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Posted By : Daily Acceptance - 5/3/2017 7:30 PM
Anyone here that has Cervical Dystonia? Need to hear if anyone has started Botox and stopped there Meds. confused

Posted By : straydog - 5/3/2017 7:59 PM
While I do have cervical dystonia I have not had Botox for it. I have done quite a bit of reading about Botox & so far it sounds pretty promising. Botox is being used for so many different medical issues these days & with success.

What kind of a dr has recommended this for you? Keep in mind when they first start the injections they start at a low dose & gradually increase the dose if needed. Also, I understand that there is a chance the first injection may not work but the 2nd one may do the trick. I cannot say that you will be able to go medication free, it all depends on how well you respond to the Botox. Certainly worth considering.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Daily Acceptance - 5/4/2017 11:26 AM
Thanks straydog,

I have been seeing a Neurologists for 7 yrs now. I have read Botox has been very successful in a lot of medical procedures all so. I want to do the Botox cuz the Meds aren't working anymore. I all so have fibromyalgia and the pain is quite bad. I think if I could get my Dystonia setteled down it would make a bit of difference. I think maybe at this point I'm going to try it. I guess it wouldn't hurt.

How long have you had your Dystonia? Did it come on gradually or was it from a head trauma? I figured mine was from head trauma when I was younger. I fell down the stairs a lot. I was not diagnosed until I was in my late 40's. I'm now 60 and I need to try something different for this problem. It really tires me out a lot.

Hope you are not suffering much and I have my email address posted in my profile if you want to talk.

Take care

Posted By : straydog - 5/4/2017 12:08 PM
D A, I think it may well be worth a try at least try 2 injections, in the event the first one does not work. It is given every three months. Be sure your neurologist gets approval for it as it is very expensive.

I have 2 levels in my neck that are bad & injuries to the neck. Surgery was an option in the early 40's which I declined. Over time the dystonia came along. Currently I am on pain for pain medication for that & other issues, plus I take 60mg of Baclofen a day. It is not perfect but better than nothing. I am quite stooped over & holding my head up & moving at the same time is impossible.

Please keep us posted on how you are doing. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

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