I decided to post about my Mom...VERY long.

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TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 7/23/2007 1:00 PM (GMT -6)   
After seeing that you guys may not know the entire story of my Mom, I decided to give you a short version of the long story of hell that I and my Mother, along with my family have been living for the past almost year.  It is an incedibly long story, but I will shorten it as much as possible.
 
My Mom is 56 years old...wait no, 57 I think.  Ha ha.  Anyway, she has Chrons Disease, and has had it since she was 16 years old.  Over the years, her chrons has flared up on occasion, sometimes putting her in the hospital, due to dehydration and malnutrition, due to the diahrea, and such.  Last September, she was down, and had been sick on and off for a couple weeks.  We took her to the doctor, and he said he wanted her in the hospital for observation.  We took her up to the hospital, and she settled in.  Within 2 days, she was on life support, and we thought she was going to die.  She underwent several surgeries, and 3 different times, they called us and told us to come to the hospital because they thought she would be dying anytime.  She always hung on. 
 
She was losing a lot of weight, and was down to like 76 pounds, so they put a feeding tube in her stomach.  It got infected, and almost killed her.  4 in the morning one day, we had to rush to the hopstial, they were performing emergency surgery on her.  The doctors felt she would die in surgery, but again, she made it! 
 
She spent many months in the hospital, then many months in rehab, then, she came home.  She was bed ridden when she came home, but we managed.  My Dad works night, so I stayed with her for about a week.   That was hell on me.  She needed constant care.  I have worked in nursing homes, so I knew what I was doing, but it is so much different when it's your own Mom. 
 
Anyway, she recovered, over time and with the help of much physical therapy.  She is constantly getting blood drawn to keep check on her potassium and other levels that we have been having problems with, and over the past few weeks, she has really been getting better.  Gaining weight, walking, and just becoming her old self again.
 
Well, remember that emergency surgery for the feeding tube that was in her stomach?  That left an open wound on her stomach, the size of a softball.  We keep it covered, and a nurse comes out and re dresses it weekely, and it was really starting to look better.  Well, over teh weekend, the darn thing decided it wanted to bust open.  Sunday morning, called 911.  They took her, hospital fixed her up, sent her home.  Sunday evening, same thing, only wose, called 911, took  her again.  THEN, here is a twist no one knows...Around noon TODAY, (Monday) Mom called me, bleeding out again, she had just called 911, and she wanted me to come get her dog...she just got a brand new 8 week old puppy, and Mom didn't want her to be home alone...LOL.  So, I went there, and sure enough, all the blood, AGAIN.
 
The ER keeps saying that as long as they can stop the bleeding, they can't keep her overnight.  So, today, Dad called the family doctor after 911, and family doctor said to take her to this other hospital and he would meet them up  there, and she WILL BE admitted, and they WILL fix this problem.  He was trying to avoid surgery, because she is still too weak to do the surgery, but now, he feels he is out of options, and he will have to go ahead with the surgery.  She is losing a lot of blood, and over the past year, she has already had like 20 blood transfusions. 
 
This has been a bad situation.  Now, maybe you will all see why my anxiety had such a flare up a few months back.  Seriously, this has been hard. 
 
I am confident she will pull through this and we will fix her right up.  And, I know this story was long, so if you are still reading...thank you for reading!  This is the short version too, can you imagine the long version?  LOL.
 
You guys are great though...thanks for being here for me, everyone!!!!
 
(((((HUGS)))))
Dealing with panic and anxiety for 8 years off and on...right now more on than off.  Major health anxiety as well!
 
New found issues with agoraphobia...working on that too.
 
I am NOT weak, I am just down right now.  I am doing what it takes to get my life back!!!
 
Best Wishes to all...Tammy


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/23/2007 2:20 PM (GMT -6)   

Dear Tammy,

Sweetie, I am so sorry and your anxiety has been a natural reaction to what you have been going through.  I am so sad for your Mom and all she has been through.  I am a nurse so I know exactly what you have been facing with every 911 call............ER was my speciality until I retired early. But believe me I understand your situation so well.

You have my support and prayers, and thank you for sharing this.  I know it was not easy to write down your Mom's story and I am sure you shed some tears while writing. 

I think your Mom must be quite wonderful to have a daughter as kind and devoted as you. I pray that she will be back home playing with the Yorkie soon.

I am here if you want to email, please do.

Gentle hugs to you and all of your family.

Kitt


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


debaser
Veteran Member


Date Joined Nov 2006
Total Posts : 1745
   Posted 7/23/2007 4:38 PM (GMT -6)   
That's really horrible that your mother had to endure all of that, but it does demonstrate that she's one hell of a survivor! I'm sure this has been very hard for you and the rest of your family as well, but once she's in the hospital for this wouldn't that be a relatively low-risk thing (asking Kitt)? Compared to what she went through before, I mean. My grandmother (much older woman) has had wounds that are stubborn to heal because she has Type II diabetes. While it has been very uncomfortable for her, it hasn't been life threatening. The doctors keep a close eye on her.

My mom's about your mom's age and she has some pretty serious health issues, too. Even though every case is different I kind of know what you're going through.

Best of luck to you and your mom,
D
My Brain: My friend, My enemy: A blog to chronicle my attempt to recover from anxiety/panic disorder
anxietypanicdisorder.blogspot.com/


TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 7/23/2007 6:18 PM (GMT -6)   
Thanks Kitt and debaser both for your support.

Debaser, yes, the wound thing isn't so much life threatening...we were concerned at the amount of blood coming out. She was totally saturated with blood. And, she has had issues with blood all through this entire illness. I am confident she will be fine in the end, it's just getting to the end that is the hard part. Ya know?

This past year was tough on us all, especially her, of course. We will make it, and so will she!!!

They are looking into doing a skin graph on her to close up the wound. We will know more in the next couple days, and I of course will update you guys. You are all great!!!


(((((HUGS)))))

Tammy
Dealing with panic and anxiety for 8 years off and on...right now more on than off.  Major health anxiety as well!
 
New found issues with agoraphobia...working on that too.
 
I am NOT weak, I am just down right now.  I am doing what it takes to get my life back!!!
 
Best Wishes to all...Tammy


Sunshine1108
Regular Member


Date Joined May 2007
Total Posts : 268
   Posted 7/23/2007 8:45 PM (GMT -6)   
Tammy, your all in thoughts and prayers!
 
I know what it is like to have your mom on life support.  I had the same situation 5 years ago.  My mom was very sick and I had to make a decision whether or not to keep her on it.  Unfortunately she never got better and I decided to remove her from life support.  It was the most difficult situation I had to face in my life.
 
It is obvious your a very strong woman who loves her mom with all your heart!  Your anxiety has good reasons for flaring up.  This is extremely stressful. 
 
Now that she is in the hospital, the docs can do what they have to so she does not have to continue going through this. 
 
Please continue posting and let us know how she is doing.  You know we are here for you:)!
 
God Bless you all!!!
 
((((((((HUGS)))))))))
 
Mary
~Take Life One Minute At A Time!
~What Does Not Kill Us Makes Us Stronger!


Junebug05
Veteran Member


Date Joined Sep 2006
Total Posts : 717
   Posted 7/24/2007 8:41 AM (GMT -6)   
Tammy,
 
Just after the little you wrote here about what you've been through it is no wonder your anxiety levels have flared!  Your mom has been through so much and you've been right there having to deal with all of it.   Your mom is such a survivor, and she obviously passed that down to you.  You've been through all of this, and continue to go through it and your still functioning, still helping her as best you can.  That is a testament to your courage and strength.  I'm hoping that your mom will get the feeding tube site fixed now and you can both breath a little easier.  You are both in my prayers! 

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/24/2007 8:51 AM (GMT -6)   
Tammy
Sweetie I am so sorry for all you  and your Mom are dealing with
YOU are one hell of a great daughter and person
I too have crohns and I havent been in your mom's position so far other than feeding tube but I also have a daughter and adopted one ( Normal) that do really help out when the crunch is on
Crohns is a horrid DD and we never know what or when something is going to happen next

YES it is no wonder your ansgt is high my Cait is already showing signs of a/p and she is just a teen ........
Your Mom is a "Crohnie" and we are strong ....... I know she will pull thru this and it will all work out
YES she is a survivor as D said " one hell of a survivor": so are you and I for one am proud to know you thru HW and now I understand a bit more of what is going on

Thanks for being open and sharing all of this with us
It took alot of tears I am sure to write down what you did ......

Those tears will be Happy ones soon sweetie ...
I know she will be okay

In my thoughts ,heart and prayers always ........
Give that wonderful loving Mom of yours a gentle Hugg from me plz and one for yourself .....email me if you need to talk

Luvs
LYN
God BLess


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 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
 Your Mind is like a Parachute...Works better when IT IS Open
 
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/24/2007 9:28 AM (GMT -6)   

Good Morning Tammy

How is Mom today, sounds like the surgeon has a plan. yeah I am so glad you posted your whole story as it took guts but now it is out there and you can talk to us and we can support you and send our love and prayers your way.

You are very brave and strong. I am so proud of you as I know your Mom and Dad are too. You know where I am whenever you need to talk and keep posting. The outpouring of support here is powerful. Use it to help you.

Gentle Hugs.


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 

Post Edited (stkitt) : 7/24/2007 12:22:45 PM (GMT-6)


TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 7/24/2007 12:14 PM (GMT -6)   
Hey guys. Thank you all for the kind responses! As always, I appriciate that greatly! My Mom is meeting with the surgeon tomorrow at 2:30 p.m. to see what they are going to be doing. I will update you all on that tomorrow.

She was actually released from the hospital again yesterday. They said since they stopped the bleeding, they couldn't keep her. So, she is home. She is doing OK. Although, at midnight last night, she called me, scared, because blood was coming through her bandage. I went over there, and checked her out. She was OK. Just needed a new dressing. I handled that well. She was then fine.

Having the Yorkie here was tough. She is a playful pup and kept me up most of the night. I am tired today. Ugh. She is cute, and fun, but too playful for my taste, since I am not use to it. Her and my one cat got along well. They played hard though, and it was annoying, and cute all at the same time. She is sleeping now, so I think I might go nap as well. I need the sleep.

I am also having some issues now with my ex and dealing with our son. My ex finally moved out of his parents house...he stayed wtih them the past 3 years since I kicked him out of here. He just moved out like a week ago. Anyway, he is living in an apartment, and last weekend, I let my son go stay there with him...well for one day, cuz my ex never keeps him longer than 24 hours....anyway, my son told me that his Dad let him go plya with these kids they just met and they are older than my son, who is 7. They went in the woods...mind you, my son was wearing flip flops. And, my son went into all these other kids apartments, and got "attacked" by a dog. I asked where his Dad was during all this, and he said in his apartment. I don't feel good about this. His Dad is VERY irresponsible, hense a good portion of the reason I left him. I could go on and on about his father...it is a BAD situation. I don't want to let my son go back over there. Not sure how to deal with it. This is way off topic...I know, sorry to go on and on. Ugh. Just having a real stressful day here today. Thanks all for listening!!!
Dealing with panic and anxiety for 8 years off and on...right now more on than off.  Major health anxiety as well!
 
New found issues with agoraphobia...working on that too.
 
I am NOT weak, I am just down right now.  I am doing what it takes to get my life back!!!
 
Best Wishes to all...Tammy


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/24/2007 1:32 PM (GMT -6)   

Hey Tammy,

I have a friend that's daughter goes with her Dad every other week end and she had problems too.  The daughter does not want to go with her Dad as he never shows up on time and he cancels out as well as drinks and drives.

My friend told her ex that no way could her daughter go with him if there was any drinking.  However this girl is old enough to call her Mom on the phone if she is uncomfortable about anything.

If your son is afraid to go I would not force him..............and let your ex no why. Your son is number one in your life.

I hope your taking your nap while I am sending this.  Sleep well and no anxiety while your sleeping.

Special Hugs

 


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/24/2007 2:20 PM (GMT -6)   
I had the same situation with Caits Bio dad and he was a heavy drinker
I STOPPED all visitation unless supervised
He was NOT allowed to take her in a car not allowed to pick up from school .....NOTTA.........
I totally agree with Kitt
I know you will do the right thing
You are a great mom as well sweetie
Hope you are sound asleep .......you do deserve it .......

((((((((((((((( BIG ONES))))))))))))))))))

Luvs
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
 Your Mind is like a Parachute...Works better when IT IS Open
 
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  


TammyGrl0528
Veteran Member


Date Joined Jun 2007
Total Posts : 1345
   Posted 7/24/2007 3:43 PM (GMT -6)   
I didn't take a nap. Ugh. I am going to go for a walk when John gets home, and then he and I will have a relaxing evening together. Jay Jay did go with his Dad, but he, (Jay Jay) decided to only stay with him unitl around 8 p.m. instead of sleeping over. Jay Jay made that decision himself. He is a smart boy, and he knows what he wants, so for the most part, I let him make his own decisions. I feel a little less stress about Jay Jay and his Dad...for now.

John will be home in about 10 minutes, then we are going to go to our favorite park...it has a pond with lots of animals. We will walk and relax. Then, home for some dinner and time together. We havent' had much of that in the past few weeks...ugh.

I am fine. No one worry.

I decided to skip the nap...but I am going to go to be early tonight!!! I feel far less stressed now that Jay Jay has stood up to his Dad...finally.


(((((HUGS)))))
Dealing with panic and anxiety for 8 years off and on...right now more on than off.  Major health anxiety as well!
 
New found issues with agoraphobia...working on that too.
 
I am NOT weak, I am just down right now.  I am doing what it takes to get my life back!!!
 
Best Wishes to all...Tammy


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/24/2007 4:24 PM (GMT -6)   

Kudos to Jay Jay..........That is one bright child you have there. Glad your feeling less stressed, that makes me happy.

Enjoy your walk with John and be good to yourself.


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 7/25/2007 3:10 PM (GMT -6)   
I am also happy that your son is strong and very intelligent for his age he will have to stand up for himself many times thru his life and he is off to a great start.........shows what kind of Mom he has

Please do take some time for you hun this added stress is not good as you know all too well

Will keep you in heart thoughts and prayers and little guy too

LUVS
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
 Be Thankful for the Difficult times..During those times we GROW
 
             EMPATHY is Always Better than APATHY
 
 Walk With Us We Will Take your Hand .......
 
  
                                  

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