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Posted By : Pisces0312 - 5/18/2017 11:06 PM
My problem started in late 2014 after doing a few coffee enemas. I noticed that my belly looked bloated and that I was also having upper abdominal pain. I thought it would go away and continued for the next 2 months with coffee enemas. My stomach continue to bloat and my upper abdominal pain increased. I finally went to the dr who performed both a colonoscopy and endoscopy and found nothing to explain my bloating and upper abdominal discomfort. Drinking a glass of water can cause my upper abs to hurt. It is not a sharp pain but rather a dull ache. At times it feels like someone has tied a rope around my upper abs and pulling it tight. It is not constant but occurs very frequent. I have never had anything like this happen before. I am a female, age 61 and am told it's just middle aged spread, we all get it. I ask these same people, "do you have pain with yours, like I do"? I have eat light and can go days without eating much and I still will look like I am 6 months pregnant. This occurred almost overnight. At times after eating a meal, I have to curl up in a ball until my meal has digested. I take probiotics that are given to me by my physician who practices in alternative medicine. Even he is having difficult diagnosing my issues.
Any thoughts?

Posted By : skeye - 5/19/2017 12:35 AM
Hi Pisces,

Did they take any biopsies on endoscopy? I'd wonder about an infection, such as helicobacter, in your stomach. Helicobacter infections commonly cause ulcers (which would have been seen on endoscopy if present), but they don't always. However, as a byproduct of their metabolism, the bacteria release large amounts of carbon dioxide, which can lead to bloating. Endoscopic biopsies are easy ways to look for helicobacter or other infectious organisms in the stomach.

It's also possible that it is a food sensitivity. Things like Celiac Disease and certain food allergies can lead to bloating and other GI issues if not addressed. So if you haven't been tested for Celiac or food allergies, that is something to think about talking to your doctor about as well. Or you could try changing your diet yourself and see if there is any improvement or correlation when certain foods are phased in or out.

Hope you are able to find an answer and some relief. That certainly sounds uncomfortable!

Skeye

Posted By : Pisces0312 - 5/19/2017 6:54 AM
I know that they didn't find ulcers or h-pylori. I always thought I injured myself with the coffee enemas, but the physician told me that was most unlikely, although the onset of this occurred after doing one or two enemas. I don't have celiac, although I do eat gluten free as often as I possibly can.

I hope I can find an answer too. Thank you for taking time to reply!

Posted By : (Seashell) - 5/19/2017 8:40 AM
You have to remember that the endoscopy and colonoscopy are limited to physical/anatomical findings or abnormalities. It seems that GI physicians are quick to order a scope(s), as it generates revenue for the medical practice but can leave patients with unanswered questions and ongoing symptoms.

You may have a problem with how your GI Tract is functioning. A motility issue.

One possibility would be gastroparesis. It is a general slowing or delay in the muscular motility of the stomach and upper portion of the small intestine. That would account for the uptick of symptoms that you experience after eating even a small meal.

There is growing evidence that the widespread use of pesticides in the cultivation of food products is having health effects. Gluten intolerance need not be full-out Celiac disease. Gluten intolerance can be pronounced withhout a positive Celiac diagnosis. Leaky hit syndrom is a term used to describe an intestinal tract that has been irritated and inflamed, like due to food specific sensitivity, where toxins leak into the body tissues.

You might consider keeping a food diary. Recording what you eat, the amount, time of day. Record symptoms and there appearance and intensity, day and time. Keep record of what helps relieve your symptoms. The aim is to find any recurrent symptoms that can be linked to a particular food or food type.

A food elimination diet can be helpful in identifying food sensitivities or triggers. You can Google "food elimination diet plan" to get details on how to implement. The basic premise is to add one new food item a day, thereby identifying particular food triggers that correlate with GI distress.

Most larger hospitals have gastroenterologists who are motility specialists. Some hospitals have GI motility clinics.

You are not alone in your symptoms or distress. Just observe the large expanse of space at any pharmacy devoted to gastrointestinal over the counter medications - row after row of Maalox, Pepcid, Pepto Bismol, Miralax, et al.

Keep pushing your physicians to better assess your continued GI distress.
- K -
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Posted By : wvgirl33 - 5/19/2017 10:33 AM
I have been fighting the same issues for years. I have had upper and lower scopes (which showed nothing), xrays, ct scans, barium xray, and now pill camera. I have some inflammation but negative for everything on biopsies. The pill cam showed nodules and inflammation in my small bowel so I have to undergo a biopsy in the end of June. I am not allowed to take NSAIDS until then bc they cause inflammation and have severe back issues. I am bloated and have pain when I eat (as well as other signs of Crohn's) but am unable to lose weight even though I do not eat many calories and try to stay active. I have done the "rule out" diets and kept an extensive food journal. I have done antibiotics as a test to see if I had small bowel bacteria overgrowth since my hospitals in the area do not have the appropriate testing for that particular issue. At least my GI is trying everything she knows, including blood tests. I completely understand the frustration, anxiety, and dismay. Keep pushing for your docs to try other tests and don't give up.

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