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Posted By : tomjohn - 5/7/2017 3:35 AM
Hello guys

I am looking to have a HIDA Scan done privately in another country close to mine. I currently live in Denmark (Europe) and it is not a procedure that is done over here. Most doctors I have spoken to, don't even know it exists!

I have had issues for 8 years and been trying to figure out what the problem is since 2015. Everything points towards gallbladder disease, it just can't be proven because I have no stones.

I have had endoscopies, colonoscopy, CBC, three ultrasounds, CT w/wo contrast, and now I just finished a fecal fat test and an MRCP. I, unfortunately, don't have high hopes for the MRCP, since nothing else has shown up prior to this. I have been trying to push for a HIDA scan for 10 months, but its impossible. I can't even find private hospitals who do the procedure here. I have to look elsewhere.

Any suggestions on good hospitals around EU who are able to do a HIDA scan?

Thank you.

Posted By : straydog - 5/7/2017 9:05 AM
Hi tomjohn & welcome to Healing Well. Just because you do not have stones does not mean the gallbladder is fine. I did not have stones either, however, when I had the Hida Scan, my gallbladder was not functioning correctly. I had my gallbladder removed & that took care of the problem.

I live in the states so I cannot help you with finding some place to get a Hida Scan. I can only suggest doing an online search in your country to see if you can locate a facility that does them.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : (Seashell) - 5/7/2017 9:26 AM
Hi John:
Sphincter of Odi dysfunction might be a source of your gallbladder woes. In this case, the sphincter that regulates release of bile from the gall bladder is out of synch and spasms. The symptoms of Sphincter of Odi dysfunction mimic those of gall bladder disease due to stones.

Laproscopic cholecystectomy is now considered a relatively benign surgery. In many hospitals here in the United States, it is done as an out-patient procedure. In at 6 am and discharged to home at 6 pm.

Discuss Sphincter of Odi with your attending physician. Perhaps a "simple" laproscopic removal of your gall bladder would be more prudent than the difficulties in having to arrange for a HIDA scan out of your area.

I have a friend who had increasingly severe gall-bladder type symptoms. However, her HIDA scan was not grossly abnormal. The surgeon agreed to remove her gall bladder based on her symptomatology. Gross pathology of her gall bladder showed extensive thickening of the walls of the gall bladder, no stones, and thickening of the Sphincter of Odi. She is now 5 weeks post surgery and doing well. No further gall bladder type symptoms. For her, laproscopic cholecystectomy was the right choice despite a fairly normal HIDA scan.

The learning: Not all diagnostic testing is in itself definitive.
- Karen -
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Posted By : tomjohn - 5/20/2017 2:23 AM
So I had my MRCP results, and as I expected, it was negative. The doctor kept telling me that I was healthy and that he couldn't or would do nothing further. I had to live with it. To me, that is simply not acceptable, and I am kind of furious. It seems like I am out of options in my own country unless I just pay a surgeon to remove it.

Posted By : straydog - 5/20/2017 7:13 AM
Tomjohn can you be seen by another physician for a 2nd opinion? I know nothing about about your healthcare system but if possible I would try for another dr opinion.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : tomjohn - 5/20/2017 5:36 PM
This was my 2nd opinion. The first doc didn't even want to do an MRCP. I've had 3x US, Colonoscopy. 2x Endoscopies done. All negative. I've been begging for a HIDA scan for too long, but its impossible over here, even privately.

Posted By : White Beard - 5/21/2017 11:00 PM
Hi tomjohn that kind of surprises me that they don't do the HIDA Scan in your country it's a common test here in the states and is just about considered the gold standard in tests when the gallery bladder is suspected of causing the problems. It's been quite a few years ago now that I was having problems and the HIDA Scan showed my gallbladder wasn't functioning so I had laporascopic surgery and they removed it. A colonoscopy and endoscopy might show problems with or in the intestinal tract but I personally don't see how these procedures would show any problems with the gallbladder its self??? The HIDA Scan is a relatively simple test, I do hope you can find some where you can get it Done!

Good luck to You! And Welcome to the Forum!

White Beard
Moderator Chronic Pain
USAF retired in Sept.1991. I went back to school and became a licensed RN in 1994, I worked on Oncology and Med Surg, Disabled in late 1999, was approved SSD in early 2002! Diagnosed with: DDD and Multiple herniated Disks; Foraminotomy L3/4/5 Jan 2013; Posterior Articular Joint fusion Nov 2010; C5/6 ACDF Sep 2009; C6/7 ACDF 1985; Implanted pain Pump Jun 2014.

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