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|Posted By : Figurinitout - 8/19/2007 7:37 PM|
|Hello everyone, turns out the doctor that was MIA in my earlier psot is still MIA. I never got a phone call for a follow up or an apology. So i went to see the doctor who refered me in the first place. The purpose of the referal to doc 2 was because doc 1 doesnt write scripts for oxycontin. Anyway i see doc 1 again and told him that doc to is MIA, and i needed a follow appointment. Talking to doc 1 again i immedatly wanted him as my doctor.... he listens, hes empthatic, knowledgeable, and most importantly reliable. I got some shots in my back (not sure of what, but this is the second tiime, and they seem to help). PLus 120 loratab 10mg/500mg (1 four times daily), and keep doing my my PT exercises at home as he was impressed at my progress since the first time we met. I was at 60 mg of Oxycontiin (three 10mg pills twice daily, totalling 60mg perday). The oxy literally took at the pain/soreness and helped keep the pain of breakthrough spasms away, which was a miracle. However, it changed my personality, everyone noticed and even i did towards the end. I'm a musical person, but there was never any music coming out of my room, i was seculded all the time, no sex drive..... etc etc. Anyway i made the executive decision to get of the oxy so i could see doc 1, to me since this is reversable a more potent doctor is more important that a more potent painkiller. I could defintly feel the adjustment in my body from going from 60mg OXY daily to 40 mg Hydro daily, but i resited the urge to even myself off... i use my meds for legitmate pain and intend to keep it that way. Which brings me to today, apx 11 days from the appointment. I dont know if the shot wore off, or that i've been more active than usual as i have been doing some cleaning and other prepartions for my upcoming and last semester of college. I hav,'t lifted or over exerted myself. just i've been moving around alot and generally more active. Maybe it because i haven't been laying around as much im noticing more pain. Either way it sucks.... i haven;t left my room unless to go to the bathroom at all today. Last night my sleep was way worse than usual (and usually it sucks to begin with).
I think the problem with the exaggerated pain is from being more physcially active, and i have a feeling its really going to peak out when the stresses and physcial and mental exerction of school start again in one week. As of right now i'm already 3 pills pver schedule from the last 3 days (1 extra a day) and still miserable and stuck in a recliner....
I can honestly say that the oxy was a little too strong for me mentally, as i feel like my personality has come back more since the switch. However, as many of you also probably feel i cannot be a functioning person in my surrent state, of pinching nerve pain, and jaw clenching back spams, as well as the general pain/soreness and sleepness nights.
My question is that is there a painkiller less potent than oxy but more than this loratab (anthing that is not semisyntic has little to no effect on me for some reason (i.e direct opium derivative, morphine and codine for example) [note: i did some research on this intresting phenomenon during the course of one of my sleepless nights and supposedly that there are a certain percentage of caucasions who dont responde to natural opaites... weird huh?]
Like i said before I HATE muscle relaxers, skaxtin does nothing for more, and flexril knocks me out or makes me "stoned"........ bad word use, but i cant think of a word that discribes the uncoordinated, sleepy, disconnected, feeling i get from flexril.
In may they gave me one 10mg Valium to take a MRI as the first attempt at the MRI was unattainable because my muscles were spasmsing uncontrolably. The 10mg valium did the trick, with no bad sideffects, and left me intact mentally and physically. I also read that valium is a resonable substitute for muscle relaxers.
Is this something i should call the doc about, i really dont feel like going an hour away again just to go again in another week and a half. I also don't feel like sitting here miserable and complaining. What does everyone think i should do in this situation. Any ideas for meds... or should i just ask for 5 or 6 a day instead of just four? Or should i just shut my mouht and bite the bullet and keep with the 4 loratabs. I really don't want to go back in the oxy even if i was offered...... and like i said before this doc doesnt write scripts anyway... If i did call and exlpained the sitaution do doctors normally add or change meds over the phone?
