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cody1993
Regular Member

Date Joined Jul 2009
Total Posts : 71

Posted 10/12/2009 9:51 AM (GMT -7)

Hey guys
Not many people have been poasting as much lately, but I guess every day life duty calls when school/collage/work interfear but that's ok. Do what you gotta do right lol?
How's everyone been doing? Seeing this is the fall season for us all on the northern hemesphere and it's been queit obvious that the lovely colds and flu have been going around. Hope all you cfers here haven't had it yet or have or even get it because extra mucus just sucks right? Stay healthy and pretty much eat the hand sanatiser because that stuff is just awesome killing those germs and doing their things like yah' know.
I'm off to Toronto today. Sick kids may have something better in store with their transplant list and transplant teams. Hopfully I get a pair of new lungs soon. I'll try to make the NHL and play for all you guys who suffer from this stupid disease and show people that we're just as good as anyone else we just have something called a disease that's not supposed to be there but it's only a bump in the road because people who suffer from any kind of illness are strong willed. Hopfully we find a cure soon so all of us can breath into the future. Just gotta say I yourself I have cystic fibrosis, cystic fibrosis doesn't have me because mericles happen you just got to fight for them.

"Somewhere the hurting must stop." - Terry Fox

MouseGirl
Regular Member

Date Joined Oct 2009
Total Posts : 33

Posted 10/12/2009 10:39 AM (GMT -7)

That's a nice way to think about it. I don't have cf myself, but my boyfriend does.

Em :]

"Let the whole wide world crumble, so long as I can read another page. And then another after that. And then a hundred more."

Darkies Gem
Forum Moderator

Date Joined Feb 2007
Total Posts : 753

Posted 10/12/2009 12:11 PM (GMT -7)

Cody, look up Alex Stobbs, he's an amazing person with CF, with a similar attitude.

Not to great today, and feel like throwing very sharp heavy things.

Consultant seems to be on a weird thing again. "this is unexplained, so therefore doesn't exist, so we should just ignore it". I don't care anymore. They can do what they want, I give in fighting them.

Haha, funny story about hand sanitizer.......Our hospital stuff used to be 70% alcohol content and were the consitancy of water rather than Gel. When they first came out, old people in our hospital, used to be squirting the stuff into their drinks. When the nurses found them all drunk, they then took off all of the 70% alcohol content labels.

I feel like nebulising the stuff lol, or at least just alcohol. Stupid idea, should never be done, EVER! But, it would clean things up a bit. You listening Cody.......No inhaled alcohol!!!;)

Moderator of the Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Medication: Creon 10,000, Vitamins A,D+E, Serevent, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Fresubin Liquid Feed, Skandishakes. I use PEP device as my physio. Had a Port-a-cath fitted on chest wall since Nov 04

Help support the forums so we can support you: http://www.healingwell.com/donate

Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.

cody1993
Regular Member

Date Joined Jul 2009
Total Posts : 71

Posted 10/12/2009 12:13 PM (GMT -7)

Haha never tried inhailing alchy before.

"Somewhere the hurting must stop." - Terry Fox

Darkies Gem
Forum Moderator

Date Joined Feb 2007
Total Posts : 753

Posted 10/12/2009 12:17 PM (GMT -7)

Don't do it, can you imagine if there're any cuts in your lungs lol.....Ouchies!

Moderator of the Cystic Fibrosis Forums

Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.

Help support the forums so we can support you: http://www.healingwell.com/donate

Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.

I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.

cody1993
Regular Member

Date Joined Jul 2009
Total Posts : 71

Posted 10/12/2009 12:34 PM (GMT -7)

Haha ah yeah! Wouldn't feel to great. Holy moley it's gona be christma soon. Hopfully I got new lungs by then, need new skates so I can get back at the hockey!

"Somewhere the hurting must stop." - Terry Fox

timboy
New Member

Date Joined Nov 2009
Total Posts : 16

Posted 11/6/2009 7:09 PM (GMT -7)

Word.

cody1993
Regular Member

Date Joined Jul 2009
Total Posts : 71

Posted 11/12/2009 12:51 PM (GMT -7)

kay?

"Somewhere the hurting must stop." - Terry Fox

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