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Posted By : Larry Miller - 9/15/2017 6:15 PM
I have had a Medtronic spinal stimulator implanted since 2005. My battery is in my abdomen. I have never had any issues with my fitness club activities which include a dry sauna, wet sauna, hot tub, swimming pool, tanning booth and exercise room equipment. My Medtronic spinal stimulators made it possible for me to work full-time from 2005 to 2009 when I was forced to retire because of progression of many of my diagnoses. By 2016 my chronic pain levels were reaching 7 to 9 every day (on a scale of 1 to 10 with 10 being the most pain) for most of the day and were ruling my life.

Two weeks ago I had a Medtronic morphine pain pump implanted in my hip. Are there any restrictions of the activities I've listed above?

My diagnoses since 2002 include Ankylosing spondylitis (2012), chronic inflammatory autoimmune disease), Back Pain, Compression and/or Wedge Spinal Fractures, Degenerative Disc Disease 2002), Degenerative Lumbar (Low Back) Spondylolisthesis, Depression, Discogenic (Disc-related), Low Back Pain (herniated discs, degenerative disk disease (2002); Failed Back Surgery Syndrome, Chronic pain, Headache pain (forehead, eyes, upper back, neck; tight band, pounding, throbbing, dull), Herniated Disc (2002), Lower Back Pain, Lumbar, Middle back pain, Neck pain, Neuropathic pain (burning, shooting, tingling electric; foot pain and numbness), Nociceptive pain (musculoskeletal pain, aching, deep), Lumbar Radiculopathy: Low Back pain, Lumbar Spinal Stenosis, Opioid induced mood disorder (2016); Peripheral Neuropathic Pain (hands, feet; numb, tingling, pins, needles, electric, burning), Radicular pain (lumbar radiculopathy radiates along a nerve due to inflammation or irritation of the nerve root and extends from the spinal cord to the buttocks and down the legs; muscular weakness leads to deconditioning), Sacroiliac Joint (SI Joint), Sciatica, Spinal Fractures, Spinal Stenosis, Spondylosis , Stress, Tailbone Pain, Upper back pain, Uveitis 1995, 2012.

Medications (from memory) Celebrex, moloxicam, Tylenol, Norco, methadone, MS Contin, Oxycontin, Percocet, tramadol, baclofen, cyclobenzaprine, capsaicin cream, diclofenac, lidocaine, Neurontin, Lyrica, Cymbalta;

Invasive medical treatments, Epidural steroid injections, facet injections, radiofrequency ablation, spinal cord stimulators (2005, 2009, 2015, and 2017 and 11 back surgeries since 2002, 5 since 2010.

Thank you for listening. I will be glad to answer any questions or ideas you may have. idea

Posted By : straydog - 9/15/2017 9:01 PM
Hi Larry & welcome to the forum. I am afraid yes you are going to have some restrictions. Heat is not good for the pumps as there is potential of damaging the unit. I had to stop the tanning bed because of the heat, loved how it made my joints feel. There are a few movements you need to avoid. I am guessing you didn't discuss this with your dr before surgery. You should have been given a little Medtronics booklet the day it was implanted. You can also go to Medtronics website & get their number, they can send you a booklet. You can also call yourdrs office & ask if they have your booklet. Do you have your PTM or does your dr?

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Larry Miller - 9/16/2017 4:32 AM
Thanks Susie for your timely response. smile I have PIM. My neurosurgeon only said that I should not bathe for two weeks. He's aware that I have used this fitness club for five years or more and in fact encouraged me to do it. I didn't ask about restrictions on the day of surgery because I hadn't ever had any issues with my Medtronic stimulator at the fitness club. I just always turned it off while at the club. Often I find that the manufactures literature is much more conservative for legal reasons and that many times users report fewer restrictions. nono

Finally did you experience musculoskeletal pain or disorders before your morphine pump was implanted. 50% of my pain is probably musculoskeletal pain and I'm wondered whether the morphine pain pump hels with that type of pain. My worst pain in sciatica nerve and/or joint pain in my right foot. I have though t since 2002 that my sciatic joint is inflamed and is causing much of my pain. shocked

Thanks once again for your reply. wink

Posted By : straydog - 9/19/2017 12:42 PM
Larry, I hve been out of pocket for a few days, sorry I am late in replying. You my or may not see this. I do understand your thoughts about what drs & Medtronics caution people about, kind of a CYA type of thing.

Let me tell you a couple of things about pumps. They can & do flip on patients. If one flips they can sometimes manually be flipped back over, which is not a very pleasant experience. If a dr cannot flip it, then surgery is required. You never want to expose the pump to heat that will either damage the unit or affect the integrity of the medication in your pump. These medications are not made to withstand a high temp. I can use my jacuzzi at home, nothing over 101. My first pump dr said no to a jacuzzi & then my 2nd dr gave me the green light with the temperature amount.

Regardless of what you think, I do suggest you read your booklet & discuss things with your dr. And, yes the pump can help somewhat with sciatica. Your dr will ramp up your pump dose over time & allow you to use your PTM for break thru pain.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Larry Miller - 9/21/2017 11:14 AM
Susie,

Thank you so much for the information you provided. I'll ask my PMP next week about restrictions. I will miss using my dry sauna, wet sauna, hot and hot tub at my fitness club 2x week.

What about tanning booths? The one at my fitness is a walk in like a shower and it has bulbs all the way around. I don't get hot when I'm in the tanning booth. wink

Thank you.

Posted By : straydog - 9/21/2017 11:44 AM
Larry, jeesh of all things I forgot to post about. I used a tanning bed prior to my pump being implanted & had to forego that because of the heat. I know you have reservations about the restrictions, however, discuss all of this with your dr.. The tanning booth may be allowed since you are not exposed to the heat such as a bed. I did this because it made my joints feel better for a short time.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Larry Miller - 9/21/2017 5:38 PM
Susie,

I will ask my PMP all these questions next Tuesday.

It may be all in my head but if I use the tanning booth at my fitness club once a month for 10 to 12 minutes I feel better . . . less inflammation and less pain for several days; however since I would go to the fitness club on Friday morning I had less inflammation and pain for the weekend which I appreciated. My PMP says that although my pain pump has been implanted for one month I'm going to feel worse before I feel better. He says it ed. If the pain pump is pumping morphine into my spinal column I don't understand why I'm still feeling 7 to 9 pain most days. shakehead

Posted By : straydog - 9/21/2017 6:05 PM
Larry, did the PM dr not explain his protocol on ramping up your pump once it was implanted? When pumps are implanted the drs always start with a very low dose in the pump. Increasing the pump is usually done every 2-3 weeks until they can get you where you need to be. These increases are usually 20% each time. Once you are stabilized then they allow the patient to your their PTM. The PTM has to be programmed by your dr & he will program how many bolus you can have in a 24 hour time frame. Has your dr not increased your pump since it was implanted? If you are not being given these increases then you need to sit down & have a heart to heart with your dr. I am not on the same page with feeling worse before it gets better.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Larry Miller - 9/21/2017 7:06 PM
Susie,

Larry, did the PM dr not explain his protocol on ramping up your pump once it was implanted?
>>He did not, neither did my neurosurgeon, neither did my Medtronic consultant

When pumps are implanted the drs always start with a very low dose in the pump. Increasing the pump is usually done every 2-3 weeks until they can get you where you need to be.

>>My PMP started with a low dose, increased it 10% after 2 weeks, 10% after 4 weeks; they programmed my PTM after 2 weeks allowing me to burst every 6 hours; today after 5 weeks he boosted the burst 10%. He and my Medtronic consultant again told me 2 things today -- don't come back for 1 month; and you're going to feel worse before you feel better and it may take 5 more months for you to realize whatever the final benefit is.

I am not on the same page with feeling worse before it gets better.

I'm not either.

Posted By : straydog - 9/22/2017 5:36 AM
Larry, you obviously have a very conservative PM dr because 10% is pretty much nothing. Each dr has their own way of handling new pump patients, yours is really conservative. The neuro could not comment on the pump, his job was to place it & nothing more. Your rep is only good for obtaining info such as if a code appears on your PTM or if you have a question about the pump. It can take up to 6 months to ramp up the pump that is not uncommon.

I would see where I am at the 3 month mark & if there is no improvement I would have a discussion about my quality of life issues. I am sorry you are having this problem with your dr. My first pump I had these very same issues with the dr..

You will find that pump is only as good as the dr maintaining it. If the dr doesn't have vast knowledge of pumps, medications & dosages used the pump is worthless. Been there & done that one too.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

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