. Like, when you're anxious, you tense up. But this happens when I'm not necessarily anxious. It's also somewhat difficult to do things; such as when I'm on the computer, for example, trying to click on things w/the mouse, it may take a few tries before I click where I want.

But as a result of the heightened startle response and the major ear sensitivity, I AM getting anxious. It's hard to sleep, or, fall asleep b/c of the heightened startle response and the major ear sensitivity. I took an extra xanax, which may have helped; its hard to tell since I'm on such a low dose and it may have lost its effect long ago.

I've been on xanax and prozac for more than 10 years.

I looked up my symptoms and got things called Jumping Frenchman of Maine (yes, this is a disorder) though it's not probable b/c its rare. Also, it states that the heightened startle response to sudden stimuli, when with me, its ANY stimuli, or more than just sudden things. Maybe a better way to say it is small things will startle me.

I also found hyperthyroid disorder and hyperacusis when I was looking up my symptoms but I only have about half the symptoms of hyperthyroid and with hyperacusis, it states just that every sound is basically the same volume...loud, which isn't really the case.

If you've read this far, thank you very much!
Anyone had these, or some of these symptoms and found out what it is?

babblin5
Regular Member


Date Joined Feb 2009
Total Posts : 70
   Posted 4/9/2009 12:33 PM (GMT -7)   
There's absolutely no reason why you can't see your doctor about this. It never hurts to get things checked out. I say this not because I think there's anything wrong with you, simple or serious, but because it helps to take control of the situation ( at least for me) and make sure that there isn't a medical cause. The problem with looking for specific conditions online or researching that type of information is that quite often, many of the symptoms we face, even something like getting startled, can be generally caused by such a wide variety of things that you aren't going to see the simple ones.

I can understand the anxiety... no one LIKES to be startled, with the exception of thrill-seekers ;)

Try and relax... I know it's easier said than done, but keep living your life and enjoy the good things that come with each day.
___________________________________________________________________________

"Come to the edge," he said.
"We're afraid!" they replied.
"Come to the edge," he said.

He pushed them, and they flew...


Raniah
Veteran Member


Date Joined Mar 2009
Total Posts : 1190
   Posted 4/9/2009 1:13 PM (GMT -7)   
Hi Phixgrrrl,

YES....I have a lot of the symptoms that you do. I have gone through tons of tests with the doc and have found nothing out of whack, and I also suffer from anxiety, so we are working on the assumption that this is anxiety/stress related since all tests have been fine. I have found that taking something for adrenal support (naturopathically - I have a lot of drug allergies) has helped to a good degree with the twitching and dizziness. I find that things are worse when I don't get enough sleep, and yes it's hard to get that sleep when I feel so hyper-sensitive and tightly strung. I was so surprised to see your post, as I have been trying to figure this out myself for a while now. I am sorry you are going through it, too, because I know very well how upsetting it can be.

I am hoping to be able to go for a massage sometime soon (when I can afford it). I feel like maybe that would help to relax my muscles....at least, that is where my instincts are pointing me. Like you, I have spent some time looking up my symptoms, but (as babblin5 said) the number of possible causes is so great, and I don't want to alarm myself by thinking the worst either. I almost never feel better after checking symptoms for anything online....!!!

Let me know how it goes. I do agree that you should check with the doc just to be sure you've ruled out some things. That is always a good thing to do, and it will help you to put some of your concerns aside. Good luck and keep us posted!

phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 227
   Posted 4/9/2009 1:34 PM (GMT -7)   
Thank you guys.
I am seeing the doctor Fri. The really bad thing is that I lost my job and I'm living on my savings. I don't even know if I can work with this crap going on.
And I just recently tried to take a nap, but, you know when you're nodding off, you sometimes jerk awake (I know this is normal)? Well it happened, but i wasn't to the point of nodding off. My head felt sort of faintish while I was closing my eyes. My hands got a bit cold, then warm. I took my temp and it was 98.9. But this was now, freaking me out. It was NOW that I started to get panicy. B/c I don't know what's going on. I tried a yoga move to help me relax before I laid down but I guess it didn't help. Could my meds not be working anymore? I've been on them a long time and have still had attacks but not as many. I'm guessing that's normal while even on meds, but thought I'd ask anyway.
I'm really scared now, just in a state of scared. I'm even scared to sleep now. Anyone, please help.
Oh, I'm also seeing my psych. on Mon. but I dont' know if I can wait that long. And she usually just either ups or downs my meds.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/9/2009 3:59 PM (GMT -7)   

Hello phixgrrrl

I am sorry to hear of the  involuntary movements/twitching etc. and I believe that you would do well by making an appointment with a neurologist to receive a good medical screening exam to rule out any physical problems that may be causing your sx.  Do not try to dx yourself as we always assume the most devestating diseases.

