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Posted By : Chernava - 8/9/2017 10:09 PM
I had had very bad chronic headaches for many years. I went to every kind of doctor on the face of the Earth including all the Alternatives, including Prolotherapy, kineseology, chiropractic, Active Release Therapy, Acupuncture, and more.
I've had every test invented and nobody knew why I was in so much pain. I've had adverse reactions to prescription drugs, so took OTC pain meds every day for many years. When the story came out about IB causing heart problems, I decided to quit, which I did. Almost immediately every muscle in my body hurt so bad I couldn't get up or down, in or out of bed or the car w/o help! I was in agony. However, the severe headaches stopped! The IB evidently was rebounding on me, yet no doctor or practitioner every had suggested that! I feel betrayed by the medical professionals and alternatives, both! All the time and money wasted just makes me sick.
I assumed the pain from stopping the IB must be some kind of withdrawal from the IB and started taking it again. This was last November. I slowly weaned myself off the IB over the next 3 months. All of the pain still hasn't left but is better. I had cortisone for my shoulders the end of March, which also helped my muscle pain. Now that the cortisone has worn off the muscle pain has returned along with the shoulder pain, but not to the extent it was in November/December/January, along in there.
Since so much time has gone by, I wondered if the IB had been masking some other problem I had.
I went to the doctor and had many blood tests taken and all came back negative except for the ANA which was pretty positive, at 5.64 Units. (I don't know what this translates to as a ratio)
So, I have an appointment with a Rheumatologist in about 6 weeks. I will be 73 years old next month, very active, but I know I have Osteoarthritis in several places. Could the high ANA be caused by it? I don't know what to think.

Posted By : straydog - 8/10/2017 6:06 AM
Hi Chernava & welcome to the forum. I don't think you can have withdrawals from Ibuprofen. I am amazed that you managed to to take it for so long without it affecting your liver & it not causing you gi distress. It is an NSAID & something that should not be used long term for those reasons. My thinking is all the pain you experienced after stopping it, was you had inflammation & it was keeping it in check. When you stopped, the inflammation reared its ugly head.

I am glad to read that you will be seeing a rheumatologist soon. That is great. In addition to an exam he will order all new labs to rule things out. I wouldn't be concerned with the ANA being on the high side. People can have a false positive & have the same test repeated later & it be normal.

Keep us posted on how you are doing. Take care.
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/13/2017 1:55 PM
I have taken Naproxen 200 mg Q 12 Hrs long term and continue to. Several months ago I stopped taking Naproxen for 30 days. My pain was so severe I could barely walk. A few days after I started taking it again, my pain went down. I also take opiates.

Susie, my doctor knows about the Naproxen. I have routine blood tests done every six months for other meds I take. These blood tests can also alert my doctor to problems the Naproxen may be causing before there are other signs.

Posted By : straydog - 8/13/2017 6:35 PM
M&G, I had very good luck with Ibuprofen, however, I ended up with an ulcer. Glad to read that your dr is keeping an eye on your liver, hopefully this is something you can continue with & not develop any problems.This stuff works great for many that has inflammation.

Take care.
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/13/2017 6:52 PM
Susie, Thanks. I wasn't disagreeing with what you posted about NSAID not being good to take long term and the potential problems they can cause.

If we read the inserts from pharmaceutical companies that comes with each container of medications or what is written in the PDR we realize almost all of the medications we take long term are not suppose to taken long term. But it is usually a matter of benefit out weighing risk. This is something we should always discuss with our doctors.

Posted By : straydog - 8/14/2017 5:08 AM
M&G, I didn't feel you were disagreeing, lol. I wish I could take an NSAID because they do help me. My daughter had to have a lot of dental work several years ago & she took Advil for the pain. Her liver enzymes went through the rough so she had to stop. It is like anything we take, there is always a possibility of a side effect.

You are a reader & so am I, especially with medications. Not everyone bothers to read the labels or print-outs from pharmacies. Some think, well the dr gave it to me so its ok to take. How much of this have we seen this over the years here at HW.

How are you doing these days?
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/14/2017 9:15 AM
Susie, the first time I saw a PDR, I was 17. I was fascinated by the in depth information. After that, I always had one at home. One of my best friends was a pharmacist and owned his store. I learned a lot from him. When I got older I would help fill prescriptions when he got short handed. This was long before they had pharmacy techs and the laws that govern those filling prescriptions that are not pharmacists. I learned then how little doctors know about medications. I was surprised at how many doctors called and ask my friend what to prescribe a patient and/or correct dosages.

I Am Blessed ! I can't get around well any longer. But, I have friends and family that help me. The only health problems I have are mobility impairment and nerve damage in my upper and lower extremities. My eyesight isn't as sharp as it use to be. Neither is my mind and memory. But, that is part of being 64. . LOL

I take two prescriptions and two OTC meds. I learned a long time ago doctors often prescribe medications patients do not need and might do better without. Most patients do not think they get their money's worth if they don't walk out of their appointment
with a prescription. Often patients are better off if they make adjustments instead of taking medications. Adjustments aren't fun. But in the long run they are more than worth it. Of course there are situations where adjustments don't matter and medications are best.

How are you doing ?

Posted By : straydog - 8/15/2017 6:37 AM
M&G, my mother had an old PDR & all of us girls would call her if a dr gave us a script for something, lol. My mother was an avid reader & read everything she could get her hands on. This is something I learned back in my working days. When the pharmaceutical reps appeared at drs offices with the samples of the latest & greatest on the market, drs would hand them out to the patients. Rarely would a dr see a rep, usually that was left up to a staff member. No one had any knowledge of the drug. I had several girls that worked in drs offices say that the rep showed up with samples of the flavor of the month. True story.

It sounds to me like in spite of things you are still maintaining. You & I are the same age & it seems like each year that goes past a little of something from me goes with it, lol. Walking & being on my feet is a real problem for me. I think that & not being able to stand up straight bothers me the most. However, I am blessed to be where I am because there are many others much worse off. I try to do what I can & keep it at a steady pace. Some days are better than other, but hey that's life.

Please pop in when you can just to say hi, I miss seeing you around. Take care.
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/15/2017 12:32 PM
Susie, my right leg is quite a bit shorter than my left leg. Next to the pain the uneven walking bothers me the most. The only time I wear shoes is when I go outside. So I walk on my tippy toes most of the time. I'm going to look into shoe lifts in a few months. I think that is what you call them. My balance is not good, even when I walk with both feet flat. I have a Service Dog that helps me with my balance and a few other things.

I'm not able to stand up straight or be on my feet and walk for long either. You're right, there are a lot of people worse off than we are. I have been working part time from home this year. That old phrase, "if you don't use it, you lose it" is so true. I didn't realize how many things I had forgotten since I have been on disability. Until I started working again. If I wasn't able to work from my recliner or bed. I wouldn't be able to do what I am doing now.

I pop in when I get a chance. HealingWell's Chronic Pain Group is the best Chronic Pain group on the internet. You and the other Moderators do an excellent job of ensuring the information here is accurate. Not allowing disrespect and enforcing Peter Waite's Guidelines adds the the value. I am Blessed to be a member here.
I am an Administrator at another site and Moderator on several others. I know the time and energy it takes to do it right. Ya'll Are Amazing !

Posted By : straydog - 8/15/2017 2:24 PM
Oh, you are definitely having some issues with the walking. Awesome that you are able to do some work. My memory is so, so, lol. It depends on the day.

The forum has really slowed down over the years. But, that is to be expected with a public forum. Who knows, it may eventually pick back up. Peter needs to update the place badly, that has been the number one complaint with people leaving.

Take care.
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/15/2017 3:37 PM
Susie, some days are better than others. I meant to say I walk on the ball of my right foot most of the time. I'm not sure where the "tippy toes" came from. Needless to say, I can't walk on my tippy toes. . LOL

Posted By : straydog - 8/16/2017 11:37 AM
M&G, I think getting orthotic inserts would probably help you. Perhaps your dr can refer you to a good dr for this. This has nothing to do with your situation, but my niece had suffered with lower back pain for several years. She was what I called young at the time. It was determined she had one leg longer than the other. It was not to the degree of needing a shoe to be built up. Her dr sent her to a podiatrist who special fitted her with an orthotic for her shoe. To her amazement her back pain disappeared. She said all of those years of putting up with back pain & no one could find a cause. It goes to show how this can affect the body. I am not saying this is any cure for you, however, your condition is different from hers. If it will help your gait & balance that would be a help.

Take care.
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Mercy&Grace - 8/16/2017 12:32 PM
Susie, the difference in length is back related for me. My doctor told me in 2003 if I had back surgery I would be in more pain than I was in at that time. As the discs in my back have gotten worse and collapsed (or whatever they have done) the length of my right leg has gotten shorter. The biggest changes have occurred over the past 5-6 yrs.

I have been putting off looking into shoe lifts waiting to see if the situation with my right leg getting shorter stabilizes. But, I need to look into it. I would feel more confident walking and going places if I could walk more evenly. As it is now, I usually have to depend on my service dog or hang onto the arm of friends or one of my daughters when I go out. It would be nice to not have to do that most of the time.

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