The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=13&m=3882201
Posted By : kellyinCali - 7/14/2017 7:23 PM
Last night I noticed a tightness and itchiness on my shoulder but did not "see" anything. Today, after sleeping all day, the rash is noticeable. Right now, it is a patch - pink, small bumps.

Has anybody experienced this rash? I will not take today's dosage but sadly, this drug immediately helped my ANXIETY. We are not sure if I am Bipolar II but it helped my anxiety almost immediately.

I posted on the Depression Forum that I am going through my deepest and longest depression. I am in an area where there isn't much support available to me. I'm isolated and the idea of living like this along with my other problems is scary. What kind of life is this?

Posted By : straydog - 7/14/2017 9:22 PM
Kelly, i looked up your medication on Drugs.com & a rash is listed as a potential side effect. From what you have described this does not sound like an allergic reaction. I have had several allergic reactions & would get raised hives on my entire body & they would itch.

I would call the drs office Monday & speak to the nurse so she can talk to your dr. I hope this rash is temporary since you feel it may be helping you.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : kellyinCali - 7/14/2017 11:28 PM
Thank you. It's spreading. Itchy raised bumps like hives. Getting redder in the older spots, white and pink in the new spots. I will sleep on it. Unfortunately, tomorrow is Saturday (weekend). I don't know what I will do if it keeps spreading and god forbid it is the Stevens Johnsons Syndrome. My anxiety is high but I'm trying to be patient. I haven't been taking it very long so I stopped it.

Posted By : theHTreturns... - 7/15/2017 1:00 AM
sounds like johnsons, of to the hosp i would be and now. it happens early, if it does, not to be messed with.

Posted By : Diamond20_UK - 7/15/2017 4:15 PM
Hi Kelly,

I was on Lamictal years back for my epilepsy and i broke out in a rash that slowly progressed and in the end took over my face, it starts like a small hives rash and they progress to itching lumps, at first my neuro refused to take them off me but when he saw how badly they progressed i was slowly pulled off them by reducing one tablet monthly as i was taking 5 a day.

I know what your going through and it's a side affect of the drug.

I have manic depression and it takes me over more than i'm out of it plus having bipolar that's where the depression comes from plus your anxiety attacks but refering the Lamictal it's if you want off the drug and if so then speak with your speciaist, otherwise it will get alot worse sorry to say.

Terry
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/ (Bipolar-Manic depression-OCD)

Posted By : kellyinCali - 7/15/2017 8:56 PM
Thank you, H and Diamond.

I feel certain that this is the Lamictal rash. I am scared to death to look up Johnsons on the internet. I know that I don't have a fever or swollen glands and it is not on my lips.

I slept on it and it has not spread. However, it is a PAINFUL rash. I have never had an itchy rash that was so painful to the touch. I think this might be why it got the "BLACK BOX LABEL" by the FDA. This is not a harmless rash...it hurts!

Last night I spent time on the internet looking for ways that they treat it. I stopped the medication immediately. TBH, I am trying to avoid a $75 ER bill as it stopped spreading. Money is a very real consideration for me or I will end up with problems at the end of the month. sad

Posted By : kellyinCali - 7/15/2017 11:14 PM
UPDATE: I called my P-doc cell phone after calling the Nurse Advice Line and discovering that my plan does not provide me with "local" urgent care. I took photos of the rash. Doctor is calling in Prednisone prescription and told me to STOP taking the Lamictal. Sadly, while I am not convinced I am Bipolar (maybe II), this med helped with my anxiety (racing thoughts, impending doom).

Posted By : theHTreturns... - 7/16/2017 12:32 AM
this can be deadly. seriously, expletive the bill!!

Posted By : Diamond20_UK - 7/16/2017 5:00 PM
Hi Kelly,

I do hope your feeling a bit better mate.

I looked up for you on the best things on helping the rash lamictal causes and apparently these help the best...
Benadryl or topical Caladryl but you should also be refered to a dermo.

I know you've stated it helped your bipolar but the drug causing bad issues isn't worth it, i've had bipolar for years they never stated what stage i have, i also asked for help and the answer i got was i'd gone to far and they could'nt help me because i've took a right cocktail of meds for depression etc over the years and nothing as helped, the lot drives you crazy.

