Nerves feel like they are on fire

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Bryce
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Date Joined Jun 2003
Total Posts : 59
   Posted 4/11/2010 10:27 PM (GMT -7)   
Hi. I've had depression a long time (diagnosed as bi-polar in 1977) and was on medicine for it from age 27 to a couple of weeks ago (now 60 yo). i'm off depression meds now, but every day I have long periods where it feels like my nerves are burning or on fire. It's hard to sit still when this is going on. I have to move. That's the best I know how to describe the feeling. I'm thinking it is probably anxiety although I'm not aware of thinking that is setting it off. anytime and everytime I try to read and concentrate I will trigger an episode. Also when I am tired it's very bothersome.'I'm taking diazepam 5mg daily to help and a mixture of kava kava. Both help a lot, but I don't want to stay on prescribed meds, especially a controlled substance. I've also noticed that when I'm not taking meds and feeling bad that listening to peaceful meditation music seems to help a little. Anybody have these types of physical feelings of their nerves burning? It's my head and torso where the sensations are. A lot of itching goes with it also.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/12/2010 3:27 AM (GMT -7)   
Hi there
i hv this constantly going on n hv been dx with Neuropathy
my legs n feet are worst
i also have fibro and that is something where nerves are on over ride always in all parts of body
i tk lyrica n it helps
so sorry you are going thru this
lyn

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 4/12/2010 6:19 AM (GMT -7)   
You mentioned going off depression meds a few weeks ago...if you didn't taper slowly, maybe it's somekind of withdrawal symptom?  Just a thought...
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/12/2010 10:55 AM (GMT -7)   
Hi Bryce,


I was wondering the same as Donna, how fast did you come off the AD? Some of these medications need to be weaned slowly. If the Valium is working for you right now, I would say use it until things settle down and then you can back off of how much you use.



Blessings,



Kitt

Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 4/14/2010 4:37 AM (GMT -7)   
Hoping you come back to read n get support

lyn

Bryce
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Date Joined Jun 2003
Total Posts : 59
   Posted 4/14/2010 4:49 AM (GMT -7)   
Thanks for your replies. I was on 6.25mg of luidomil for weeks before going off of it. That's not much med. It's 1/4 of a 25mg pill which is the smallest pill made, as far as I know. IT could be withdrawal. So, if it is, will it eventually stop? And what about anxiety? My pdoc thinks it is related to anxiety, but I don't see the connection. I have been through a home course in CBT which brought me out of a deep hole of depression. As a result of the CBT my meds dropped from 200mg total a day to gradually down to 6.25mg a day, and now nothing. I understand thinking can create bad brain chemistry which can cause depression and anxiety and physical symptoms. But Im not aware of thinking that is causing this. I have nothing to be anxious about. I just don't get it.

I've looked at fibromyalgia but it's very muddy water as to what the symptoms are. I'll look at neuropathy. I am a recovered alcoholic for 24 years now without a slip. What is going on currently is making me want to drink to stop the suffering. It is bad. Thanks for the replies.

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 4/14/2010 5:05 AM (GMT -7)   
Neuropathy appears to be related to hands and feet. I don't have tingling and it's my torso and head rather than hands and feet, although my hands and feet to itch when this flares up. What is interesing is what is listed as possible causes of neuropathy: Viatmin B deficiency and infections. I had a blood test about  a year ago and was found to have a Vit B-12 deficiency. I take shots for it now, but haven't been tested to see if it's in a normal level now. Also, when this burning started was right after a 6 week bout with a bad cold which made me close to non-functional. I've never had a cold make me feel so bad. Shortly after that I came down with the cold again for another 3 weeks.
 
Another cause is hypothryoidism. I've been diagnosed as borderline hypo when I was in my 20s, but not with a blood test, just testing my reflexes. My Dad had to take thryroid hormone in his later years.