Post Edited (Figurinitout) : 8/19/2007 7:46:47 PM (GMT-6)
|Posted By : Figurinitout - 8/21/2007 5:05 PM|
|anyone with any ideas??? i woke up today and couldn't get out of bed for ten minutes... i thought i woke up paralized... pretty scary..... i called the doc yesterday w/ no call back... im gonna try tommorow.....|
i went from fairly comfortable and able to do things.... to stuck in my room in 10 days
|Posted By : Lakeside - 8/21/2007 7:08 PM|
|Dear Figrinitout: |
You have my total sympathy. I don't know you, but as a former college teacher & long ago, a student myself, your dedication to getting ready for the fall semester is amazingly admirable, under the exhausting circumstances of your CP and constant discomfort. I really can't advise you on anything "offical" (not being medical in any way except as a continual patient...) but it seems that you may be over-doing it, physically, b/c you feel a bit better b/c of the pain mgmt you've found dubiously successful....does that make sense?
When I was taking hydrocodone (b4 I got so sick from it) it woudl give me "zest" & a "lift" beyond what I should have actually physically been able to do....I found myself in that nether world of "false sense of well-being" that they caution you against in the convoluted med "hand outs" that come w/ the pills. I would do much more (physically) than I should have & then felt SO AWFUL afterwards....took me down for days, physically....& then spiritually as well as I pondered how weak & frail I'd become (I'm now an elementary school teacher---we're built for the long haul!) & then I'd get so bummed out I'd retreat to my bedroom & that's no solution, as you found out. Yet I was so PHYSICALLY beat that I had no choice---yeeech!
Yet, your basic problem remains....what meds to take to ease the ever-present & all-pervasive CP that still leave you cogent & lucid & "yourself" (as you alluded to your music)---???? You want to get back to your life, I hear that in your post---how, tho, can you do that in pain?!
I've found that Valuim helps the anxiety & I can take Flexeril (sorry you can't---it's similar to valuim, I think) so at least at night I get some rest. But you need some answers.
And this probably wasn't it! LOL!
But I just wanted to let you know I hear you & feel for you & wish you the best. Perhaps a call to your PM doc would be in order, due to the distress, both psychic & physical, that you're feeling.
And you want to be well to enjoy your final year in college, a year that should be pain-free in EVERY way...!
Oh, that I had a magic wand! *Poof!* You'd be all better!~
Let us know how you're doing, dear!
2 lumbar surgeries for L4-L5-S1 cystic tumor & post-surgical CSF leak complications. (Fall of '06). Central canal stenosis, severe degnerative arthrosis, grade 1 (21% shift) spondylolisthesis @ L5-S1 area, sensory & nerve function loss & radiculopathy in r leg/foot, on-going facet pain, sacral/illiac pain, lots of epidural fibrosis @ L5/S1.
|Posted By : AngMichelle - 8/21/2007 7:11 PM|
|I think a muscle relaxer is a great idea. When I had jaw problems they gave me Valium, so I wouldn't see a problem, other than taking it with an opiate. Maybe 1mg of Ativan like 3 times a day would be reasonable, it doesn't make me as sleepy. I am taking Zanaflex for whiplash, but it knocks me out. There is a muscle relaxer, Robaxin, I think that doesn't make you loopy. |
What is your dx? Do you think you could go up to Oxycodone, rather than Hydro? That is the next step up, but not as strong as Oxycotin.
I would suggest Hydro-therapy, in a heated pool. We have a center hear and people have great results with it.
I don't kow what your dx is, but try to stay as mobile as you can tolerate, use heat and then ice, i'm sure i'm telling you nothing new. I know with the neck pain i'm having, slow movements, bath/hot showers help a lot. Along with an anti-inflamatory(are you taking one) and muscle relaxer.
So sorry your suffering so much.
Best to you,
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
Doing engergy medicine!!!!
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.
|Posted By : Circa1988 - 8/21/2007 7:36 PM|
|If Oxycontin gave you problems so will oxycodone, why? Because they are the same thing. Oxycontin is only oxycodone in extended release form. The name stands for OXYcodone CONTINuous release. However you might want to try some other form of oxycodone because you do not recieve it over the entire day slowly (one of the instant release versions that is), so it could have a different feeling to you. You might also do well on something like methadone, which is totally synthetic (because you said natural opiates have little effect on you). Dilaudid is also a semisynthetic opioid and I believe it is closely related to hydrocodone so maybe that would make some sort of difference(there is no extended release version in the US anymore as far as I know however). Anyway good luck with your last year of college and good luck gettin your pain under control.|
Post Edited (Circa1988) : 8/21/2007 7:45:05 PM (GMT-6)