I deeply understand how you feeling and anxiety is one bad feeling.

((large hug from me Terry))
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)

Posted By : kellyinCali - 7/17/2017 12:28 AM
Terry, I went to the hospital tonight because today the rash blistered into tiny bumps like pimples. The area is tight and feels like a burn. Benedryl helped the itching but the rash is painful. Woke up just from covers brushing against it. I did not stay past Triage. After hours, one woman had been there for 4 hours. I picked up a pill RX of Prednisone. Did they put you on that? I desperately need a shower but even luke warm is going to hurt like hell. Anything you can share with me about your experience with the rash will be appreciated. If it spreads or is worse tomorrow, I will be going back to the ER. I have terrible medical insurance. I'm terribly depressed. Lamictal immediately calmed my nerves/anxiety but I stopped it immediately. I started taking it on July 9th and got the rash on day 4.

Thank you for the hug.

Posted By : theHTreturns... - 7/17/2017 6:04 AM
should have stayed. but not listen to the turtle. mayo clinic for the yanks says fluid replacement is important, and to use, recommended, vaseline. the dead skin can regrow and your recovery can be months down the road. other meds need to be looked into, as well. you will require antibiotics. it can effect your eyes so be careful there. but, not listen to me. i am useless.

Posted By : UserANONYMOUS - 7/17/2017 8:37 AM
Hey kellyinCali,

Wow... you've been through a lot with this rash.

I hope the meds helps. It can really be irritating and annoying, and make you feel emotional. Please know that we are here for you. Monitor and if you don't feel well, be sure to go to the ER immediately.

Keep us updated on how you are doing.

UA
Moderator - Bipolar

Posted By : Diamond20_UK - 7/17/2017 4:42 PM
kellyinCali said...
Terry, I went to the hospital tonight because today the rash blistered into tiny bumps like pimples. The area is tight and feels like a burn. Benedryl helped the itching but the rash is painful. Woke up just from covers brushing against it. I did not stay past Triage. After hours, one woman had been there for 4 hours. I picked up a pill RX of Prednisone. Did they put you on that? I desperately need a shower but even luke warm is going to hurt like hell. Anything you can share with me about your experience with the rash will be appreciated. If it spreads or is worse tomorrow, I will be going back to the ER. I have terrible medical insurance. I'm terribly depressed. Lamictal immediately calmed my nerves/anxiety but I stopped it immediately. I started taking it on July 9th and got the rash on day 4.

Thank you for the hug.

Hi Kelly, if you don't mind me asking and it's important do you have Lupus or any autoimmune disease which affects your skin regarding taking things to help the rash that could trigger your skin.

Prednisone is a good drug but i refused it in the day unit up the hospital when my kidneys was bad being a steriod drug, as i've had steriods in the past and my body can't handle them...this is the drugs usage.

(It also suppresses the immune system. Prednisone is used as an anti-inflammatory or an immunosuppressant medication. Prednisone treats many different conditions such as allergic disorders, skin conditions, ulcerative colitis, arthritis, lupus, psoriasis, or breathing disorders)


You see the rash is like an allergy reaction which as happened to you and myself, the neuro never gave me nothing to help it and it took weeks to slowly go because of me coming off the drug slowly but if this was me now i would phone or contact the specialist who gave you the drug as they should be able to help you, as i do know steriod creams are good for skin reactions also.

My neuro tried me on Lyrica for my anxiety as it makes me stress badly but they caused nausea and sickness to the stomach so i left well alone.

Terry
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)

Posted By : Diamond20_UK - 7/17/2017 5:03 PM
Kelly just been reading more about the rash and prednisone does help it and apparently steriods are needed,

pleazzzzzzzz get intouch with the specialist.