Also may I gentle suggest that you lose the Google feature for awhile as there is always some dreaded disease out there that we are sure must be the one.

I had severe vertigo a long time ago and could not stand up...........I talked to my Doctor by phone while lying on the living room floor.  I was sure I was having a stroke..........dizzy and room spinning.  Well she came up with a dx I never thought of much to my chagrin, a middle ear infection.  So please remember there are plenty of other reasons for your sx that can be easily dealt with.

Please know that I understand how scary it is to have sx but do try to stay in the moment and not moved into the panic mode.

Mecalzine!  A great med, you can buy it over the counter by the same name or it is also known as Antivert.  I use it for vertigo.  I have recently weaned of of SSNI drugs and I have some vertigo in the morning...........I take this med and it works well.  I have used it as necessary for many years.

Please remember I am not a professional.

Take care and know we are here for you.

Kitt

 


 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 227
   Posted 4/9/2009 10:58 PM (GMT -7)   
Just wanted to add/clarify, esp. for stkitt, that I was diagnosed with labyrinthitis when I was put on Mecalzine, b/c my doc couldn't reproduce the spinning while I was there and I guess my ears looked ok. (This was before the other symptoms I spoke of got bad.) So it was more a thing of 'well its not these things; it must be this' type of deal. Can a doc actually SEE an inner ear infection? I don't think you can see the labyrinth of the ear by just looking inside. And can Mecalzine cause excitability? The label said that was more in younger kids.
What does an appt with a neurologist run? I have no job and no insurance.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/10/2009 6:00 AM (GMT -7)   

Hi...have you been checked for Meniere's Disease?  It a very benign condition but very distressing and causes the whirling/spinning sensations that can last for an hour or days.  It is caused by a build up of fluid in the ear and is believed to be triggered by salt, MSG, nitrates and other things that make the body retain water.  I have had this disorder for thirty years.  My balance is permantley effected.  Sometimes it is triggered by visual stimuli...I looked through a kaliescope once and got it immediately.

I was put on anti-vert but was told I had to take it every day to prevent the attacks.  I was in a coma so I stopped it.  Now, when I feel it coming on I take a valium which is supposed to sedate those little hairs in the middle ear that effect balance.

As for your other symptoms..have those too.  TMJ...big time and ENT told me that can cause vertigo from clenching the teeth and forming somekind of vacuum in the ear canal.

I don't have health insurance either so I understand your concern about going to the doc.  Maybe they have a clinic where you live that will charge you on a sliding scale...most counties do.

Hope you feel better...

Donna

 

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/11/2009 6:46 AM (GMT -7)   

Good Morning,

Vertigo is an illusion of movement and is specific for a lesion in the inner ear, vestibular nuclei, or vestibular pathways. Momentary vertigo associated with rapid head movements typifies benign paroxysmal positional vertigo. Vertigo lasting for several hours tends to occur with inner ear disorders. Persistent vertigo of greater than three weeks' duration may be due to a problem within the central nervous system.

Otologic inspection may rule out disease of the external and middle ear. So yes you can dx an inner ear problem with an otoscope.

Diagnosing the cause of vertigo is often difficult and please remember I am not a professional. 
 
I have a chronic inner ear problem and had a  tube in my ear as an adult so I know how you feel when your extremely dizzy. 
 
Checking out Meniere's Disease is a great idea but I would  hope your physician would have thought of this.
 
