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Posted By : Stmll - 8/22/2007 9:39 PM
I have figured out the trick with my DR, you have to be almost rude with him to get anywhere or bring your hubby, so I go in and I say I do not have good pain control, and I believe that in todays society NO ONE should suffer and I am suffering, his response to me is " Tracey I am not sure why your coming in here after a year being so naive" well I did not let him get any further and said WHAT ARE YOU TALKING about???? like I am not Naive to anything I need PAIN CONTROL you were giving me 125 percocet a month this month you gave me 50 let me do the math but I have no idea how to make that WORK for a month, and said a few more things anyways he ups my Fetanyl patch to 75 mgs and gives me 5 mg of morphine, ok great were finally on the same page, then we get to numbers and I try to explain to him that it really varies somedays I take 12 of the percocet because that is how many I need, blah blah blah, finally have script in hand and he says " if you can't have this surgery done I want you to do a video confrence with a Dr. in the city you can do this at the hospital" I just looked at him with disbelief, he is shipping me off to someone over the friggin internet, are you serious!!!! how the hell can this guy get a good idea of how I am, how do I get in contact with him,he is going to prescribe my meds 3 hrs away over the internet!!!!! I have a little bit of difficulity with this, we tried the Pain Clinic in Toronto once already, and they told me because there is no cure for LPHS this is it meds, and my DR seems to have a good handle on this, has anyone ever done this?? go to the hospital and talk to a DR, 3 hrs away and then let him PRESCRIBE you meds??? I am sorry but I think that is the most STUPId THING I have ever heard of, like I am thinking that could have alot of repercussions to that , and I do not want any part of that, I give, I don't know what to do anymore like kick someone when their down, I have to go back and see him Sept 12th, and my hubby is  extremely pissed off and I am sure he will get a earful, so unless I am just seeing this in the wrong light, has anyone ever had this done, or been through this, or ever heard of it, plz let me know...Txs All
Take Care

DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 

Posted By : painKILLER - 8/22/2007 10:01 PM
Tracey, I have had chonic pain management for seven years now and I have never heard of that. Now, there are a couple of ways to look at this. First, it could turn out to be a good thing if the doctor your conference is with is willing to accomodate you. The video conferencing could save you the time and expense of travel to that hospital. In that case, he might be better than what you currently have. On the other hand, this doctor could be a complete waste of your time. Either way, I think that you should go with the flow for now, and see the video conference doc without complaint. While you are doing this, start looking out there for another pain doctor. Get some patient testimonials about other pain docs, and choose one that you think may be good for you, then make an appointment. If the video conference doctor turns out to be a joke, then you have this new doc to look forward to. In the meantime, keep your old doctor and don't tell him what you intend to do. Either way, don't act irrationally or on impulse. Having your husband yell at your doctor now might make him treat you even worse. Good luck tracy, I'm pulling for you!

Posted By : SarahP - 8/23/2007 7:10 AM
I would be leery of it, also. But as painkiller said, give it a try and see how it goes. Maybe this person is a specialist on controlling your type pain?

I do think I would have lit into anyone who called me naive. That's just stupid. Pain is pain and should be controlled as well as possible. We have the ability to make this medication, and the doctors to prescribe it.... therefore no one should suffer. That's not being naive, that's common sense.

I hope the video thing goes well for you.

I'm not procrastinating----I'm still doing yesterday!!!! 
I have no medical training, any medical opinions expressed in my posts are just that....opinions.

Co-Moderator for : Chronic Pain, Fibro

Posted By : Stmll - 8/25/2007 6:38 AM
Txs for input,
Honestly I really do not think I am going to go through with this, I am worried that this is not going to go well and what ever this Dr decides my Dr will go along with, and if it is not good I could be left in a really bad spot and then left to scramble maybe finding a Dr. who will help, if I did not have these meds I would be in the hospital.  I am going to go see a cpl Dr.s here in town that are not accepting new patients but I know just because we are a small town and tell them my story and see if they will help me, and on the 12th when I go back and see my Dr, I am just going to ask him staight up what his problem is, why does he want to get rid of me? and does he really believe that I am in absoloute agony, if I am taking 75mgs of Fentanyl and 10 mgs of Morphine every 6 hrs and not getting a BUZZ or funny feeling would that not be enough proof  to him, that I am in pain, and oh yes alos a Pain Clinic a Nephrologist and a Urologist also saying YES THIS WOMAN HAS LPHS!! like not really getting it!!! anyways I hope everyone has a good weekend and pain free or as pain free and good as possible :)
Take Care

DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 

Posted By : straydog - 8/25/2007 12:30 PM
Tracey, you need to quit dinking around with this guy, you have let this go on way too long, all he does is upset you. Find a dr., it does not have to be someone in your town, I understand small town limited drs. I don't know where you live but there has to drs in another town close to you. I live in a large city and most of my specialists believe it or not are in a small town at my own choosing. I get excellent care from them too. I have crohns disease and all the gi drs in my town wanted to give me prednisone which is a steroid. I go into to congestive heart failure on prednisone, they didn't care they wanted me to take it anyway, In fact, once when hospitalized in a bad flare while on IV morphine the dr gave it to me anyway after being told not to. Day 3 in CHF and the idiot wanted to know what happened. Sounds like he could be in cahoots with this video conference dr too. Susie

Posted By : painKILLER - 8/25/2007 8:13 PM
Straydog..When I read everyone's posts, it just still amazes me that a profession that is suppossed to be based on compassion and caring can be so cold. I am also amazed at the variety of ineptness of some of the doctor's talked about in this chronic pain forum. Your story is amazing to me. I cannot understand why a doctor, after being explicitly told not to order or administer this medicine to you because it could KILL YOU, still orders it for you. Not only is it ineptness, but I feel that medical doctors are largely corrupted by their own aerogance, and infallibility. Thank God that state laws are giving physician assistants and nurse practitioners greater scope of practice.

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