Massive hug mate smile
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)

Posted By : kellyinCali - 7/17/2017 7:56 PM
Terry, Thank you. The rash has gone from little blisters to larger blisters. Thankfully, it is not spreading. My P-doc called in the Prednisone. I outgrew asthma in my twenties but I had a terrible time with the med. I am taking it but quite nervous about it's side effects now. sad

I had hoped more people who got the rash would respond. I am avoiding showering because it is on my shoulder too and I know it is going to hurt very bad. It hurts just to have the blanket touch it. I don't know how to care for it. When the blisters burst and my skin peels it is going to be ooey gooey and raw (crying now). I've been through so much. I don't understand why. I'm very depressed. I read in former threads that Lamictal was a lifesaver for them. I do believe it helped immediately with my anxiety and eventually could have pulled me out of the depression. I will see P-doc next Monday.

http://www.healingwell.com/community/default.aspx?f=19&m=3881196


EDIT TO ADD: Terry, I did not see your first first post. I did not realize that you got the rash. How did you treat it from start to finish? It doesn't help that I literally cannot wear a bra right now. I guess, fortunately, I can stay home and let it heal more than most people could.

I will ask my doctor if there are creams to put on it. It's very much like a burn. It will get scabby and peely and then be raw underneath. Clothing and showering are going to be painful.

Post Edited (kellyinCali) : 7/17/2017 8:02:41 PM (GMT-6)


Posted By : kellyinCali - 7/17/2017 8:09 PM
theHTreturns... said...
should have stayed. but not listen to the turtle. mayo clinic for the yanks says fluid replacement is important, and to use, recommended, vaseline. the dead skin can regrow and your recovery can be months down the road. other meds need to be looked into, as well. you will require antibiotics. it can effect your eyes so be careful there. but, not listen to me. i am useless.


It's a long story. I have herniated disks and Sciatica and no money. I am sorry that you did not feel listed to. I value your input and to be honest, went to the ER based on your urgency. From what I've learned, only a biopsy can rule out "Steven Johnsons Syndrome." My P-Doc said that if 100 people got the rash, only 1 of them would get SJS. I slept all day today. Having trouble dealing with life in general right now and the Lamictal worked very quickly on my anxiety. I feel sorry for myself that I have to be one of the UNLUCKY ones. sad

Posted By : kellyinCali - 7/17/2017 8:49 PM
UserANONYMOUS said...
Hey kellyinCali,

I hope the meds helps. It can really be irritating and annoying, and make you feel emotional.
Keep us updated on how you are doing.

UA


UA: Are you referring to the Prednisone?

Thank you for your support.

Posted By : kellyinCali - 7/17/2017 8:55 PM
I finally found a little more detailed information differentiating the Lamictal Rash from the "Black Box Label" for Steven Johnsons Syndrome.

So far I fall into the TOP portion. If it spreads or goes anywhere near my face, off to the ER I go and I will INSIST that they biopsy to rule out SJS.

A more common but less serious rash may exhibit the following characteristics:
Fine red spots that are widely spaced, may be itchy but not tender (mine have always been tender/painful)
Not accompanied by fever or flu-like symptoms
Resolves after 10 to 14 days

Rare but potentially serious rashes may exhibit the following characteristics:
Rash accompanied by fever or flu-like symptoms, and loss of appetite
Involves the face, mouth, tongue and genital or anal areas
More prominent in the neck and upper trunk
Merging rash that appear red and swollen (wheal or hives)
Purplish, small spots that are tender to touch
Skin redness and swelling all over the body, with or without skin shedding


Source: Lamictal Rash Symptoms and Treatment (Lamotrigine) - Drugsdb.com http://www.drugsdb.com/rx/lamictal/lamictal-rash/#ixzz4n9BGmr61

Posted By : Diamond20_UK - 7/20/2017 4:46 AM
Hello Kelly,

So sorry i'm late replying back but I've had to rest my legs for a couple of days with swelling.

Hows the prednisone working?..plus I've read more about it and you must keep yourself hydrated and for washing cool water plus I looked on a dermo site and Calamine lotion helps sooth the rash plus any itching.

I could have added info on what you've stated but didn't in case you started panicking but it sounds like yours is not at the burnt state, yours sounds like how mine was.

For your anxiety mention to your GP or specialist Diazepam as I took a right cocktail over the years for depression besides anxiety and they've had me on 5mg daily for years as they help and close down the cell ceptors of the brain working over time by making you sleepy.

I hope your ok and sorry again for being late Terry X
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)

Posted By : Diamond20_UK - 7/20/2017 4:18 PM
Kelly found the info mate regarding meds for bipolar plus it contains more info plus I think mines been inherited from my moms sister as she lived on lithium all her life.

/www.helpguide.org/articles/bipolar-disorder/bipolar-medication-guide.htm
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma/psoriasis/
Antiphospholipid Syndrome/Peripheral neuropathy/Pernicious Anaemia/Osteoarthritis/Chronic IBS/
Muscle Atrophy/COPD/Hypothyroidism//Epilepsy/Bipolar-Manic depression-OCD

Posted By : kellyinCali - 7/20/2017 8:48 PM
Diamond, thank you for the feedback and advice. smile

My Mom says that it looks like a burn but this is its progression:

raised bumps like hives
to pink pinpoint blisters that look like pimples
to purple pinpoint blisters
to just very red and scabby

I truly think it is on its way out. It looks horrible but I have showered gently and the skin didn't completely come off so I'm happy about that. The blisters protect the skin underneath. I feel strongly that if it were dangerous, it would have spread to my lips and mucous membranes.

Regarding the Prednisone. I took 3 small does and then stopped. My Mom even remembers when I took it. She said "it messed with your mind. Since I can bear the pain and itching, I am doing just fine now.

I hope your leg swelling is better.

Off topic, I noticed that you have Hypothyroidism. My T4 was tested and its LOW! Ironically, my P-Doc ordered it. I will see him on Monday. The "general" screening they do for TSH always falls into normal but I have read countless articles about how "under diagnosed" this is. How did you get DX?

Posted By : Diamond20_UK - 7/21/2017 2:46 AM
Kelly your rash is at the level mine reached and mine went no further and I don't think yours will by coming off the drug when you did because with in 24hrs the drug half's it's amount but if you can get some Calamine lotion
as I said it will sooth the blisters as they burst then they'll scab. "Don't get scratching" smilewinkgrin

I am pleased you was able to wash with out to much pain, just dab your skin to dry it.

Not all meds suite everyone, yet so many find relief using prednisone the trouble with it being a steroid also you add weight gain.

Thanks for asking about my legs the swelling went down but I had spasms in them this morning plus a seizure, if it's not one thing it's another for us all.


I was diagnosed years ago with an old GP with an underactive thyroid gland that didn't work at all, he put me on meds and after 6mths it didn't function, so he said we'll leave it alone. Now my doctor i'm with now but been with him a few years run bloods and said you have a gland not working and when I told him the details of previous he went mad, so straight away he put me on thyroxine the gland works now.

If your T4 level showed low your half way there but to know if you have Hypothyroidism your TSH testing which is a blood test needs to be high.

These links should help you Kelly and I am pleased that your rash has'nt gone no further smile


/www.endocrineweb.com/conditions/thyroid/thyroid-gland-function

www.pathology.leedsth.nhs.uk/pathology/ClinicalInfo/Biochemistry/EndocrinologyampDiabetes/ThyroidFunctionTests.aspx

www.healthline.com/health/tsh#overview1
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma/psoriasis/
Antiphospholipid Syndrome/Peripheral neuropathy/Pernicious Anaemia/Osteoarthritis/Chronic IBS/
Muscle Atrophy/COPD/Hypothyroidism//Epilepsy/Bipolar-Manic depression-OCD

Posted By : kellyinCali - 7/21/2017 11:16 PM
Thank you, again. I will look at the links. I'm in such a depression right now, I slept 15 hours. I wake up to go to the bathroom but then hit the pillow and back to sleep I am. I also have ZERO energy. Is this what Bi-Polar depression is like? It's been a long time since I've felt like myself. I moved to a new County far inland and I feel like a stranger to myself. Depression is not logical. I feel like a whiner but without energy, I can't seem to move forward. Everything is going to take effort and I have no energy. I'm sad and depressed. Sleep...sad and depressed. I could work through the depression if I only had "energy." I don't know what is going on exactly but thankfully, the rash is all purple pinpoint scabs. I'm not worried about complications with it at this point. Unfortunately, I've had to go without the Lamotrogine but will see P-Doc on Monday.

I sincerely hope you have a better day and I appreciate your input and opportunity to talk to someone who actually got "the Lamictal rash" too.

Take care. Kelly

Posted By : kellyinCali - 7/21/2017 11:43 PM
Diamond, this is of particular concern as it fits my scenario:

//If the T4 level is low and TSH is not elevated, the pituitary gland is more likely to be the cause for the hypothyroidism. Of course, this would drastically affect the treatment since the pituitary gland also regulates the body's other glands (adrenals, ovaries, and testicles) as well as controlling growth in children and normal kidney function. Pituitary gland failure means that the other glands may also be failing and other treatment than just thyroid may be necessary. The most common cause for the pituitary gland failure is a tumor of the pituitary and this might also require surgery to remove.//

I had tumors on my Ovaries (both) - Stage 1C Ovarian Cancer. Everything was removed. I am experiencing depression and excessive sleep (adrenals?). I hope to God I do not have a tumor on my pituitary gland. sad

Posted By : kellyinCali - 7/23/2017 11:02 PM
I've been going through my lab results on the Patient Portal. I have even purchased additional history to 2010.

July 2014 I had an ALT result HIGH = 45. The range is 6-29. I was never alerted of any concerns by the doctor. I am trying to get control and take charge of my health in order to quell anxiety since ovarian cancer (survived 4 years). I read that a positive ALT can be an indication of thyroid disease, among other things. sad

Posted By : UserANONYMOUS - 7/24/2017 6:55 AM
Hi kellyinCali,

Hope you find some answers soon. Dr. Google can scare us sometimes. Lol

Please know that you are not alone. We are here for you my friend.
Let us know how your app goes today at the doc.

UA
Moderator - Bipolar

Posted By : kellyinCali - 7/24/2017 7:48 AM
Thank you Peach and UA. My sleep cycle is completely upside down so its very hard for me to wait until my appointment time. I will show him my rash today too but it's healing. Purple scabs on its way out. I afraid of a new medication because at this point I'm a MED PHOBE. sad

He tested me for Vit. D = DEFICIENT and Thyroid = Hypothyroid

Dr. Google does scare me. I feel very vulnerable right now because my blood labs are also showing consistent "low creatinine" levels which could signify kidney failure. It's very challenging to not get ahead of myself but I've been through a lot of health issues and my quality of life is not good. I just can't take any more bad stuff right now.

I'll let you know how the appointment goes today. Hopefully, he'll spend a little time with me.

Posted By : UserANONYMOUS - 7/25/2017 11:55 AM
My thyroids have been overactive a few times in the past. I always get tested for them. An under-active thyroid can make you feel depressed.

Hope the app went well.

UA
Moderator - Bipolar

Posted By : kellyinCali - 7/27/2017 1:39 AM
I made it to my appointment on Monday but I am PARALYZED with med phobia. He threw 3 new meds at me.

Latuda samples

Thyroxine (my T4 level was low)

Ritalin (to help me turn my sleep cycle upside down).

I picked up all prescriptions but haven't taken ANY of them. I don't like the side effects listed for ANY of them and I want off of this med rollercoaster. I know my doctor wants to help me but how am I supposed to know what is working and what is not working, what is giving side effects and what is not if I take "add ons" at the same time. TBH, I'm just frozen. My life is a meds rollercoaster and I am hypersensitive to meds. I can't take narcotics for pain and I've had side effects with every med I take. I sometimes don't know what worse and I can only imagine what my poor brain is going through. No easy answers. Still feeling depressed. It's a real vicious cycle right now. I'm need energy so that I can get things in my life under control and make it to my appointments. I need to completely change my sleep cycle so that I'm awake during the day and sleeping during the day like the rest of the world. The Ritalin is to help me to not take naps but I am scared to take it. I don't drink or do drugs and wish I could just be NORMAL.

I welcome suggestions and advice.

Posted By : Tim Tam - 7/27/2017 12:07 PM
In your mind, you’ve been around the world and back. Every 15 seconds.

As a bipolar, I’ve experienced that. And I still do from time to time, although, two things have helped me:

1. Knowing my diagnosis, bipolar, and being treated for that with Lithium mood stabilizer for the manic portion of my bipolar, and two, Mirtazapine anti-depressant for the depression side of my manic-depression.

2. What’s helped me also is trying to remain positive as I face each problem, for, as I’ve read, by being positive going into a problem that you can solve it, increases your chances of solving it, even before you start thinking about the problem. Because, when you think positive, you open up areas of your brain toward solving it (you’re looking for solutions), whereas when you think negative, you’re opening up areas of your brain toward defeat.

Your brain is waiting on orders from you on which direction to go.

And I don’t have to be positive all day long. Just for the minutes it takes to try and solve the problem.

You said:

“Sadly, while I am not convinced I am Bipolar (maybe II), this med (Lamictal, which gave you a rash), helped with my anxiety (racing thoughts, impending doom).”

So, you think you may be bipolar. You also said, “I'm in such a depression right now, I slept 15 hours. I wake up to go to the bathroom but then hit the pillow and back to sleep I am. I also have ZERO energy. Is this what Bi-Polar depression is like?”

And “I feel like a whiner but without energy, I can't seem to move forward. Everything is going to take effort and I have no energy. I'm sad and depressed. Sleep...sad and depressed. I could work through the depression if I only had "energy."

As for the rash, you said, “I sincerely hope you have a better day and I appreciate your input and opportunity to talk to someone who actually got "the Lamictal rash" too.

I typed “lamictal rash” into the net search engine, and it came up with a number of websites that discuss this, which you may want to check.

You said you went to the doctor and he suggested Latuda, which drugs.com says is “Latuda is also used to treat episodes of depression in adults with bipolar disorder (manic depression).

And “Ritalin (to help me turn my sleep cycle upside down.)”

For sleep, I take Melatonin, a supplement from the health food store, or on the net. I take 1 mg a night but only because I also take doctor meds, or I might have to take 3 or 4 mg a night. They sell in in 5 and 10mg tablets, so maybe that’s OK, you’ll have to decide.

Some say check with your doctor or druggist to see if Melatonin is OK to take with the meds that you have.

My psychiatrist says it’s OK because it’s been around a long time.

What time do you do to bed and get up? I have trouble with my sleep cycle, also, because I had dogs nearby.

Posted By : UserANONYMOUS - 7/28/2017 8:37 PM
Hi kellyinCali,

My mom is sensitive to meds and experiences the side effects easily. I am sorry you have to go through this.

Sometimes the meds take a while before the side effects lessen, and before they start to work. I would suggest you try it. Maybe, start with a smaller dosage. However, if you start to experience any bad side effects, be sure to contact your doctor immediately.
Did you doc recommend anything for allergies while you are using these meds? Know you had a reaction when you used you Lamictal.

Are you attending any therapy or counselling for your depression?

UA
Moderator - Bipolar

Posted By : theHTreturns... - 7/29/2017 1:06 AM
hi, ritilan is used for narcolepsy,(as well adhd) however i read that because it is a stimulant interdependence and addiction is common with this drug. i recommend that you think about a sleep study. unless you live with narcolepsy that is. have had 2. was on, at one stage. 1200mg of seroquel a night. for sleep. kind regards. just lookin' out for ya.

Posted By : kellyinCali - 8/12/2017 5:17 PM
A quick update: I am doing much better! My rash is almost all gone! smile

Tim Tam:
1) I am still not certain what my DX is. However, my P-doc is treating me for bipolar depression.
2) That is great advice and I agree!

Interestingly, my comments about feeling like I couldn't get out of bed. Someone commented here on an "old thread" and I completely related to the post about "leaden paralysis." In fact, I think I became so deeply depressed because one of my favorite things to do is check things off of my "To Do" list. My mind actually wanted to do things but my body could not "stay up" with enough energy to get 'anything' done.

I too started the supplement Melatonin. Nature Made has a liquid gel that contains 3mg Melatonin and 200 mg. L-Theanine (mood support). It's working.

As far as meds go, the Latuda was "ok" at 20 mg but after taking 40 mg. for a few nights, I wake up with bad headaches and neck tension and VERTIGO. Since I'm doing better, I'm going to stay at 20mg (if I can). Since I do not know what my DX is, I will be interested to see if I go down again for "no reason." I related more to situational and atypical depression but I trust that my Pdoc realizes that this depression was deep and long for me.

================================================================

UA: I wasn't prescribed anything for "allergies" with the Latuda but interestingly, I did feel "itchy." That side effect went away quickly. I tried to go from 20mg to 40mg but immediately got bad morning headaches and vertigo. On a positive note, I am doing MUCH better.

