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Posted By : indigosunrise - 2/7/2008 9:20 PM
Can arthritis be a sharp shooting pain sometimes and at other times more of an "achey" feeling? 

Posted By : sjkly - 2/7/2008 9:28 PM
I personally feel like I've been run over by a cement roller on my "normal" bad days.
On my really bad days I feel like the inflamed joint is literally burning.
On some days I have the general impression that every thing hurts but if you asked does your right arm hurt I would say no, well then does your left arm hurt-again no. Nothing specific hurts but I hurt all over. I know there is no logic in that statement but that is how I feel some days.
Of course since my rhuemy did not take me off steroids on monday like I thought she would I still don't hurt at all. I feel fantastic.
Hope this helps.

Posted By : Ducky - 2/17/2008 2:39 PM
Hey indigo... short answer to your question is yes.. it can feel like what you described.. it also feels differently for many people.. have you been diagnosed with anything?


Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Posted By : Morticia32 - 2/25/2008 1:23 AM
On my regular non-flare up days, the joints that are hurting feel like they are stuck in mid crack. Like when you crack your knuckles. And if I use that joint, it feels like its litterally going to break or snap. During a flare up with swelling, its totally differant. Its a constant burning, ripping pain it takes my breath away. If I even move the effected joint, the pain at times is so bad it makes me vomit, scream, cry like i just broke something.
 
The pain is constantly moving around, 1 hour its my fingers, next hour its my toes, knees etc.... sometimes it is my entire body even my jaw. The joys of RA.
 
I hope this helps


Diagnosed: Hypothyroid 1990, Endometriosis 1997, Agrophobia 1998, Objective Tinnitus 2004,Rhematoid Arthritus Feb 2006.
Procedures Done: Gallbladder Removed 1994, 3 Endoscopes, 5 Laps for Endo, Hysterectomy 2003, Angiogram 2003.
Medications now: Synthroid, Lexapro, Diclophenac, Lortab, Prednisone.


Posted By : _Christina - 2/25/2008 3:31 PM
I have the same question.
Sometimes my right arm/hand hurts worse than my left arm/hand, but that's just because I use it more.  When I avoid my right hand and use my left, it hurts the same as the right.
I have not been diagnosed with RA yet, (My appt is on the 3rd with a rheumy) but the R factor test was + and from what I read, it doesn't seem to be a stretch.
On good days I am simply "aware" of my knuckles.  I know when I use them, but is isn't bad enough to be a "pain". 
I have described it as a "throbbing ache that doesn't throb".  
Sometimes it feels like the "echo of pain"- like I have just smashed my arm/hand/knees with a bat five minutes ago, but I didn't.  That's just the way it feels.  Sometimes I wonder if they would feel better if I did.
Sometimes it feels like when you bash your 'funny bone' and the pain shoots down your arm and through your fingers, then back to your elbow, rebounding back and forth till you want to cry.  That doesn't last long, though (thankfully).
Most of what I feel goes back and forth from being "aware" of my joints, to the "ache", to the "echo of pain". 
If I use the joint more often, it usually hurts more- but not always.  If the weather is changing, like storms coming, it will hurt more- but not always.  It does not always need a trigger to hurt and it changes throughout the day.  Some days are worse than others, some weeks are worse than others.
One thing I have noticed, is that it gets worse over time- it doesn't ever get really better after it gets bad, not for long anyway- but I haven't started treatment yet.  I hope that will turn it arround.
Does this sound like what you feel?


Christina
 
When you cannot stand, on whom do you lean?


Posted By : Ipso - 2/25/2008 6:47 PM
The pain is extensive, often excruciating...movement is often impossible, although non-movement makes it worse. Do you know what it feels like to get a kink in your neck? Imagine what it would be like to be unable to get rid of that kink. To be unable to move your neck to get rid of the pain or ease the muscles. That is arthritis in a nutshell. Except that it can be anywhere...spine, neck, hips...etc.
It burns with a hot fiery poker which runs along the affected bones, while the muscles spasm in order to attempt to relieve the imbalance which occurs from the twisting of bone into unnatural shapes...anyway that has been my experience.
My son's is worse.

Posted By : Ducky - 2/28/2008 3:06 PM
Hey indigo.. as you can see.. arthritis takes many forms when it comes to pain.. it effects us all differently.. and due to everyone having different pain tolerances, we feel it differently.. how are you doing?


