I am new here, and also have crohns disease

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flash123
Regular Member


Date Joined May 2007
Total Posts : 34
   Posted 5/15/2007 6:19 AM (GMT -7)   
Hi All
 
Since my son was born 21 years ago, with severe disabilities, i have had much anxiety and panic attacks and constantly feel as if a black cloud hangs over me. 
 
For many years, i have been told by friends and family that i am the life and soul of the party and what a wonderful person i am.  Inside i feel like i am going mad.  I have weeks where i feel ok then wham, it hits me like a hammer and i feel afraid, i hate myself and i find it difficult to get out of bed and go to work.
 
I have recently been told i have an inflammatory bowel disease, and this has made matters worse.  It doesnt seem to matter what doctors tell me, or my family, i just can't stop feeling negative about myself. 
 
My son doesn't live with me now, because i physically am unable to lift him and i visit him once a week at a day centre that he loves attending.  He goes home to his dad at night.  My daughter, who i had a wonderful relationship with, now very rarely contacts me because she feels i should be looking after my son.
 
I am in a very stressful sales job and find i cannot bear the thought of going to work.  I keep telling myself that everything would be ok if ihad enough money to pay off the mortgage so i could be with my son more often and didnt have to go to work.
 
My partner of 3 years is an amazing man, and my saving grace.  He never gets upset with me, always supports and loves me and ensures that i come first.  So why do i always feel anxious when i am around people other than my family, or when i am at work?  Why do i always feel as if i am a useless person?  I have worked most of my adult life and now i feel too anxious and panicky to live normally.
 
I have had anti depressants in the past and was off work for 6 months.  I am off work at the moment because my new drugs for the bowel disease are causing headaches, and dizziness so the doc signed me off for a week.
 
I dont feel i can go back next week.  Am i abnormal?  I think about this problem all the time, every day. 
 
Julie

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/15/2007 6:27 AM (GMT -7)   
Hi Flash
I seem to recall you posts from before
DO you have crohns or have they not DX that yet
I ask this as I do have this DD and it is rough on the nerves and whole being at times but you have said IBD not crohns
Big Difference so I was wondering

Most pl with any chronic illness may experience a/p as you know and depression

Stay with us and remember you are not alone


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Dx with Crohns ,pyoderma gangrenosum ,Anxiety and panic
 Way to many meds to put down ..........
 
Take that Lil step ..I will hold your hand and we will make big strides
 
                             
 
   LYN                               
                          
                                  


flash123
Regular Member


Date Joined May 2007
Total Posts : 34
   Posted 5/15/2007 6:33 AM (GMT -7)   
Hi there
 
Yes it has been diagnosed as CD.  Thanks for the message.
 
Julei

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2007 7:41 AM (GMT -7)   
Actually there isn't a difference between IBD and Crohn's. Crohn's Disease and Ulcerative Colitis are collectively known as Inflammatory Bowel Disease.


Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia from long term prednisone use

Currently taking 10mg of prednisone (down from 40! Bleeding has returned but I'm sticking it out... I want off!!)
Waiting to start back on Azathioprine...

Post Edited (hardspacecore) : 5/15/2007 4:12:29 PM (GMT-6)


flash123
Regular Member


Date Joined May 2007
Total Posts : 34
   Posted 5/15/2007 9:26 AM (GMT -7)   
Hi Hardspacecore

There is a difference between Ulcerative Colitis and Crohns. Ulcerative Colitis is restricted normally to the lower part of the bowel and colon whereas Crohns is much worse and it is not irritable bowel disease it is inflammatory bowel disease. Irritable Bowels are not inflammatory bowels int he whole.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2007 10:21 AM (GMT -7)   
Oh I know there's a difference between Colitis and Crohn's, as I have colitis, but they are still both known as IBD. She was saying there was a difference between IBD and Crohn's, but there is not.
 
I did mean to say Inflammatory Bowel Disease instead of irritable in my original comment though >_<
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia from long term prednisone use

Currently taking 10mg of prednisone (down from 40! Bleeding has returned but I'm sticking it out... I want off!!)
Waiting to start back on Azathioprine...


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/16/2007 7:12 AM (GMT -7)   
HI there
"She" is LYN........LOL
I have crohns and I do believe there is a difference between the 2 ..........UC and Crohns
My mistake in the other post sorry
This is my opinion only .......

**I use to get a slap on fingers calling anyone "SHE" from my Grammy"

Hard habit to break tongue


    Contribute today to support Healing Well Forums...Donate @
 
Co Mod ..Crohns Forum
Co Mod A/P Forum
Moderator ....Alzheimers Forum 
 
Dx with Crohns ,pyoderma gangrenosum ,Anxiety and panic
 Way to many meds to put down ..........
 
Take that Lil step ..I will hold your hand and we will make big strides
 
                             
 
   LYN                               
                          
                                  

Post Edited (Howlyncat) : 5/16/2007 8:18:41 AM (GMT-6)


flash123
Regular Member


Date Joined May 2007
Total Posts : 34
   Posted 5/17/2007 2:29 AM (GMT -7)   
Hi Hippy Girl

Thanks for your comments, i really appreciate them. I used to be the most outgoing person i know and had so much energy for life. I dont feel i have it anymore and i am quite happy when i am at home and pottering about but as soon as work subjects come up i lose control of myself.

I am looking for a less stressful job, but finding one at 46 that pays the same money is hard here in England. My employers also let me have a friday afternoon off, if i work through my lunches, so that i can see my son at the day centre.

I think i am just so tired and stressed out by life in general. The whole pace of life and wanting to shut myself away is the hardest part. My doctor is reluctant to put me on any more medication because the medication i am taking for the Bowel Disease is only just getting in to my system. I can't afford to go on disability because i have a mortgage to pay and my partners money would not cover the mortgage. Ah well, i will carry on i guess and hope that something comes up. xx
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