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Posted By : colerg - 8/14/2007 9:14 PM
It has been awhile since I was last has been FANTASTIC..... but cp rears it's ugly head......great to see all are still doing ok( give and take..)...just was put on lyrica..any info...heard good and bad...more bad than good.... any love out there.??

Posted By : straydog - 8/14/2007 9:25 PM
Great to see you back, but sorry you are having some problems. Yes, I am on 100 mg of Lyrica that I take at bedtime for PN in my hands & feet. It is a really good drug for me with no side effects. As with any med you will hear good & bad reviews. You just have to dive in and try it and see how you do with it. I went from Cymbalta to Lyrica. Cymbalta was another good drug for me. but it lost its effectiveness with me. I am one of those weird one that tolerates very few meds so when we find one I can take its like yes. Hope it works for you and keep us posted on how you are doing. Its uplifting for all of us to hear someone is doing well. Susie

Posted By : Ides - 8/14/2007 10:19 PM
I tried to wean from Neurontin to Lyrica for small fiber neuropathy of the feet and legs. Lyrica did not control my pain very well [for example, one night I had the urge to get a saw and remove the offending pain parts] and I had HUGE lethargy and sleepiness issues while on it. I finally gave up trying to switch over after 3 weeks.

I agree with Straydog that you just have to see how you do with it. Many people cannot tolerate Neurontin and it works well for me. We are all so different in how we react to meds, that one just really has to give it a go and see what happens.

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Posted By : colerg - 8/15/2007 7:53 AM
Straydog, good to see you up and at have you been? life has been good, just shifts in life from time to time. Other than that, I am not complaining! I have been playing in the garden..yeah! and running around chasing our new puppies...So life is rich....thanks for the lyrica reply, nervous about trying it, but hey gotta get some help somehow....stay well.. Peace. Cole

Posted By : razzle51 - 8/15/2007 9:36 AM

 we just recently had a big thread about Lyrica . It is a weight gainer . here is the thread if you would like to read it.

Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999


Posted By : straydog - 8/15/2007 9:56 AM
Hey Cole thanks for asking about me. Down here in Tx we had 2 months of rain, then stepped off into our 100 degree plus temps. I am avoiding the heat as much as I can. Yes, I am the nut that is up at 5:00am, with tiki torches lit watering flowers and the yard. Thats the only time of day I can get out. I dehydrate pretty easy so I have to watch it. I too have a new puppy, a Britney Spaniel, he is almost 8 months old, has eaten everything he can get his lips on in my house. He has a real penchant for my tropical red hibiscus flowers, my little hummers don't have a chance with him around. He is like having 10 little kids, into everything. Then, I have my solid & staid 12 yrd Golden Retreiver that at times wants to send him back, (so do I). Hubby built me a gate at the bottom of the stairs to keep the brat down there, so Jake & I can make the great Cole, not sure how much or how often you are totake your Lyrica, I do very well taking it at bedtime. Susie

Posted By : ohthepain - 8/15/2007 10:24 AM
Colerg - I have much love for Lyrica!! LOL My pain management doctor put me on Lyrica starting at 75mg at night. I had some really odd side effects from it in the begining & I can understand why some stopped so quickly but my advice is to give it at least a week or two b/c my body was used to it by then and the strange side effects were gone. It's really hard to explain what happened but I'll try....My head just felt "strange" in the begining - almost like my brain was numb or something - it just felt like something wasn't right, when I got up from sitting for a while my legs would feel like jello & it would take a few seconds for it to level out before I could walk saftely lol, the other really odd thing was that I was antsy & couldn't sit still but at the same time felt exhausted and couldn't stop yawing. After the 2nd week on it my doctor raised the dose to 150mg (75mg twice daily) and I didn't really have any issues with the side effects after that 1st week, even when my doses have been increased. I went to a Rhumetologist recently at the advice of my pain doc & the Rhumey doubled my dose of Lyrica brining it to 300mg/day (150mg twice daily). He informed me that when the FDA approved Lyrica for Fibromyalgia it was approved at a dose between 350-500mg and this raise in my dose made a HUGE difference. The aches & pains of my Fibro have decreased significantly & I don't have any additional side effects from the Lyrica any longer. My Rhumetologist wants to raise my Lyrica dose again, bringing it to 500mg but my pain management doctor just put me on the Fentanyl patch and we are putting off the increase until my body has adjusted to the Fentanyl. Another side benefit is that I have nerve pain in my feet and that is also pretty much gone! :) Also, I did not gain any weight from Lyrica. We all react so differently to meds and the reactions to this one seems to be all over the place so all you can do it try it & see if it works for you! Good luck....let us know how it turns out!!!


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