Post Edited (Bryce) : 4/14/2010 6:11:26 AM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/14/2010 5:08 AM (GMT -7)   
BRUCE as a sister in recovery n sober since 1979 STOP THAT STINKIN THINKIN PLEASE
there must be something n its funny that u mention this aspect too
i think neuropathy is a very likly cause but i am not your doc
however i am here to talk to you
dont slide
i hv gone thru 2wice this past 2 mths where i nearly took a drink
but i didnt
i got out THE BOOK
read your steps know you have support here n if you start thinking you are going to take that drink
FIND A MEETING
CALL A SOBER FRIEND
KNOW ITS NOT THE ANSWER
PLZ PLZ do not drink

ONE DAY AT A TIME
My name is lyn n i am sober alcoholic

LYN

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 4/14/2010 5:25 AM (GMT -7)   
I realize it isn't an answer, but I haven't functioned well in 13 years and don't see an end to this crap. I've held out hope for that long that things would change. I've done all I know to do, reduced cholesterol from 200 to 162 by changing my eating habits, lost weight to get rid of high blood pressure, done CBT to improve my depression, tried and tried and tried and tried to get to the point where I can work again. STill not able to work. Now this. I could use a break. I am mentally and emotionally worn down. I'm sure I won't drink, but darn it I don't see the point of continuing to believe it's going to get better. I don't have any friends, not good enough for friends. Totally worthless as a husband. Sorry guys but I need a break, something to give me some hope it will get better and I'm not seeing it. My quality of life is not worth anything. I'm simply trying to do detective work to try and figure out what this burning is. My doc is not going to figure it out for sure. Looks at me through a filtered lens, i.e. depression/anxiety equals defective in my mind. Just a reject.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/14/2010 5:50 AM (GMT -7)   
Bruce..i can only say i hv been where you are the pit of despair
losing both parents in 2 yrs cheating spouse relationship ends
i was on life support from grand mal seizure n putting head thru glass coffee table

i sit here alone n think some days how the hades does this work
when am i gonna get a friggin break n be happy totally free of this demon n then i will do my cbt come here and their is always someone elses problems or life i can try to help out with n my mind goes off the whys n what ifs
i knew i was in trouble when the old
go on have just one popped into my head again but i beat it down
nothing is totally hopeless and yes you do hv friends n support here

plz know you are being heard
you are not worthless
keep talking we are listening
sis in sobriety
huggs
lyn

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/19/2010 8:16 PM (GMT -7)   
Plz let us know how you are ding

lyn

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 4/24/2010 1:58 AM (GMT -7)   
It got bad enough on the 18th that I went to the ER. I was given a shot of Ativan and an RX for Ativan 2mg q8h. It is working a lot better than the Valium was. Some discomfort at times, but feeling a lot better and have renewed hope. I did drink about 4 16oz Buds over a couple of days simply to take away the pain while the Ativan was kicking in. I don't need the alcohol now and don't want it, but it did help a lot. That's the first time I"ve had any alcohol in 24 years. I didn't want to drink, I just wanted to stop the pain. That is over now.

What I hope is this is withdrawal from coming off the luidomil and that over time my nerves will heal and I'll no longer need the Ativan. Sleep is much better, but I don't want to stay on this long term. I want to be med free. I'm hoping over the next 2 to 4 months that my dosage will be reduced because it will be making me sleepy and tired because I won't need as much of it due to nerves healing as the withdrawal becomes less.

The burning was causing me to overeat simply as a way to comfort my pain. I had lost 20 pounds but when the burning kicked in, overeating became a regular thing. Over 3.5 months I gained about 5 or 6 pounds. Thus far with the Ativan, I have regained control to not overeat. I burn on average 1950 calories a day without exercise. Yesterday I only consumed 1200 calories without starving myself or feeling deprived. Today is similar, slightly less than 1200 calories again with only 2 hours to go before the next 24 hour period begins. And I did 3 miles today, so my calorie deficit will be about 1,000 calories today, which is fantastic. I'd like to lose another 15 pounds. That would put me at my ideal weight whch I was at in high school. I'm lifting weights, plus jogging on a regularly basis and the physique is looking better and better. This does wonders for my self esteem and makes me feel very good. The trip to the ER turned out to be a blessing in disguise.

Post Edited (Bryce) : 4/24/2010 3:13:03 AM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/24/2010 5:47 AM (GMT -7)   
My thoughts n prayers are with you
im so sorry you went ahead n drank its just another hurdle n crutch as you know
i pray you dont hv more
sis in sobriety
lyn

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 4/24/2010 3:35 PM (GMT -7)   
I don't see having one beer a day over 3 days to relieve the burning sensation as a problem. I see it no different than taking ativan or kava kava. I'm not drinking to get high or loaded, or to escape emotional problems, but to relieve physical suffering. When a person is operated on, such as my Mother's hip replacement and my brother's recent bypass surgery, they give Morphine for the relief of pain. Using your logic, with all due respect to you, Lyn, I'm so sorry they went ahead and "used" an addictive agent to relieve their suffering. It's just another hurdle n crutch as you know. I honestly think your thinking on this is flawed and faulty because you believe I'm going back to alcohol because I want to "use" and be self-destructive again. That is not the case. That is not the reason for drinking the bud. It was in moderation, only as much as needed to relieve physical pain. With all due respect to you, I don't agree with you or see it the way you do.

Without this physical burning sensation, the thought of drinking never ever enters my mind. I mean never. After the first couple of years of being sober starting in 1986, drinking and the thought of drinking ceased to be a temptation. I have never had a desire to drink again for the sake of getting high after that. I do have a desire to smoke at times because I enjoy the taste, but I don't, and of course the desire for sex is a constant because of testosterone in my body. But I learned my lesson on alcohol. With all the emotional problems I've had with depression and failure with work in my life and failure in human relationships, after 1986 and breaking from drinking, drinking was never ever a temptation after that. I always viewed it as being self destructive. So, pray for this sinner if you want, lol, all I can tell you is it ain't what you think it is, and time will prove that out. I know who I am and what my problems are. Drinking is not one of them. I am not offended in what you have said, I simply have a different perspective on why I drank the alcohol. It was not to be self-destructive or escape a problem that could be solved in some other more appropriate matter.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/28/2010 3:38 AM (GMT -7)   
LOL
you are very frank i love it
i am glad its not an issue for you i guess the old 12 step programming kicked in there..my apologies
maybe on my part i will hv to confess that during the period of your posting i was really fighting the booze urge n i am
n alcoholic plain n simple n wow i was shaking it rough at that time but its a new day n im good im here lol..

funny you mention morphine n the likes i was on them n i now dont touch anything stronger than tylenol....i came off t4s as well
my nerves are constantly setting off like shooting spurs in my feet head hands n torso
i am deaf but the nerves in ears are still connected so i hear this constant noise like or akin to the static on tv channel full blast its driving me battier than i already am if possible
i find the ativan work better for my neuropathy but i tk it and valium so the noise in head is bearabl
my lil bro gets a real kick outta taking me out i hv no concept..honestly..of how loud im talking n sometimes thoughts just erupt out my mouth and at the worst times possible but he thinks its a kicker ..i get so dang frustrated by it
even with my daughter she is 17 n at that stage where SHE knows it all ..hmmmmm
i hv not been able to hv convo with her because she says im yelling
im not unless i am really ticked then she hears it..

mine started with very serious injury ..seizure n life support ..i awoke to no hearing i had lost some prior to that from iv antibiotics for the pg
i was in w/c for the longest time but hv gotten self to walking n doing things now...i take lyrica for it but its expensive as hades
i hv just started coming back round from a flu bug but not totally there yet n i hv to say it was one of worst flu bugs to hit
im totally opposite of you i dont bother eating n that has me at about 102 lbs

then i will hv days where if it aint nailed down i will eat it as long as its not raw lol
so much going on so much confusion i hear ya n i am frustrated too ...

just know im clear on your drinking kk ..
wont preclude any more i promise im glad you set me straight on it

stay with us n keep us posted on how you are doing
tk care
lyn

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 5/7/2010 8:22 PM (GMT -7)   
The Ativan is not working as well as it was when it was first started. Sometimes after taking it, within a couple of hours the burning sensation is back and I'm walking, crawling, jumping, making noises (from the pain) and just generally miserable and can't sit still or lie down for the next 4 or 5 hours. It wears me down mentally and emotionally. I'm still drinking a bud or 2 or 3 sometimes during these episodes to see if it will help. Sometimes it does, sometimes it doesn't seem to. I have nothing else to take to try and stop the pain.

My P-doc thinks it may be withdrawal from the Luidomil and has ordered me to go back on the Luidomil daily for a while. I've been taking it now for 6 days and still no relief. He no longer thinks this is anxiety (burning sensation) and I have an appointment with a neurologist in a month. But nothing will stop the daily pain and I feel like I will go nuts if I can't get something to stop the daily suffering from the physical pain. I hope I can last until someone can figure out why the pain. At times I want to end my life due to the severity of the pain, and my doc is aware of that. I am wearing very thin. I want the pain to stop.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/7/2010 9:11 PM (GMT -7)   
i can honestly say i understand i really do
im isolated n deaf this is my only way of communicating now
its frustrating as all get out
ty for posting n i hope you know we are always here for you
huggs
lyn

Old Hippy
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 5/8/2010 4:17 PM (GMT -7)   
Bryce/Lyn--I can relate to the frustration both of you are feeling with your individual challenges. I too, have to deal with chronic pain issues, and am a recovering person myself... I'm at the point, where I have become dependent on pain meds, and I'm not proud of it. On the other hand, considering where I have come from--I feel like I am managing the pain the best way I can and I am not using the meds to get high. I know this is not condoned in the recovery circles, but, frankly, I don't give a d... I wish I could deal with the neuropathy without a med, but I can't ... I'm told it will get progressively worse with time, and whatever gets me through the day; as long as I am taking the minimum amt, I will continue to take it. So, I guess<admittedly> I am< still> in the process of recovering--takes a strong person to kick all meds, and those of you who are doing so-you have my deepest respect. Don't stop Bryce, until you find out what the problem is, glad that you are seeing a neurologist. Lyn, I think you are so brave in dealing with the deafness. If I had to deal with that and my daughter at the same time--I would have gone totally bonkers! She was diagnosed bipolar and me, being a chronic depressive with major anxiety issues --you could say there were fireworks & miscommunication aplenty... Anyway, take care all...

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/8/2010 4:46 PM (GMT -7)   
Old Hippy
ty i sure do apprecite your words
yes it is pure hades cait n i were so bleeding close n then i lost both parents n hubby left for another woman got sick blew few gaskets but im a survivor i will make it
i have always had empathy for deaf ppl now i live the life n it is a scary lonely frustrating and isolating life
which in turn causes me more anxiety with daughter now n her getting frustrated as we always talked about everything at nigh we would snuggle up n just yak
i lost so much due to all the losses n illnesses in my life
the hardest part is just needing to hear her voice once more
i dang well wish i could but we all know thats not possible
i was very outgoing n on the go all the time im now becoming a shell of someone i once was
im fighting back im angry that this antibiotic took my hearing n i want answers
i feel so much better here amongst my hw family/ friends i hv made thru the yrs
i know my daughter is hurting she too suffered the loss of her momma at a point she needed me
im trying to mend the fences but its a hard task to handle myself
coming here i get some answers n they help
my nueropathy literally drives me insane n i can almost bet its what bryce has ..but thats jmho
again ty n tk care i see you r an active supporter on forums n i ty for that
hw is about caring sharing n trying to help
glad you r part of family
huggs
lyn

Bryce
Regular Member


Date Joined Jun 2003
Total Posts : 59
   Posted 5/11/2010 2:33 PM (GMT -7)   
Well, the luidomil has finally stopped all the burning sensation. No more pain, in combo with taking the ativan. So, the doc and I believe the problem was withdrawal effect from going completely off of the luidomil. No neuropathy in his opinion, and mine. Also, no more need to drink alcohol and I haven't in 3 days, even though I still have 9 left in the fridge. Will probably get thrown out eventually. Where do I go from here? I don't know. Will try to go of of luidomil again gradually, very gradually, as my system permits. Thanks all for your comments. They are appreciated.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/12/2010 12:37 PM (GMT -7)   
Glad you got answers n are feeling better
keep coming here
you hv friends here and ppl that empathize
tk care you
huggs
lyn

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/13/2010 3:56 PM (GMT -7)   
Just wondering how you r doing Bryce
huggs
lyn
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