I do not have any idea what the cost is for a neurologist or a Ear, Nose and Throat specialist. It would also depend on what the phyciains chose to do as far as testing.
I hope you get to the bottom of your problem.
Take care and know we are here for you. :-)
 
Peace,
Kitt
 
 
 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 227
   Posted 4/11/2009 3:09 PM (GMT -7)   
Thank you.
Now it seems, though, that what is bothering me most is this hypersensitivity to sound. Even this tapping of the keyboard is freaking me out a bit. When I hear noise I just feel stimulation, I guess I'd call it, everywhere...my spine, stomach, legs, etc.
Now i know you all said not to google this stuff but... I cannot help it. Doctors aren't telling me so... plus I don't think the worst.

I read online it can be caused by a lot of things, including magnesium deficiency (which I dont know if I have; I'll check my multivit), too much NutraSweet (don't think that's it), overloaded sensory system ("changes in the person's biochemistry, including increases in toxins produced by an overgrowth of yeast and fungus, and possibly exposures to other toxins (e.g., heavy metals, toxic chemicals")--that last one can be helped by "brushing therapy, joint compression and deep pressure", which I don't know what those are, and "link between hypersensitive hearing and the amygdala, located in the limbic system of the brain".
It also said stress can cause a biochemical change, but when the stress is removed, it should go back to normal. The only reason I'm stressed is DUE to the hypersensitivity!

I feel like I should just go into a sensory dep. tank.
Also the tenseness feeling of my muscles and involuntary movements are bothering me. The fact that it takes a little more effort to walk or use the mouse bothers me.

Could this all be anxiety? i did also read that coming OFF of benzodiazapines, like what I'm on (xanax) can cause all my symptoms; only problem w/that is I'm not coming off them. Plus I've been on a very low dose for a long time (a year maybe) of .125; just recently I've upped it to .25 b/c of all this. One day I even took .375, which is still very low.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 4/11/2009 9:52 PM (GMT -7)   
Some people have said that ginger can help with vertigo.  I have suffered from vertigo for three years now.  I have not found meclizine to help but ginger did help when I felt sick to my stomach.  You can thin slice it from the root itself and brew it like tea....that is my fave way.  You can also get ginger chews or ginger candy from many health food stores. 
 
When my vertigo is really bad (not able to walk, very sick to my stomach) meclizine plus valium will give me some relief but of course that is because I am asleep!  Good luck, I hope you are feeling better soon!
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/12/2009 5:21 AM (GMT -7)   

Good Morning,

Thanks for the tip on the ginger Gretchen.  I did not know that about ginger.  :-)

Sometimes Antivert does not work as well for some people as they may be underdosed. Vertigo (prophylaxis and treatment)—Oral, 25 to 100 mg a day as needed, in divided doses is the range however I know my OTC bottle comes in 12.5mg but I only use it when needed.  If using higher doses you should have your physician prescribing for you.  

Phixgrrrl, I sure would like you to start to feeling  better.

Gentle Hugs,

Kitt 

 

 


 

Kitt, Co-Moderator:
Anxiety/Panic 
Co-Moderator Depression
  Forums

*~*
http://www.healingwell.com/donate *~*
Not a mental health professional of any kind
Peace does not dwell in outward things, but within the soul
Clickable Link: Anxiety-Panic Resources


phixgrrrl
Regular Member


Date Joined May 2005
Total Posts : 227
   Posted 4/13/2009 1:39 PM (GMT -7)   
The vertigo is not so much a problem now; its the weird sensations in my spine, neck, and stomach mostly. Like any sound or even bright visual thing triggers it. It's very hard to describe. Its not pain; its like overstimulation of those areas. My stomach even spasms a bit. So things I usually use for "comfort" when I'm panicy (watching TV or even reading)...I can't b/c it involves sound and vision so I'm really scared. Even typing this makes me feel it. I can't stand it. I'm going to the psych. today again. Maybe I should post this problem as another thread since it's now different from my original problem?
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 6:41 AM (GMT -7)
There are a total of 2,735,267 posts in 301,288 threads.
View Active Threads


Who's Online
This forum has 151395 registered members. Please welcome our newest member, kaneben66.
287 Guest(s), 10 Registered Member(s) are currently online.  Details
rollout, paul hutchins, summer16, Loutucky, dobs1, Huddie, soynomore, haggis, kaneben66, Not-there-yet


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer