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mookiemoomoo
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   Posted 11/3/2009 11:58 AM (GMT -7)    Quote This Post
hi alcie got that now about the teaspoons ha ha well i been to the gyn as i am waiting to have a lrg cyst removed she actually rang gi doc secertary and she said it looks like i will have my opp on 23rd nov so not to long to wait . but they said i could have the other opp 4 weeks after the nissan i kind off think thats to early what do you guys think that have had the opp . you got more idea than me . you seem to be doing ok . are you still eating soft diet when do you think you can chew
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Alcie
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   Posted 11/3/2009 1:25 PM (GMT -7)    Quote This Post
Hi mookie-

Too bad they can't just turn the tools around and grab the cyst while they are already in there. Probably too simple and couldn't charge twice for the ops.

I can chew now, but I have my first post-op appointment next week, and I'm lazy. I am grinding up nice chicken and cooked steaks, so I am NOT missing any flovor, just the workout on the teeth, and it sure beats baby food. I had a bunch of tiny grilled strip steaks packaged in my freezer. Better than plain old ground beef! I just whack up cooked meat with quite a bit of water in the food processor. Easy to get something fast when I don't feel well.

Having a bit of trouble breathing today. Visiting nurse is due, so she can take a listen. Friday there was a lack of sounds in the left lower lobe. Arm bruises hurting today too. I'm maxed out on NSAIDs and Tylenol is useless. Don't want to go back to Vicodin.


Alcie
 
 

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mookiemoomoo
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   Posted 11/3/2009 3:41 PM (GMT -7)    Quote This Post
idea  well glad i dont have to pay for the opp over in england we dont pay well we do through national health kind off . glad you can eat the meat ground up . i just cant think what i will be like . i love my food even though i have to monitor everything i eat at the moment. but i could do with losing a few pounds i guess good luck with the post opp. its kind off funny that we all have asthma to on here i bet its linked . im hoping my asthma gets better .
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Alcie
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   Posted 11/3/2009 5:20 PM (GMT -7)    Quote This Post
Mook-
 
I don't have asthma, never did, but you're right a lot of GERD people do.  I think I got off because I kept my acid under control all those years.
 
It's a good idea to lose a few pounds before surgery if you happen to be overweight.  It reduces the fat around the liver and makes it easier for the surgeon to see what he is doing.  I did that.  I was actually hoping to lose a little after surgery too, and I did while on clear liquids.  But I did a pretty good job of stocking up on foods I like, and now I don't have to eat stuff I don't like, like baby food, so the weight is staying the same.
 
Nurse said both my lower lung lobes have reduced breath sounds.  I am really tired to day too, took two naps and would like to lie down again.  I'm trying to do the deep breathing, actually getting better according to the machine, but I still feel short of breath.  I get an X-ray next Tuesday.  I'm posting this as  a suggestion to others to do the breathing exercises.  I may have gotten off on the wrong track by sleeping through the op and first post-op days.


Alcie
 
 

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Alcie
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   Posted 11/4/2009 10:29 AM (GMT -7)    Quote This Post
Addition to yesterday's post -

Yesterday evening I ate a soft scrambeled egg which didn't go down easily. This triggered a a bunch of stomach heaves and esophagus spasms which started tachycardia plus irregular heartbeat. (I have an automatic blood pressure monitor from when I wad my heart attack years ago.) The attack was pretty severe, so I chewed up a Toprol and did some mild Valsalva maneuver. The tach went away after a few minutes and the other arrhythmia stopped shortly after that. I called my PCP who wants me to take Toprol daily now, but I don't want to because I don't like the side effects (leg swelling, and lots more). I will at least go back to completely liquid diet.

I put in a call to the visiting nurse who said to call the surgeon's nurse, where I left a message. Maybe my regular cardiologist?? I haven't seen him since June, but I'll call and see about moving my Dec. appt. up. There won't be anything to see or measure. This is why I keep a pretty good journal.

I know what's going on, just don't know how to stop the problem. I've researched the connection between the heart and the stomach since my heart attack in 2006. There are a bunch of good papers that show that the esophagus can trigger coronary vasospasm. Sometimes it's called cardioesophageal reflex, sometimes variant or linked angina. What is worrisome is that, according to my personal experience and a recent paper, coronary vasospasm can cause rupture of a plaque in a coronary artery, which then becomes a heart attack. This is most likely what caused my original heart attack, since there was no evidence of heart damage and very little enzyme changes.

This morning I stupidly ate (slowly) another egg. I was hoping eating more slowly would be the answer. I didn't have a tach event, but I did have a bunch of stomach heaving and my esophagus is still unhappy. So I'll try eating only liquids. It just means processing foods more.

I was hoping the fundoplication would put an end to the tach events, but it's made them worse. The stomach, despite the problems, is much better than when I was having the horrible non-closing LES.


Alcie
 
 

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stkitt
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   Posted 11/4/2009 11:23 AM (GMT -7)    Quote This Post

Alcie,

Could anxiety be kicking you into tachycardia, and how fast is your heartrate? Also I think it may be wise to talk with your physician re another med that would take the place of Toprol without the same side effects that bother you.

I am concern about you.  ((((((((((((((((((Hugs))))))))))))))))))))

Kitt


 

~~ Kitt ~~
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*~* http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
"I am not a mental health professional, nor do I play one on TV, I just kind of talk like one!"


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mookiemoomoo
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   Posted 11/4/2009 12:08 PM (GMT -7)    Quote This Post
well you sure have some problems hun with all that going on , do you have any one to care for you , think you should go back to baby steps with the food though . take care mookie
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Alcie
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   Posted 11/4/2009 12:39 PM (GMT -7)    Quote This Post
Kitt - Anxiety is a factor when I visit certain, but not all, doctors, but it does not cause heart rate of 140 when I'm just sitting at the computer reading my email. The meter registered abnormal rhythm also. Unfortunately Toprol is the med I tolerate best, and it still has side effects. In fact all heart meds work basically the same way - they dilate veins - although through different mechanisms. Before and after my heart attack I was put on a whole bunch of them, and each one was worse than the one before it.

I'd happily take something for anxiety, but I've tried some and they make me have suicidal thoughts, which is really scarey. I've been told not to take them.

I'm sitting around waiting for the surgeon's nurse to call back, as usual. She really is horribly busy, has to run around seeing inpatients. I'm going to call the office again and ask to speak to just anyone.

I chewed up the Toprol, still have a little back pain under the scapula (referred heart pain area). I ate a little cream of rice which seemed to calm down the esophagus - or maybe the Toprol finally kicked in.

Mookie- No, noone here. Everyone within a mile gone to work or something. Hubby worked last night. My son works about 3 miles away and will come running if necessary. Ambulances take at least 20 minutes out here.

Oh rats! Just had about 10 seconds of tach again, no stomach symptoms. Guess I'd better get on the phone to cardiologist.


Alcie
 
 

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Alcie
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   Posted 11/4/2009 3:35 PM (GMT -7)    Quote This Post
A couple of hours later -

The cardiologist called back. I'm to take Toprol for a few weeks, upping the dose if necessary, to see if this stops the tach events.


Alcie
 
 

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mookiemoomoo
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   Posted 11/5/2009 2:43 AM (GMT -7)    Quote This Post
holy cow alcie you take care hun wish i could come with some home made rice pudding please take it easy
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Alcie
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   Posted 11/5/2009 8:09 AM (GMT -7)    Quote This Post
Mookie -

Thanks for the sentiment and the idea! I can't eat any puddings made with cornstarch, but homemade rice pudding should be fine - no sulfites as long as it isn't made with brown or beet sugar. I have leftover rice in the freezer, wasn't thinking of eating it yet because of the texture. Maybe if I cook it to death and process it.

I think one of those little processors would be a good investment for wrappies-to-be. The large ones simply make too much. Of course you can save the leftovers from the 2T meal. It seems a lot of us need to stay on soft foods in small servings for quite a while. It's probably a tax deduction along with the other medical expenses.

Thanks again! I haven't eaten pudding for years and I love it.


Alcie
 
 

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stkitt
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   Posted 11/5/2009 8:43 AM (GMT -7)    Quote This Post

Alcie,

Hey there, I worked ICU/ER for 26 years so I understand the meds and if Toprol is the med you tolerate the best then I hope the increase works for you. :).  I do understand the cardiac arrthymias well and just tossed out the anxiety factor but if you are just reading email and not feeling stressed then you are right on track by checking with your Physician.

I wish you the best with your upcoming surgery.

Sincerely,

Kitt


 

~~ Kitt ~~
Moderator: Osteoarthritis, GERD/Heartburn, &
Anxiety/Panic
*~* http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
"I am not a mental health professional, nor do I play one on TV, I just kind of talk like one!"


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Alcie
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   Posted 11/5/2009 9:43 PM (GMT -7)    Quote This Post
Thanks Kitt.  The anxiety suggestion is realistic.  At least you think.  Read on. 
 
On Toprol today I started feeling better.  Since I didn't get a return call from the surgeon's office after my call to them yesterday morning (got a machine), I called again this afternoon.  I got a nurse this time.  She was referring my call to a dietician since scrambeled egg triggered my tach.   Nutrition is going to stop tachycardia?  Aaagghhh!  
 
Then she had no idea what to say about the pain that starts where the radial artery was stuck for blood pressure during surgery and running halfway up my arm, and the pain from the extra IV in the hand that is getting hard way down past my wrist.  I asked if she would be consulting a doctor, she said no.  So I called my PCP and was put on antibiotics.  It's two weeks post op and I am waking up at night with enough pain to take vicodin.
 
I expect the usual three minutes for my post-op visit next week, so I'm typing up my problems, trying to keep it all simple so they'll read it - one page, not too many topics, no novels.  I'll be just part of the cattle-call of 40 or so patients.
 
Is it normal to get herded through a major procedure and then dumped?  Are we supposed go back to the PCP to get the complications uncomplicated?


Alcie
 
 

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opnwhl4
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   Posted 11/6/2009 1:12 AM (GMT -7)    Quote This Post
Alcie-
Sorry to hear you are having such issues. I had a completely different experience with my last Nissen. The care after was excellent. I had to return to the hospital due to holes leaking in my stomach. I had excellent post op visits also. They were at least 40 minutes and addressed every issue I had. Actually the few major surgeries I have had all had excellent post op treatment. I really believe it has to do with the surgeons attitude towards patients. None of my surgeons would let me go back to my PCP until I was released by them and that didn't happen until I was ready.
That nurse should consult the surgeon and I don't understand why she didn't. If they are so busy they can't give proper post op care then they need to slow down. My thoracic surgeon is super busy with surgeries, but still makes appropriate time for the patients after wards also. I think the shortest visit I had with him was this past week and that was about 25 minutes.
I sure hope you can get a quality post op visit and get all the issues taken care of.

Take care,
Bill
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Alcie
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   Posted 11/6/2009 6:29 AM (GMT -7)    Quote This Post
Bill -
All the GI patients coming to this metro hospital get sent to the same clinic and seem to get the same quality of treatment. Actually treatment of conditions seems to be reasonable, maybe superior. But treatment of the patient doesn't exist as I am used to it and as you describe. As for the nurses (not even a nurse practitioner) answering the phones to be not consulting doctors about heart arrhythmia complications - that's when I go running to my other doctors.

I'll talk with my visiting nurse this morning. She's going to discharge me. That's fine. I only wanted them around to check on me because I expected possible complications and no contact with my surgeon. Too bad I was right.


Alcie
 
 

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stkitt
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   Posted 11/6/2009 6:36 AM (GMT -7)    Quote This Post

Alcie,

I am sorry you got such a run around by the nurse and that does not sound like appropriate protocol to me.  But then I may be old fashion and stuck in my ways where the patient always comes first and the nurse is the patient's advocate.  :-)

I know I feel like some of my visits and my procedures have been like you mentioned "cattle call".  I have even been told my time is up during a Dr. visit as "it is not fair to have me cutting into someone else's appointment time".  Well kiss my grits. ! A therapist session now costs $310.00 for the 50 minute hour and I sometimes am lucky to get 40 minutes as the person in front of me went over time. 

My sister spent 8 months in one our great hospitals here in MN but as a teaching hospital it was much like a production line.  My niece and I stayed with her at all times so she would have someone to advocate for her.  I was not always appreciated by the staff but patient's have rights.   The majority of the staff were excellent but due to rotation every week she would have a new set of physician's, interns and medical students.

I do hope you are able to get some answers to your questions and I am glad to hear you are making your list of questions and concerns to take with you to your appointment.

Gentle Hugs

Kitt

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Alcie
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   Posted 11/6/2009 7:23 PM (GMT -7)    Quote This Post
Kitt-
Good for you for being an advocate for your sister.  8 months or caring for her was a really serious effort.    I can't imagine going in for anything, even a follow-up visit, without knowing what to expect and having my questions written down.   
 
I got a call from my surgical fellow (as in teaching fellow) this afternoon.  He had just been informed of my tachy problem.... Two days after I called.  I was a little flummoxed, but I tried to be nice.  At least I was appreciative of getting the surgery!  I have to say that I probably got the best surgical procedure I could have gotten anywhere in the world.  I was given an appropriate wrap (toupet) for my not-so-great LES.  Not so tight as to interfere with swallowing, tight enough to stop reflux.  The doc was very pleasant in the face of my criticisms - not of him - of things that had happened to me.  He patiently answered my questions and listened to my concerns.  I feel SO much better now!   I can stop saying baa, baa.
 
My PCP put me on Keflex, just in the unlikely case the arm pain might possibly be related to infection, since it's moved down my arm so much and hurts badly enough to wake me up at night.  I don't have any redness or heat.  I'm trying tramadol, which I was taking pre-op for fibromyalgia (less powerful and addictive than vicodin) in between the Clinoril, which does help but on which I'm maxed out.  Teaching fellow thinks pain will go away with the bruising.  I don't know.  It could be from one of the 3 sticks hitting the radial nerve.
 
Magically, my stomach and wrap are hurting much less- coinciding with starting Toprol.  I know stomach can trigger heart events and vice versa.  I wonder if irritated heart could have been triggering some of my stomach pain.   I have had almost no reflux/spasm incidents in two days, and the few I did have were minor.  I've cut out eggs for now om case thry were a food trigger.  I ate a 1/4 mashed up sweet potato, without adding liquid.  It was boiled though, which does add fluid.  Jersey potato, not yams - off-white, not orange.  Plain tuna (no sulfite-containing mayo and mustard) is going down too, so I am starting to eat a regular diet.  Yay!!  Using tiny dessert dishes is my secret for not overeating and causing myself pain. 
 
This forum and a couple of support groups are my therapy, also probably the saving grace of my family and friends who were beyond their tolerance of my daily rants.  Reading the posts of the people here has been so helpful preparing for surgery and understanding what to expect during recovery.


Alcie
 
 

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Alcie
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   Posted 11/7/2009 8:24 PM (GMT -7)    Quote This Post
Day 16 -
I eating some regular foods now.  The main factors seem to be amount, grittiness and trigger foods.  I ate a nice, tender, small steak for lunch.  A couple of hours later I ate a small hamburger with lettuce and tomato only.  Eating very slowly helped.
 
I did have an episode of foam this evening after eating some tuna with a little mayo and some yellow squash.  Mayo can be a trigger food, and I ate it too fast, and tuna has a slightly rough texture.  Someone else posted about foam on another thread.  My solution was to swallow a couple of sips of juice and a sip of Gaviscon.  At least I only ate a tiny amount!  I'll stay away from tuna for a while longer.
 
Soft diet here begins on day 7, goes for 4 weeks.  Meats, as tolerated, are on soft diet.


Alcie
 
 

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Alcie
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   Posted 11/10/2009 2:49 PM (GMT -7)    Quote This Post
Hi all -
I am finished with appointments for the next year.  2 1/2 weeks out of surgery, and that's it!
 
I saw a nice teaching fellow today.  He pulled the last of my steri strips off, said I might have more pop-up stitches, but I am now officially fine.  I complained of pain at a couple of spots in the belly and the bruised arm, and shortness of breath.  But CXR was clear, so I don't need to have any more follow-up.  I can call if I have any new problems.
 
So that's the end of my story.  Good luck to all!


Alcie
 
 

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mookiemoomoo
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   Posted 11/11/2009 4:20 PM (GMT -7)    Quote This Post
please dont leave us , i not had my surgery yet i will feel lost confused still not had my letter and i should be going in on 23rd dont think thats going to happen do you
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couchtater
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   Posted 11/11/2009 4:25 PM (GMT -7)    Quote This Post
I'm still here, Mookiemoomoo. I'm waiting for my surgery.

Joy


Health problems: sleep apnea, hypothyroidism, GERD, glaucoma, OA, environmental, food, and drug allergies, asthma, high cholesterol, pre-diabetic
Medications:Nexium 2X a day, 300mg Zantac, K-Dur, Lasix 2X a day, Zyrtec, Zocor, Lumigan, fish oil, B12, Substex, calcium + D, Advair, Albuteral, nebulizer
 
I don't suffer from insanity, I enjoy every minute of it!
 
 

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Alcie
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   Posted 11/11/2009 10:16 PM (GMT -7)    Quote This Post
Hi Mook-

I'm not going away, just reading other threads for now. There's not much to say since I am eating real foods, although it'll be very small portions for a long while. I'm trying out being off Nexium, two days now and no pain or reflux. The only problem is gas, and I'll take that over reflux happily. I have to watch foods with sulfites for life because they will make my new stomach heave and trigger tachycardia.

So if you have questions post them here or anywhere and someone will likely answer. Good luck to you. I will think of you and will be watching for your post-op post.


Alcie
 
 

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mookiemoomoo
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   Posted 11/12/2009 3:50 AM (GMT -7)    Quote This Post
thanxs alcie and joy as soon as i have the procedure i will post on here god look to you alcie you have done amazing eating real food so quick well done hugs mookie
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Alcie
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   Posted 11/12/2009 2:05 PM (GMT -7)    Quote This Post
Good luck to you too Mookie-
Remember to start with pill dispenser cup-size portions of food, wait 20 minutes and try maybe one more, no matter what they bring you to eat! Ask for more in another couple of hours. If you eat too much or too fast you will gag yourself and maybe not be able to catch your breath. I came close to choking myself this noon when I wolfed one not-really-huge bite of meat.
It's amazing how fast the first three weeks has passed. I feel better each day.


Alcie
 
 

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