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Posted By : Mustang2 - 4/15/2017 5:44 PM
Hi,

New here. Just diagnosed after 5 years of not knowing what was causing my inflammation and pain. about to start injectable methotrexate but have to wait as blood levels were not good.
My hands and feet are the worst. I work with infants so changing diapers are the worst with trying to unfasten the diapers and then snapping all those snaps on the darn clothes!! I am also a former community band member which I've had to quit because of hands.
I'm excited to share with others and learn a lot.

Posted By : BadDay - 4/16/2017 1:34 AM
Hi Mustang2 Welcome to the Site Hope you get a lot of information & support here
it must be hard trying to keep your job when it is a physical one
I know I tried to keep working but eventually had to stop as I would work 1 day but need 3 to recuperate
once you can get on treatment it will help you
can you get a splint or hand support to help meantime ?
have you been to see an occupational therapist they can offer a lot of handy hints
FORUM MODERATOR Rheumatoid Arthritis for 30Yrs. Asthma,Fibromyalgia,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Disc Bulges, Diabetes,Heart SVT & AF, Sleep apnoea,Nocturnal Respiratory Failure,Panic Attacks,Anxiety
on; Methotrexate , Arava , Endone, Targin 20mg (oxycontin) , Prednisone, Metforman(Diabex) , Tambocor. Oxygen & Cpap, Prolia Injection ,Lyrica

Posted By : Mustang2 - 4/16/2017 4:14 PM
Hi BadDay,
Yes, it is hard to keep working and I am exhausted by the time I get home each night. Is fatigue part of RA too?
I do have a splint and compression gloves that help a little but I can't really wear them at work because I am constantly washing hands from feeding, diapering, etc. I just completed 3 months of occupational therapy for my hands and 6 weeks for my neck.
Thanks for the welcome. Hope today is a good day for you!

Posted By : celebrate life - 4/17/2017 10:21 PM
Hi Mustang. Welcome to the HW RA forum. I'm sorry it took so long for you to get diagnosed, but hopefully you have a good medical team and things will get better for you. Fatigue is most definitely a symptom of RA. Hard to believe, but exercise and physical activity helps. It sounds like your job keeps you pretty active, though. When I was diagnosed opening a zip lock gave me fits. I can't imagine bending over and dealing with wiggly babies while trying to put together those blasted little snaps! shakehead
I hope the mtx works for you. If you can avoid prednisone, you will be fortunate. What was the problem with your blood work? Is plaquenil an option?
Keep us posted and good luck with your treatments.
Beth

Posted By : Mustang2 - 4/19/2017 5:33 PM
Hi celebrate life,
I am glad to hear that fatigue is a part of RA. It gives me hope that it will get better.
Yes, zip loc bags are horrible as are opening cereal bags! I don't usually snap the babies onesies until it's close to them going home.
I was on mtx (pills) and prednisone a couple years ago then Arava. I will NOT go back on prednisone. It took me a year and a half to get off that horrible drug. I had quit all treatment for a year because I thought I had been misdiagnosed. Went to a different rheumy and he feels i in fact do have RA. Plaquenil is not an option due to allergy but he want to start me on a biological in a couple weeks.
Thanks for your response.

Posted By : celebrate life - 4/21/2017 11:06 PM
Mustang,
I do hope the biologic works for you. They gave me back my life. I think most of us have had the best success with humira. It failed for me after five wonderful years. Now I'm on enbril and also back to mtx and prednisone sad
Beth

Posted By : Alice22 - 4/22/2017 11:23 AM
Hi Mustang and welcome,

I sympathize with you. When I first got RA I also had terrible problems with my feet and hands. I was in graduate school and had trouble walking to my classes, taking notes, typing, etc. I remember one winter day not being able to turn the key in my car door to unlock it and having to ask a stranger to help me. But things will get better once your medication begins working. I got on Enbrel a couple of months after being diagnosed and that virtually erased all of my symptoms. Now I've been on remicade for 12 years and that has also been a lifesaver, though with the passage of time it isn't quite as effective as it was in the beginning, but remembering RA without any medication, it's still pretty darn good. If the methotrexate doesn't work well please consider one of these other biologics - many of us have benefitted greatly from them. Also I found that celebrex can help residual pain and inflammation if necessary. And yes, RA can cause fatigue which can be just as bad as the joint pain. The key is to get on the right medication; if one isn't working well, don't wait too long to try another.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Posted By : Mustang2 - 4/22/2017 7:22 PM
At my next visit my rheumy wants to add either Humira, Enbrel or Remicade. I don't which one he is thinking. Do they all work similarly? Can I do both injections at the same time?

Posted By : Alice22 - 4/22/2017 10:53 PM
It seems to be very individual. Some people respond well to one and others to something else. I personally had success with Enbrel and Remicade, but not with Humira. But others like Humira. If one doesn't work don't get discouraged, try something else. Not sure about getting methotrexate at the same time as another biologic but perhaps someone else will be able to answer that.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Use peppermint oil capsules and Bentyl which help during a flare and with IBS symptoms.

Posted By : Don_D - 4/23/2017 4:53 PM
Hi Mustang and welcome aboard. Biologics work in a similar manner to each other like how any car provides transportation but individual vehicles are different if that makes sense.

I was on Enbrel for 12 years and had great results from it, I have been on almost all the others and Orencia helped but not enough. Biologics can take a while to become effective also. I am on Actemra now and it took months but it is definitely helping with inflammation. I also take Methotrexate injections as well.

I take both my injections on the same day. They do cause some additional fatigue for me so the next few days afterward are a struggle but my fatigue is also pretty bad these days. It hasn't always been like this however and for many years it was not bad at all.

I was diagnosed when I was 26 and had been suffering with RA for about 3 years at that point. I continued working for another 20+ years before I became too sick to continue my career. RA affects each of us differently however just like we all dont have the same results on different medications. I just try to make the best of each day and take what comes as it comes.

Glad you found the forums here, it is a great place with lots of people who have been right where you are now.

Take care! -Don

Posted By : Mustang2 - 4/23/2017 5:43 PM
Thank you for your input Don. Right now the fatigue is the worst part for me. I'm curious what my rheumy will prescribe next.

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