================================================================

HT: I finally got the nerve up to take the Ritalin and I was fine. The affects of 5 mg. are barely noticable but hey, even if its a placebo effect at that dosage, I need all the help I can get. I'm not concerned about eating them like candy because I do not like taking drugs. I don't drink while on medication. I hate the way I feel on weed. Basically, I'm a med/drug phobe. I would take narcotics for my chronic pain if I could but I throw them up. I'm VERY sensitive to medication. Thanks for lookin' out for me.

Posted By : Tim Tam - 8/12/2017 8:55 PM
Glad you are feeling better.

1. You say: “I'm in such a depression right now"

2. “Still feeling depressed”

3. “I think I became so deeply depressed because….”

4. “I related more to situational and atypical depression but I trust that my Pdoc realizes that this depression was deep and long for me.”
--------
So, the depression seems to be established.

Then you wonder:

1. “I am still not certain what my DX is. However, my P-doc is treating me for bipolar depression”

2 “Sadly, while I am not convinced I am Bipolar (maybe II)…”

3. “Is this what Bi-Polar depression is like?”

As a bipolar, or manic-depressive, myself, I have both of those extremes, one at a time. So, you can be in the depressive side of bipolar, or the manic side of bipolar.

You said you doubted you are bipolar I, but you “maybe” bipolar II, which the net says is the less severe form, with hypo mania, but not the more elevated form of full blown mania that is in bipolar I.

So that could answer the question of are you bipolar, as you have suggested. For if you are only bipolar II, it’s not as noticeable, so it could be harder to detect than bipolar I. Thus the confusion.

So the question is, do you have the hypo manic side of bipolar, or are you simply depressive, without the mania? (You did mention having "racing thoughts" which I've heard is a sign of mania) Do you recognize any of the below?
---------------------
Web.md says of the lesser, or bipolar II: “During a hypomanic episode, elevated mood can manifest itself as either euphoria (feeling "high") or as irritability.”

“Symptoms during hypomanic episodes include:

• “Flying suddenly from one idea to the next

• “Having exaggerated self confidence

• “Rapid, "pressured" (uninterruptable) and loud speech

• “Increased energy, with hyperactivity and a decreased need for sleep”

“People experiencing hypomanic episodes are often quite pleasant to be around. They can often seem like the "life of the party" -- making jokes, taking an intense interest in other people and activities, and infecting others with their positive mood.

“What's so bad about that, you might ask? Hypomania can also lead to erratic and unhealthy behavior. Hypomanic episodes can sometimes progress onward to full manias that affect a person's ability to function (bipolar I disorder). In mania, people might spend money they don't have, seek out sex with people they normally wouldn't, and engage in other impulsive or risky behaviors with the potential for dangerous consequences.”

Posted By : kellyinCali - 8/13/2017 6:23 PM
Somebody said...
Web.md says of the lesser, or bipolar II: “During a hypomanic episode, elevated mood can manifest itself as either euphoria (feeling "high") or as irritability.”

“Symptoms during hypomanic episodes include:

• “Flying suddenly from one idea to the next - YES

• “Having exaggerated self confidence - NO

• “Rapid, "pressured" (uninterruptable) and loud speech - NO

• “Increased energy, with hyperactivity and a decreased need for sleep” - NO

“People experiencing hypomanic episodes are often quite pleasant to be around. They can often seem like the "life of the party" -- making jokes, taking an intense interest in other people and activities, and infecting others with their positive mood.


“Symptoms during hypomanic episodes include:

• “Flying suddenly from one idea to the next - YES

• “Having exaggerated self confidence - NO

• “Rapid, "pressured" (uninterruptable) and loud speech - NO

• “Increased energy, with hyperactivity and a decreased need for sleep” - NO

“People experiencing hypomanic episodes are often quite pleasant to be around. They can often seem like the "life of the party" -- making jokes, taking an intense interest in other people and activities, and infecting others with their positive mood. - NO

I still do not think I have BPII but I read an article about OCD mimicking BP sometimes. I do at times find too much energy for a goal oriented task to the point of obsessive. I'm keeping a "symptom journal" now. idea

Posted By : Tim Tam - 8/13/2017 9:17 PM
1. “I'm in such a depression right now" “Still feeling depressed”
“I think I became so deeply depressed because….”