Moderator of Arthritis Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs/Migraines/Hypertension
Current Meds -  Enbrel/Prilosec/Synthroid/Nitrofurantoin/Midrin/HYZAAR
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


Posted By : indigosunrise - 3/2/2008 8:57 AM

Thanks for your replies everyone! 

I still get the shooting pains and if I sit too long, when I try to move, I am stiff and it is painful.  It is hard to get moving again, to be honest.  I feel like my grandmother could probably get up and get moving quicker than I could!  Can anyone relate to feeling that way?

I have not been diagnosed with arthritis but my doctor does think I have the beginnings of Crohn's Disease and arthritis is one of the things that can happen with it.

Also on my dad's side, many relatives have RA.  My grandfather had it, a couple of my uncles are getting it, my cousin has had it since she was 3. 

It is weird--I went from being completely healthy most all of my life to having problems that started almost a year ago. 

 


Posted By : sjkly - 3/2/2008 3:07 PM
indigo-
The stiffness upon rising after sleeping or after sitting for a while is so common there is a name for it-the gell phenomonon. I always describe it by saying my knees feel like a fire door that has been forced open to fast. I have to pause and let the preasure equalize before I can finish opening my knee.
For me the paquenil and sulindac help a lot with that aspect of the disease.
Sj

Posted By : clam - 5/21/2008 5:41 PM
I'm glad i found this site because i've been thinking i must be losing my mind talking to doctors about my pain.    nothing specific hurts but i hurt ALL OVER my body; yes, someplaces more than others , but there is not a single spot on my body that doesn't hurt.   Try explaining that to a doctor
 
and yes, i feel like i've been hit with a mac truck and specifically when a storm front is coming in, and it might be 3 days before it gets here, and yep, i hurt all 3 days.
 
I did have the RA factor test - negative.    Is it possible i could have RA and it not show up?    i have no disfiguring hands/feet/fingers/toes but i do know i have osteoarthritis in my fingers and arthritis in my big toe joint which was so bad i had to have surgery on the ball joint and the lower mtetatarsal.    
 
glad i found this site.    bye, have a pain free day!

Posted By : yalinda - 5/21/2008 5:47 PM
hi clam- dont know if your still on line but yes many of us have RA and no rafactor. you need to have other tests to confirm a dx. for me i had an elevated ana creative protein and sed rate. plus cbc was off and other things. anyway these test show the inflammation in your system and for me xrays finished the confirmation showing my synovium either inflammed or deteriated.

we are glad you found us too! there are all tupes of arthritis on this site and many peps just like you who take sometime months or even years to get properly diagnosed... do you have a rhuemmy?

keep us posted yally

Posted By : yalinda - 5/21/2008 5:51 PM
hi clam- dont know if your still on line but yes many of us have RA and no rafactor. you need to have other tests to confirm a dx. for me i had an elevated ana creative protein and sed rate. plus cbc was off and other things. anyway these test show the inflammation in your system and for me xrays finished the confirmation showing my synovium either inflammed or deteriated.

we are glad you found us too! there are all tupes of arthritis on this site and many peps just like you who take sometime months or even years to get properly diagnosed... do you have a rhuemmy?

keep us posted yally

Posted By : IsabellesMommy - 5/22/2008 8:08 AM
Mine is a lot like Morticia's.  I am actually relieved to see that the pain does move around throughout the day!  I thought I was nuts! (or more nuts than normal!)

Posted By : clam - 5/23/2008 4:55 PM
HI YALINDA, yes i do have a rheummy now. i had graves' disease which was a thyroid disease and just had thyroidectomy in october '07. feeling great since that came out. years prior (10yrs ago) when i was first dx'd with arthritis, i had high sed rate but nothing showed up in the arthritis tests and definitely neg on the RA factor. now that i'm 10yrs older, the sed rate is higher than before, CRP is elevated and so i'm seeing same rhem doc i saw before next week for further tests.

i'm using neuprin 2tabs 2xdaily and that seems to help quite a bit. i am absolutely amazed on how that arthritis pain can be all over your body one day, and then next day just in hips and shoulders and one knee like mine is today. well i'm glad now to know this is not unusual. and now that the storm that hit arizona has finally hit, suddenly i have only minimal pain; last 3 days however i was absolutely miserable.

thanks everyone, have a great memorial day weekend. stay SAFE!

Posted By : Lonthemove - 5/28/2008 8:50 AM
hi, clam!  I'm new to this site and found it by typing in Baromatric Pressure.  I have a lot of the same pain that you have and it seems to vary according to the weather.  I have days when I don't want to move and cannot explain this hurt to anyone but the feeling of being hit by a MAC truck seems to discribe it better than anything else.  The some days are specific areas that hurt.  Not a definite hurt but an achy, flu type of feeling.  I am going to a massage therapist who does a Deep Muscle Massage and it hurts like h... but after a few days I am up and going as strong as I can expect.  But I have to take muscle relaxers to get the best relief 1 hr before the massage.  NO ONE understands why one day I am fine (moving around,etc) and the next day I cannot move freely.  They think I am making this up.  I am so glad I found others that are experincing the same as me and in the same breath am sorry that others have my same pain.  I haven't spoken to a dr because I knew I can't explain this and felt sort of silly not being able to explain my pain.  I had a really bad fall in high school and a blamed this for my problems.  But, this additional pain just strarted about a year ago. sad confused!

Posted By : shersmam - 9/11/2009 12:00 PM
Mine feels like a flu ache. Would that be normal?

Posted By : okaygirl - 2/5/2010 7:49 PM
I recently had meniscus surgery and my pain is worse (altho different) than before, they say I have moderate arthritis in my knee. If this is moderate, God help anyone who have severe. I asked the question was does arthritis pain feel like because I keep thinking this pain must be coming from a post surgery problem. Once I read your posts, I guess what I am feeling is arthritis. Sometimes it aches, but sometimes it a shooting pain and always I am unable to climb stairs without a great deal of pain (actually, more pain going down the stairs).
The main thing I can't figure out is, should I be stretching and bending more to help it, becasue as someone noted, the more you use it it seems to hurt, not help.

Posted By : Nana Monster - 2/6/2010 5:33 PM
I've had arthritis since I was 7. It was in my feet then and slowly and totally took over most joints. Some joints feel hot and achy and
others if they get touched they would discintrigate. The barometric pressure is a definate factor is what I have as right now I have
a major flare with the storm front below us in VA and DC. It's effected me since forever. I also have fibro so it's kinda like double
your pleasure, double your pain?!? I've gotten off all dr drugs except darvacet when nothing else helps by using herbals. Last year I
said I've had enough and stopped going to the dr and went to the herbal shop and got a body builder who got me on some new
stuff. After 47 years of pain I said enough. I found my Dad was about 7 when he got it and my grandaughter showed signs at 9,
a nephew was diagnosed at 2 and another was a teenager. Unfortunately, this disease does not discriminate with the ages of
it's victims.

Posted By : Alicat - 2/7/2010 4:47 PM

Hi Indigo,

I remember exactly when my pain started and it was a very sharp pain on the top of my foot.   Then it moved to my leg and I could hardly get out of bed one morning, thinking I had a blood clot or something.     For awhile it moved around and there are days I do feel achey all over but for the most part mine has affected me mostly in my knees, feet and hands.   Sometimes my shoulders ache too.    Since I've been on the Humira have had a lot less pain especially in my knees and ankles.    I had quite a bit of deformity in my right hand before I started on the Humira so that is really my worse spot.  Even that is tolerable with the Humira.     It's a strange disease for sure and I think a lot of things play into it - the weather and stress are two t hings that affect me the most.

Hope you find some medication that helps.

Alicatturn


psoriatic arthritis, peripheal artery disease


Posted By : Hurtfull - 7/1/2010 12:35 AM
Hi...I don't know if I have arthritis or not, but a few people told me the symptoms I have may be of arthritis. I'm glad I found this site, maybe someone can help me with a clarification. Sometimes it feels like I have knots in my back and all of a sudden that part will start hurting as if something sharp is hitting me in the back. Pretty much a sharp pain in the back and then I'l sort of feel a burning sensation down my left arm, sometime as if it maybe numb but it's not. And then the pain going down begings to format into something sharper. It really scares me, because from whatever knowledge I have of symptoms like that, I think heart attack or stroke. And then I freak out. I don't feel weakness but it is very uncomfortable from the back through to the arm. I think when im in the A/C or my arms are exposed to wind, I feel it more. But my first reaction is heart attack. I have felt this a few times, sometimes im told it's arthritis and other times im told it's anxiety. But I get scared and think Heart problems, cause it sounds kind of similar. Am I just crazy or has someone else felt this too. And if not do you guys think what I feel is arthritis. It kinda worsens with computer use or lack of sleep. It's just frustrating, cause I am always been very healthy and am now encountering the weirdest pains and it's all so frustrating for me to battle and figure out. I usually take tylenol and sometimes massage my back and arms with vicks. But other days I cry in panick that could I be having a heart attack and my family thinks I over react. Those sharp pains that start in the back and then shoot down ur arm is very scary. Any help????
 
Thank You

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Post Edited (Kathryn Obraien) : 5/23/2011 7:11:28 AM (GMT-6)


Posted By : De La Rosa - 5/25/2011 5:27 PM
Mine started out that way, aching a lot of the time. I also had shooting pains, that were gone quickly. My doctors would scratch their heads and try to look sympathetic. I had a few swollen joints that didn't hurt real bad. It got worse, quite fast. Now, as someone else mentioned, the aching is constant and usually feels like you either have the flu or were hit by a truck. I actually think the malaise is worse than the joint pain. At least with the joint pain you can try to go easy on the joint, but the achiness all over seems to never stop.
April Rose

Posted By : couchtater - 5/25/2011 7:35 PM
At times my toes get the feeling like someone stomped on them a minute ago.
My elbows will have a constant ache that gets worse if something touches them.
My hands will puffy up at the knuckles and they hurt if something touches them. At times I can't hold a pen and write neatly.
I have attacks of knee pain and back pain.
Then the crippling fatigue that brings shaking and trembling muscles with no warning whatsoever.
Let's not forget the dull headaches and sore neck from swollen glands. :(
I never know when it's going to hit me with one or more of these aggrevations.
Joy

Posted By : too young..too old - 5/25/2011 9:11 PM
Hurtful, I started out similar to what you are describing. Ill admit that heartattack never crossed my mind. I grew up with a disabled mother, so I instantly thought heredity. After my diagnosis, I began Methotrexate. I was not getting any relief. It was about month 4 when I got an upper respitory infection. I had family staying with me for a week due to it being Labor Day. The first night that I was home alone, I woke up with this intense chest pain that led me to call my mother in law immediately. While she was on her way to pick me up and take me to the ER, more symptoms became apparent. I was sweating profusely, freezing, running a low fever, shaking, couldnt sit, couldnt lay, couldnt pace or stand. I found the most comfort laying on the bathroom floor rocking back and forth. I felt like i needed to keep moving, but moving hurt worse. I was so short of breathe that when I called my mother in law, all I could say was "cant breathe...something wrong...come get me". I was scared sh**less. I thought about calling 911, but she was already on the way. Right before she arrived, I stood up to make my way to the front door to unlock it. On may way back to the bathroom, I vomited all over. I immediately began feeling better. We did not go to the ER because I thought I was crazy and I thought they would think I was crazy. She slept on my couch and I watched TV all night in my room. I couldnt sleep. Went to the Dr. the next morning and after many tests, found out it was my stomach. Either an ulcer or something along those lines. Needless to say, I am now on Nexium and was immediatly taken off of the Indocin that was believed to cause this event. I wouldnt wish that night to occur to anyone...even my absolute worst enemy. That night, I thought I was having a heart attack. It stills seem so vivid.
 
lol. I hope I can sleep tonight!
 
Someone mentioned that it is difficult to describe the way this feels. I also have a hard time explaining it. I do have to say that yall have done a great job. So much so that I sent this thread to my husband to read so he can better understand how I feel. I find it difficult to explain the way it feels to yall, on this forum, and yall understand what I would be explaining, as yall feel it too.
 
Wishing everyone a low pain night.
Dx: Ankylosing Spondylitis w/a Rheumatoid Variant, Chronic Migraines, Premature Ovarian Failure, Stomach Ulcers
Rx: Humira 40mg injection every week, Lortab, Mobic, Prednisone, Nexium, Flexeril, Folic Acid, Phenergan, Lexapro, Lo/ovral, Maxalt MLT, Doxepin

Posted By : Lu2011 - 5/26/2011 10:14 AM
indigosunrise said...

I still get the shooting pains and if I sit too long, when I try to move, I am stiff and it is painful.  It is hard to get moving again, to be honest.  I feel like my grandmother could probably get up and get moving quicker than I could!  Can anyone relate to feeling that way?

 

What you describe is exactly how I feel.  I have inflammation of the SI joints (or sacroiliitiis...or arthitis of the SI joints).  When it's shooting pain, I call it a flare up and was told it's the piriformis muscle inflammed hitting the sciatic nerve.  It's often triggered by sitting too long, or the opposite side of walking or exercising (which I can't do anymore).  I had colitis, and was also told htere's a link to joint issues. 
To help, I take celebrex when needed (not sure if you can take that though), take tumeric and omega-3 daily, try not to stand, sit or move too much at once (i.e. switch from one to the other).  i also just got fitted for orthodics and am starting physio.
So I know how you feel.

Ulcerative Colitis 1988, had colon removed and now jpouch
Now sufer from sacroiliitis and inflammation of piriformis muscle causing sciatica like pain during flare ups. Joints very bad...take celebrex when needed.

Posted By : jermyjerms - 8/8/2011 5:30 PM
I'll chime in with my experience with rheumatoid arthritis in case it helps others, too. I first had junior RA at age 10 in my right knee, around the year 1990. I'm not aware of the medical options then, but I do remember having an arthroscopy performed, and then my parents were told the only treatment would be physical therapy and monitoring the swelling. A year later, it vanished and the doctors asked for blood samples to see if my body could naturally counteract the condition. Apparently not. Both my knees severely swelled at age 24, and I've been dealing with RA for five years now. The pain is most severe when I lie flat with my legs stretched, or if I stand straight up for 20 minutes or more - then it feels like my legs are breaking in two. There's no pain at all when I go up and down steps, so I'm trying to incorporate moments to step up and down on something when I need to stand for long periods. Otherwise, the pain is a constant burning, and often that "mid crack" sensation Morticia32 mentioned, as if my knees are starting to dislocate. I constantly worry I'm damaging the skeletal structure of my legs, but my recent X-rays show no damage. I was taking Humira, but stopped because the thought of developing cancer wouldn't leave my mind (my grandfather died of leukemia before I was born, and I know such cases with Humira are rare). I hope this helps. I'm the only person in my family with RA, and I joke that I have a superhuman immune system and the rest of my physiological chemistry is still catching up to the process of evolution until balance is restored. You can use that if you wish.

Posted By : Crackles23 - 8/9/2011 6:01 PM
My experience with arthritis before it was treated felt like a jarring feeling in my back, kind of like someone angle grinding through my spine.
Even though sometimes I still feel like that early in the mornings and my upper back hurts most of the time now. My problem is that if I sleep without any pain which is rare, I sleep way too long because I rely on the pain to get me up most of the time.
It sometimes has it's advantages, although when thing's like sciatica kick in that's when it really hurts and get a severe shooting pain feeling.
I'm not exactly sure what RA feels like but would probably imagine much the same thing, just in different location I would guess.
Lets just say, without treatment and medication, it pretty much makes life very very hard to live.

I'm quite lucky that mine has slowed in progress from being treated so early, some people go on for many years without a diagnosis and have to take a mountain of medications.
Diagnosis - Ankylosing Spondilitis and (still to come, ill find something :P)
Meds - Celebrex 200mg Once daily - Contains Celecoxib.

Melbourne, Australia

Posted By : Texas Lady - 8/20/2011 6:12 PM
I was a very healthy person until my mid 30's about 24 years ago. In the early years I felt like I had the flu and the aching was excruciating. These spells got closer together until I was having them weekly. The first time I fell due to a joint giving way was also mid 30's. My rheumatoid arthritis first diagnosed in my mid 40's. This diag confirmed when I had to have both knees replaced due to severe damage. ( should have replaced about 3 years sooner.) I also have osteoarthritis. Confirmed in spine MRI's. Have degenerate spine disease - lumbar disk rupture with removal of some disk and bone - cervical disk ruptured and replaced. I also have fibromyalgia. Lumbar surgery is a partial failure. I am no longer able to work for past 2 years. However, due to exercise, meds, and high pain threshold, I have a wonderful life. Good days are always followed by 2 to 5 really bad days. On good days I do as much of things I want to do as possible. It is worth a couple of bad days to dance at my sons wedding, or now years later play with my grandchildren, or go down a few water slides, or walk my walker all over a festival ( taking a lot of food breaks LOL). if you are going on a cruise take a scooter :). Out of 7 days I only spent 1 1/2 day in bed. I have been taking same meds for years: methotrexate, prednisone, cyclobenzaprine, lyrica, percoset plus tummy meds and sleeping pill prn., and supplements like calcium with d, potassium, folic acid, etc. One of my secrets is spreading meds over 24 hours; the other is my soaking bath tub and a good book while soaking. I have a rheumatologist, and a spine Dr. / pain clinic for over ten years. I live a happy life in spite my disabilities. Hobbies, maintaining rehab exercise, and a wonderful marriage are my secrets. If you feel so bad u need to go to bed - do it, BUT only for one to three days. Longer and you will lose this battle. I am also a Christian, and this is my biggest secret for rebounding after surgeries and a few bad bouts with all of this. I wish all of you great mental ability, love, and happy lives. I am proof that it is possible. I hated retiring, but have learned to measure my success on a daily basis. Cooking a great meal is a victory.

Posted By : gypsysgrounded - 8/20/2011 10:07 PM
MY pain is very similar to christina with shooting pain almost like a mix of adrenaline shock meets electrical shock hers in arm ...mine in lower calf to ankle and all over foot. my metatarsal bones =small bones on top of foot feel like they want to snap in two when i stand. ,and my feet dont want to bend at all when i walk so i feel very unatractive & flat footed bull in a china cabinet. I to am waiting patiently to see a rheumy and get on meds.                                                                       

Posted By : jperkin4 - 8/22/2011 9:33 AM
I have Crohn's which is accompanied by severe arthritis. I've been seeing a Rheumy since I was 20, about 20 years ago now. Hard to believe I've been living with this for that long. I can't really remember what I felt like before it.

My arthritis also jumps around as others have described. I tend to get a more dull ache with stiffness in the bigger joints. My knees are pretty bad and get really swollen, but the pain is worse in the smaller joints. My fingers, ankles and elbows tend to get the shooting type of pain. Those tend to be my bad days, when it decides to attack those joints. I got off of Prednisone a few months ago as I was putting on too much weight. Happy to report that I've lost 30lbs since then and my face no longer looks like a balloon. The pain is worse though, I'm hoping if I lose more it will take some stress of the joints and the pain will be better.

Posted By : Texas Lady - 8/22/2011 11:54 AM
Hello jperkin4,
I have had IBS since I was in grade school. Once they upped it to Crohn's, and then changed it again with the definite diagnosis of all the arthritis' - rheumatoid being primary. I was weaned down to 5 mg of Prednisone a day many years ago. How much prednisone were you taking every day, and how long were you taking it. I am wondering if I stop the 5 mg a day, if my weight will drop. I get fussed at by my husband because he doesn't think I eat enough. Truthfully, I just am not hungry until I smell food, but I fill up easily. I exercise each day - low impact rehab exercises. MY weight needs to come down, but it just is not happening.
My pain ranges from aching to knife sharp also. Living down here near the water, the humidity and barometric pressure are my worst enemies.

Posted By : jperkin4 - 8/22/2011 5:59 PM
I've had the IBS since I was a kid as well. I had some embarrasing issues when I was a kid. It wasn't until my knee sweeled up to the size of a canteloupe that I was diagnosed with Crohns. I was 20 at the time. I'm 41 now. It definitely explained why I had such bowel issues, but noone knew about these things 30 years ago.
 
I was on prednisone for the better part of 5 years. For the first few years it ws on an as needed basis, I wsa allowed 15 mg a day. I probably averaged taking about 15 a week for the first year or two. At that point I hit a wall and I seemd to have nothing but bad days. My rheumy put me on 15 mg a day every day. I stayed on that for 3+ years until this past May. I had just the opposite reaction to the steroids, I was hungry all the time. No matter what I ate, I was hungry a few hours later. I've got a much more normal appetite now.
 
 I'm a big guy and have been for a while, can't blame it all on the prednisone or the arthritis but they sure didn't help. I was a hyper active kid and now I'm more of a couch potato. Hard to be super active when every step you take hurts.  I'm 6'2 and 250 now, I got up to 280lbs when I told my Rheumy I had to get off it. He said OK if I could take the pain.. The pain has gotten worse, but at least I'm heading in the right direction.
 
 

Posted By : Texas Lady - 8/22/2011 9:50 PM
Thank you for responding. I remember being in the emergency room with my knee swollen like that in my 30's. I thought I had water on the knee. The doctor told me it was arthritic inflamation. He also picked up my high heels and dumped them in the garbage. I fished them out and continued to wear them (bad girl). No way I could walk in those 4" stilts any more LOL. I am going to talk to my Rheumatologist about getting off of the prednisone and see if my weight comes down. I weigh 172, and need to lose 42 lbs. I carry my weight better than most, and my doctors always say I am okay at my weight. I just know if I got back down to 130, that I might be able to put off hip replacements for a few years. I wont let it get as bad as my knees were before I had them replaced. The bottom of my femurs was "pudding" and I had zero meniscus when I finally did it. I was scared of that surgery - the back surgeries were nothing compared to the knees - very painful. I had them both replaced at the same time, and at 6 weeks I almost had a normal range of motion. I did my own rehab at home - twice a day - religiously. Cried through them for weeks. But, the results were fabulous - and my doctors were ecstatic! Thanks again for your response.

Posted By : mjgb8 - 10/12/2011 8:09 AM
I haven't been to a Dr yet I'm waiting for our new insurance to take affect. But, I can't stand the pain and I was wondering if these symptoms sound like RA.

It started in my fingers. If I were to touch something against the outside of my thumb (for example) The pain is just awful. It feels like someone is just tearing my thumb out of place. The hot stabbing pain is so intense all I can do is grab the finger hunch over and cry. It is now affecting both wrists, hands and knees. The achy pain is always there and my hands feel like they are all swollen up. Can it come out of nowhere? Last month I was fine and now it seems to be taking over my body! Am I going insane or is this real?????? Thank you so much for any insight you can give me!

Posted By : Nanarita - 4/3/2012 5:37 PM
I think I have had RA pain for over 10 years, but just this month have shown a RF factor of 7.99 & have been diagnosed with RA. I can't get into rheumatologist 4 months. My regular DR put me methotrexate, but I am in so much pain. Any thoughts or suggestions??

Posted By : shanbr - 4/5/2012 8:16 PM
my pain is different by how much fluid is there. Bone on bone gives me a horrible feeling like a butcher knife is stuck in my knees, other times i have this shooting pain like someone has an ice pic and is stabbing me over and over in the same spot while other times i just feel like a tree fell in my leg and won't get off, a heavy pressure pain.

Posted By : pamir - 1/21/2013 12:59 PM
shersmam

you said it feels like the flu ache. That is what I feel like when my vit D is low. I am constantly very low (normal is above 30 and once upon a time I was at 7 now am in the low 20's) When my D is low I truly feel like I have the flu. Maybe try taking some vitamin D and see if it helps that part at least.

Pamir

Posted By : pamir - 1/21/2013 1:08 PM
For me I feel like my hands are weak like the grip is weak I can close my hands but can not squeeze them, my hands swell at night and I feel like I need to crack my knuckles (I don't of course) not half cracked but like I need to crack them to release the pressure.

Does anyone else have multiple locations of tendonitis? or what they say is tendonitis? I also am finding during this flare up (currently) I am very tired.

I am diabetic so can not do the steroids as it sends my sugars through the roof. a few years ago they checked my blood and I was neg at that time but I know my doctor is planning on testing for it again soon. Writing with a pen or pencil is darn near impossible and causes great pain, so I prefer to type. The shooting pains mentioned I had not thought of but I do have those so at least now I know what they are.

Thanks all
Pamir

Posted By : Chartreux - 1/21/2013 3:33 PM
pamir, nice to meet you hun, However, you have responded to an older thread and I'm not sure some of these people are here anymore, sorry..Please if you would start a new thread introduce yourself, as we'd like to meet you and give you a better welcome on here this is a good forum, so welcome.
I find that most of us here do have a vitamin D deffincey, I also have low D levels and that can be a part of it, but maybe have your Iron levels checked as well as low iron can cause tiredness as well...
Many well wishes and hope you post a new thread...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Posted By : jeanneac - 1/27/2013 6:39 PM
It sounds like for some of us, the pain is similar and others not. My joint pain started when I had colitis. At first it was in my knees and feet but then my hands and shoulders. It makes me feel achy all over and very fatigued, sometimes feverish. When it first came on me a few years ago my ANA and sed rate were positive but now the ANA is negative. The sed rate and CRP are still high. Mine comes and goes like the wind. I can be in remission for a few weeks then it comes back. I keep hoping one day it will go away and not come back. lol....... Sometimes it will lift and I will feel like I did years ago and it taunts me for sure. But, so far, it always comes back.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r

Posted By : JimK - 5/27/2013 10:49 AM
I often feel a general malaise . I always have burning pain in my wrists, fingers, feet and ankles. I also have a 4 CM mass in my lung not sure yet if it is RA lung or something worse. I just had
a Cat scan the other day. I got the hospital report but have not talked to my GP. I also have symptom of sojourns burning eyes
and dry mouth. I just got blood work back my c-active protein
was 3.78 very high and sed rate was 46. I just went off prednisone which elevated some of the pain. I am on Arava and sulfasalazine and don’t think it working. I work out 6 days a week doing a spinning class and other things which I feel really helps me cope with the pain, however, I am lucky because I have been doing that particular work out routine for years so, I have no trouble continuing it. Well I got that off my chest. later

Posted By : jeanneac - 5/27/2013 1:38 PM
My sed rate and crp are similar to yours jim.... I sure wish I had the energy to work out. They have to find something that I can take long term besides prednisone. Prednisone and tramdol are helping me through this current flare, 10 mg of pred isn't much but it sure helps. I can get my household chores done, I have energy to clean and might have energy to even work out a bit. It's heaven. I would like ( i think) a definitive diagnosis though, but if it's RA, I probably won't want it, if you all know what I mean. Answers are good sometimes b/c you know what you are dealing with. It might be a relief. Gotta go get the MRI on my hands in the next few weeks to see what that shows. I am thinking it might not be RA even though the doc at mayo thinks so. I think it's some other connective tissue dz. Whatever it is, it responds to prednisone, so it has to be auto immune or inflammatory. It doesn't respond to regular doses of motrin or ibuprofen.

Posted By : spammy - 5/28/2013 3:18 AM
many of my knuckles also feel like they need to be cracked. i accidentally cracked one yesterday out of habit. i immediately had a searing pain of fire and razor blades burning in my hand! i'm still adjusting to this new diagnosis and that taught me a quick lesson.

Posted By : RNwithRA - 5/29/2013 1:28 PM
I can totally relate to having trouble getting moving. I'm 44 and was running 10 miles a day less than a year ago. Now, my grandmother could kick my butt getting going in the morning...or after sitting for even 30 minutes...except she's dead from complications of RA.

I find the knee pain crucifying, personally. Explosive and just plain awful. It's like your worst sprained ankle (or knee) times 10, except it's in several joints. And you can add to that feeling like a bad case of the flu. My feet usually just burn (like they are on fire) or ache. Same with my hands. Elbows are just stiff without any pain.

I guess the trick is to keep moving. Lol

Posted By : Carrot top - 2/1/2017 8:33 AM
Hi yalinda and clam I just got on and I read the text and it hit home I have had osteoporosis and Rhe for 20 some years and the doctor always laughed and asked if I really had it because I was doing so great with my infusion pain was almost nothing but now I hurt all over and not just my joints. I mean all over. It hurts to touch my skin. Sometimes when my husband scratches my back it hurts too bad. The doctor doesn't get what I'm trying to say. It's really upsetting So they say don't do this or that but I'm not one to sit and do nothing I'm one that keeps going if I stop I hurt and if I work it hurts I've had 6 back surgeries and shoulder and knee and albow and I'm still going Thanks for listening it really felt great to talk to someone who understands. Carrottop

Posted By : jeanneac - 2/28/2017 8:06 AM
Back in the day when Vioxx was still on the market, it made me feel like a new person! But, it's off the market and I am allergic to Celebrex.
Mine started with swollen achy fingers, it was sausage like swelling. Also my toes and feet hurt, shoulders, hips and knees. I felt extremely tired. I also have Sjogrens. I don't seem to have any "disfigured joints". I am RF negative but had a positive ANA and sed rate.
Sometimes it is an achy pain all over, sometimes it's specific joints. Right now my knees are killing me. Mine can move from one site to the other and it is also very sensitive to the barometric pressure/storms. The sunlight can also make me flare.
It really helped so much to read others descriptions here. Nobody else understands.
Sjogrens syndrome 2/15 via lip biopsy:depression, fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, metformin, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, alpha lipoic acid.

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