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scruffles
New Member


Date Joined Aug 2007
Total Posts : 5
   Posted 9/4/2007 6:41 PM (GMT -7)   
  Hi There! Thanks for reading this and your thoughts regarding neurontin taking 1600mg at bedtime and 400mg twice a day. I have depression and anxiety the neurontin was prescribed 3 yrs ago and about 3 months ago my psychiatrist lowered the day dose from 800mg twice a day. When prescribed I was very tearful, needing a hysterectomy at age 36, a job that I could not do because of constant bleeding and I hated to quit but my pyschiatrist said this is crazy continuing to work and I did quit.
 
1) 1 week after taking the neurontin I was much much better! But I have heard from others that I am on an usually high dose? Is this a high dose and how do you lower the dose or wean?
 
2) I am also taking 4mg everynight of clonipin for anxiety and sleep for years, I guess 4 years. I don't take any clonipin during the day. I am trying to go to 3mg and 2mg but how is it usually done. I told him I was coming down and one time. He stopped it completely and I had the heebe geebes! I called the office and they had computerized records since my shrink went out of town. She said oh, he stopped your klonipin. She said you can get rebound anxiety from long term benzos. She said 4mg is a lot. THere are only 4 in the practice. I was taking 8mg and he let me wean myself and did 7/8 alternating for a long time weeks! then 7/6 same and down to 4mg and it has stayed. I had to have surgery last year on my ovary a tumor, benign. Now, it seems going to 4/3 is much harder and I have been taking 3mg and can tell.
 
 How do you wean from 3 to 2 as you get closer to zero.. I read the other note but do you decrease by .25? is that the norm?
 
3) I also take seroquel for sleep and augment zoloft @ 50mg I also, just started Wellbutrin 150mg for 1 week now at 300mg for 2 weeks for depression/anxiety. He and I want to lower the seroquel as well.
The dose is 250-300mg at night I am trying to take only 250mg at night the most and trying to lower to 200mg is hard. Why is it hard to come off these meds. How is seroquel usually weaned? When weaning seroquel does it cause you to have twitches or jumping in hand or foot, leg, small part of knee jiggle. Is that the side effects of coming off seroquel? I have tried going to 200mg and I am not as groggy during the day.
 
4) I have been evaluated for MS and told I had old optic neuritis. I was diagnosed with Fibromyalgia last year or so.
 
I have no brain lesions or cord.  All that is good. So they are referring me out
 
OK that is all thanks!  I appreciate your time and patience to do this and do realize to follow my doctors instructions etc....
 
Holly

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 9/5/2007 2:56 AM (GMT -7)   
Hello scriffles nice to meet u. Some people withdrawel from meds differently than others. However if u think that it warrents attention from your doctor let him or her know exactly whats happening. I too take 100mgs of Zoloft and 0.5 of klonopin four times daily not sure what that's equlavant too but i too have been on different meds serequeol was one of them i dropped that one myself. I was only taking 2 klonopin a day and was increased a while ago i have been on meds for almost 2 years and still have ups and downs, and the odd racing heart thing too it sucks, i currently am in alot of pain and that is what gets me upset sometimes but i try one day at a time sometimes that helps and deep breathing, have u tried counselling that aslo may be helpful. Anyway keep in touch and remember about the doc that is what they are there for is to help u. talk later Twiggy2

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/5/2007 6:33 AM (GMT -7)   

Hello Holly,

Welcome to Healing Well and the A & P Forum. We are so happy to have you with us.

This is a great place to come to find support and share of information.

I feel with the many different meds and large doses you have been taking that it is really best to work with a physician to figure out the best weaning method for which med you want to decrease or eliminate. No, stopping a benzo cold turkey after 4 years is not a best of practice decision by any physician.  You say you were at 8 mgs on the Klonopin...........that is a high dose.

I have weaned off several meds and slow wean has been best for me. I was on Ativan 4 mg and switch to Valium for the weaning.

Please talk to your physician and explain you want to wean off slowly.

Again a Warm welcome.


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


scruffles
New Member


Date Joined Aug 2007
Total Posts : 5
   Posted 9/5/2007 7:55 AM (GMT -7)   

Hi There!

   Thanks for your response!!!

  Sure, of course I will go by his prescription. I guess as a patient one does not know if a dose is a high dose or possible symptoms until you talk about it.  I think different doctors in certain parts of thecountry or in the city and I live in a small city, kind of do the same thing and that is why I wanted feedback to educate myself.  I did not know that about valium. My doctor is always open to my thoughts on meds etc.

  yes, you are correct 8mg was too high,  he said that was the most I could take in 24 hours, so he said sometimes take 6mg at night and 2mg day.

I think it was stopped completely at 4mg and oh the partner said, oh yes that is what is causing the heebe jeebies and she said you can hve seizures is a risk and I had to take cogentin which calmed the hebbe jeebes for 3 days only.  I have never taken cogentin and it is not for my diagnosis just to help with the symptoms and she put me back on Klonipin 4mg a night.

   It is so hard to come off the meds and makes you wish you had not taken them. I was having a lot of trouble sleeping, getting to sleep. 

   What kind of side effects do you get coming down from neurontin. ? What is ordinarily the usually or say average dose at night time?

   Also, pregablin spelling may be wrong, is that in the same class of neurontin? Does it have any other benefit?

  I live in a very rural state information is helpful as to usually dose and I certainly understand to follow my doctor. :-)     thanks bunches!!

  Holly

 

 

 

 

  

 


scruffles
New Member


Date Joined Aug 2007
Total Posts : 5
   Posted 9/5/2007 8:07 AM (GMT -7)   

twiggy2,

 Thanks for your input. klonipin .5 4 times a day is 2mg total. So, I am at 3mg now and stable with that one for now.

What dose where you on when you dropped the seroquel?  about how long were you on it?

Did you have any side effects. Of course and read earlier I will go by my doctor.

  I don't and never had any racing heart from them. For Instance, in a depressed anonymous group I went to the hospital here had someone on seroquel 800mg a day! His partner said he was so wacked out and did not help. I thought good grief and that shrink is a hospitalist, meaning only sees inpatients.

 I have never been an inpatient for anything, psych disorder. I did have a hysterectomy at 36 and was very anxious and the dose went up.

  It is so hard to make good friends, healthy friends

           Thanks, Holly

 

 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/5/2007 9:18 AM (GMT -7)   

Hi Holly

I am not a prefessional but I will attempt to share some information, ok :)

Klonopin:  The initial dose for adults with panic disorder is 0.25 mg bid. An increase to the target dose for most patients of 1 mg/day may be made after 3 days. The recommended dose of 1 mg/day is based on the results from a fixed dose study in which the optimal effect was seen at 1 mg/day. Higher doses of 2, 3 and 4 mg/day in that study were less effective than the 1 mg/day dose and were associated with more adverse effects. Nevertheless, it is possible that some individual patients may benefit from doses of up to a maximum dose of 4 mg/day, and in those instances, the dose may be increased in increments of 0.125 to 0.25 mg bid every 3 days until panic disorder is controlled or until side effects make further increases undesired. To reduce the inconvenience of somnolence, administration of one dose at bedtime may be desirable. Reference: PDR 7th Edition

Here is the site for withdrawal from benzos.  I printed out the info and gave it to my physician and she researched it and agreed to using the schedule.  It is just my experience.  http://www.benzo.org.uk/manual/bzsched.htm
 
Neurontin not a drug  I have alot of info on as I was prescribed this med and the MD accidentally dosed me mg per mg with my previous med. I ended up in hospital with a panic attack, low postassium and IV Ativan as the overdose caused severe reaction, so this med is now listed as an allergy for me.
I know of a friend with a  depressive disorder  that was taking a dose of 1,800 mg/day. It resulted in remission of her  depressive mood.
 
Lyrica / Pregabalin FDA Approval to Treat Fibromyalgia. Clinical studies in over 1,200 patients with generalised anxiety disorder suggest that Lyrica (pregabalin) will be effective for this disabling disorder. Reference:  Pfizer

Hope this is some help to you. Take care and keep posting.  Gentle Hugs.





 
Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


wen4003
Veteran Member


Date Joined Aug 2007
Total Posts : 1193
   Posted 9/5/2007 11:41 AM (GMT -7)   
Hi Holly,

As others have said, make sure you work with your doctor when the two of you decide it's time to come off of the meds. Some meds you can stop cold turkey, others you have to wean - especially those at high doses. I'm at a fairly high dose of Neurontin 300 in the morning and 1200 at night - my doc has already told me that if I get to a point that I can come off it (which may be never - it's for pain for Fibromyalgia) I will have to be weaned off it.

Hope this helps a little.

Wen
I have Bipolar Disorder, Panic/Anxiety Disorders, Agoraphobia, Depression, Fibromyalgia, Severe Acid Reflux, Barrett's Esophagus, and Narcolepsy
 


scruffles
New Member


Date Joined Aug 2007
Total Posts : 5
   Posted 9/5/2007 12:41 PM (GMT -7)   

Thanks a bunch for the site ! That is very useful!

That is awful about the neurontin and sure was scarey for you. I discovered that the neurontin dose was high only because I called a center at Duke and someone there said it was high, a therapist. I did not know it was high dose but I do not live near Duke and in this area that is the dosage that is common. kind of interesting.

 I did not know that clonipin was the equivlent to valium in the dosages. I am glad I am at 3mg.! That was so helpful. When I saw a nuerologist and he ordered an mri since claustraphobic he said I'll give you something. I said I am already on something, he was like 4mg that is alot. I said it used to be 6mg at bed time! He said 4mg is still a lot and he let my shrink order the meds.

The problem is that you develop a physical dependence and you just have to go higher to get relief.

So, I of course, always talk to him about things and he is wonderful and knows his stuff. It is nice to hear from others that take it and their experiences since meds these days is a part of treatment of depression and can affect your depression.

So thank you very much...

Wen, my shrink is helping me taper my meds, it is nice to hear and learn from others your experiences and feelings since compliance is very important. I was diagnosed with Fibromyalgia too. Do you take pain medicine for the fibro? Have you ever tried seroquel. It is very sedating and I did not like it for awhile but it does help. That is the one I am working on, w/ my shrink as well to lower the dose and I am toggling between 200 to 250 to max of 300mg at night only.

I always feel so emotionally at night, it seems to hit me the hardest, then. I cry so often at bedtime and I have tried everything, tapes, tv, cd's eye mask everything!

That is why I am on the dosages I am on. Does anyone feel the same way and how can I cope with feelings of sadness at night. What helps others? Any tips or insight to anything is appreciated.

Holly

 

 


Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 9/5/2007 6:45 PM (GMT -7)   
Hello scruffles i did start the dose of sereqoul at 100mgs and then my dpc upped it to 250mgs, i was sleeping all of the time most of the day severe headaches etc, i stopped it after about only being on it for a week and a half. My doc said that the drowsiness would eventually disappear after a while being on it but i didn't think that so i dropped like a hot potatoe, some people can take that med i could not. then we decided that increasing the klonopin was probably the best way to go, some days i don;t even take all four pills i cut them in half depending if i feel anxiety. also at one point my Zoloft was increased to 150mgs way to high for me my mind was racing etc slowly decreased 25mgs at time for 2 weeks back down to 100mgs , Still have major issues woth sleep, and moodiness sometimes but doing my best lol, anyway gotta go for now take care and let us know how u are doing ok. Twiggy2

scruffles
New Member


Date Joined Aug 2007
Total Posts : 5
   Posted 9/5/2007 7:05 PM (GMT -7)   
Twiggy
Thanks for your input. I need to find out how long I have been on seroquel. I don't know I think 3 yrs.? Don't know. I will have to ask him. I too was on zoloft 150mgs/day dropped to 50mg. I am going for 3mg klonipin tonight. Seroquel 200mg. I think my psychiatrist will be happy if I can do this for the weekend, he wants it lowered 200 to 250 w/ goal till able to 200mg.
Kind of funny, now possible MS the meds could be causing some of symptoms it and trying to come down as fast and safe. When going on seroquel I think a lot of psychiatrists put people on high doses since that is what the page insert said. I have read horrible stories of stopping cold turkey and I don't want him to do that with me. he did that once before and I cried all weekend and extremely anxious all over legs and arms. Stayed in bed till I called him the following day. At that time they thought there was no side effects of stopping seroquel cold turkey.
So I know I can do it , it is just kind anxiety causing.
Thanks everyone for talking to me. I did have a great inability to sleep. that is why he prescribed the seroquel.

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 9/11/2007 9:52 PM (GMT -7)   
Hi scruffles how have you been doing have you been able to talk to doc. Please be careful coming off your meds weaning is the best way. Your doc will be able to tell you how to do so properly without bad side effects. You can also possibly find helpful information on the internet type in sereqoul in your search engine eg Yahoo read about the med and prescritption guide may also be available, or type in wean from sereqoul that might be helpful to, i wish u the best take care Twiggy2 let me know how u make out K

wen4003
Veteran Member


Date Joined Aug 2007
Total Posts : 1193
   Posted 9/13/2007 7:43 AM (GMT -7)   
Hi there - sorry for the delayed response.  Actually the Neurontin is for the pain from the Fibromyalgia.  I also take Flexeril at night because my muscles spasm so bad, I also take Ambien CR because I can't sleep.  This is is because of the Fibromyalgia.  I've had problems for the last 20 years or so, but it wasn't until about 5 years that I was actually diagnosed with it.  The Neurontin has been gradually increased over the years and my doctor has already told me that she won't go any higher.  So if I get to a point of needing something more for pain, we will try something else.
 
The Seroquel is for pain?
 
Wen
I have Bipolar Disorder, Panic/Anxiety Disorders, Agoraphobia, Depression, Fibromyalgia, Severe Acid Reflux, Barrett's Esophagus, and Narcolepsy
 


Danxiety
Regular Member


Date Joined Aug 2007
Total Posts : 322
   Posted 9/13/2007 7:35 PM (GMT -7)   
Hey Kitt ( and sorry to barge into the conversation here)_

Thanks for that link. Very informative!
---
Anxiety and Panic Disorder.

"Breathe! You Are Alive"
- Thich Nhat Hanh


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/14/2007 12:10 PM (GMT -7)   
Holly

I am glad you are working with your doc on this .........we are definetily a support group but as you know we are not docs and cannot give that type of input ........

I wish you all the best and do hope you will STAY with us and get the support you deserve

LYN
    Contribute today to support Healing Well Forums...Donate @
 
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stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/14/2007 12:37 PM (GMT -7)   

Holly

I am glad things are better for you and the responses you have received are great.

Plese keep posting. Your family here.

Hugs

Kitt


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/14/2007 12:38 PM (GMT -7)   

Dan,

Your Welcome.  Always glad when I can be helpful.

Take Care


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 

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