2. You say, “Depression is not logical.” (But with the difficulties, it seems like it might be) (As you said, “(“I related more to situational and atypical depression but I trust that my Pdoc realizes that this depression was deep and long for me.”)

3. As far as meds go, the Latuda was "ok" at 20 mg. “On a positive note, I am doing MUCH better” (on Latuda).

4. Latuda, about which drugs.com says: “Latuda is also used to treat episodes of depression in adults with bipolar disorder (manic depression).

5. “I am still not certain what my DX is. However, my P-doc is treating me for bipolar depression”

6. “Sadly, while I am not convinced I am Bipolar (maybe II)…”

7. “I still do not think I have BPII but I read an article about OCD mimicking BP sometimes. I do at times find too much energy for a goal oriented task to the point of obsessive. I'm keeping a "symptom journal" now”
-----------------

A. You’re diagnosed as bipolar but you answered 4 of the 5 questions on hypomania as no, so we’ll say you’re not hypo manic, and therefore not Bipolar I (the one with full blown mania) or Bipolar II (the one with only reduced or hypo mania).

B. But you strongly believe you’re depressed, but probably from the tough situations you’ve been going through, not bipolar depression.

C. So we’ll say you’re misdiagnosed and you’re miss-medicated. And being diagnosed correctly is important, so that you can be properly medicated.

D. But the Latuda (“used to treat episodes of depression in adults with bipolar disorder (manic depression”) is helping.

E. There are antidepressants for people who have just depression (but they can be used for bipolar), so you might want to be open to some of those.

F. I once had a huge concern for getting back on meds, and delayed it too long. One step I didn’t consider was:
a. cutting the medicine in half, or even in 1/3rd or 1/4th, and taking that rather than the full pill.

If I was going to have a negative reaction, I could stop taking the pill. If no negative reaction, I could continue taking the other portion(s) an hour or hours later as I choose.

These are my views as a bipolar.

Posted By : kellyinCali - 8/13/2017 10:33 PM
TimTam: Thank you for your thoughtful response. I like your idea of cutting the pill in half too. I am a bit of a med phobe. My depression is in remission but I do not think this is solely because of the medication. I forced myself to go to church, got prayer. I went to a "crisis clinic" and was referred to a Clubhouse. Finally being able to take some action in my recovery has given me hope. I have learned, after this "long and deep depression" that isolation is a pitt. Best not to stand too close to the edge. Also, I have been walking my dog for longer distances which is good for both of us! I have also started taking the 7 most important supplements for depression. My blood work showed that I was Vitamin D "deficient" so I've been taking 500 mg D-3 for about 3 weeks now. I also added L-Methylfolate which I read is often deficient in depressed individuals. I still take 40mg. of Prozac and 300 mg of Buproprion XL. I've been on the Buproprion (Wellbutrin for 12 years, so it has likely pooped out). At one point, an SSRI and WB worked well for me. I think my life circumstances and the way I handled them (isolation) contributed to my ending up in a long and deep depression. One that I never experienced before.

I am going to keep a journal of my sleep cycles and my mood cycles. If I start to "go down" again without a good reason, I will go back on the Latuda. Nevertheless, I plan to continue seeing my Pdoc whom I know worked hard to pull me out of a MDD but if at all possible, I want to avoid the anti-psychotics. It's a shame I got a rash from the Lamotrogine. It seemed to help (quickly) at a low dose but I had to quit due to the rash.

Posted By : Diamond20_UK - 8/19/2017 1:20 PM
Hi Kelly,

So sorry mate that I've not been on but I hope your doing ok...miles from you I look like I've done 10 rounds in a boxing match, broke out all over my face red and swollen, lumpy spots on my neck, feet and now starting on my arms from my SCLE (Lupus) mate.

By the way i'm on thyroxine have been for years and no side affects for my under-active thyroid gland.

Hug Terry
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma/psoriasis/
Antiphospholipid Syndrome/Peripheral neuropathy/Pernicious Anaemia/Osteoarthritis/Chronic IBS/
Muscle Atrophy/COPD/Hypothyroidism//Epilepsy/Bipolar-Manic depression-OCD

Posted By : kellyinCali - 8/23/2017 1:45 AM
Hi Terry - BIG (gentle) HUG to you. I'm so sorry for what you are going through. Are you feeling better?

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer