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|Posted By : holmesla - 8/24/2007 5:41 AM|
I am still not doing so well. I ended up going to the ER last week and they gave me DHE in an IV which got rid of the headache until i got home, though it wasn't as severe.
This week I did have one day where it was like I had a great day, like I had my old self back, but other than that, it has been the same pain over and over. I had my appointment with a neurosurgeon yesterday. I went in there feeling really confident, like this is a doctor who knows what he is doing and he can find the answer. Boy was I wrong. Something went horribly wrong. He didn't ask too many questions, jsut basically what happened and I explained to him about the accident. He just looked at my X-rays which I had back on February 1, and the MRI from April. He found a tiny bone spur on C-5 that he said was there before the accident, and mild disc degeneration on C3-C5, none of which could be causing such pain. He didn't want to recommend surgery but he did want another set of X-rays of my neck in the position of me looking down since that seems to put me in the most pain, but he just wants that for documention as he would more than likely still not recommend surgery.
In a nutshell he told me to stop taking all medication, exercise, and forget the whole thing happened. He started talking about people who are hurt in an accident but you can't find whats wrong with them and something about litigation. It almost sounded like he was saying I was there for money, but then he said "I am not saying that is you and that you don't have a valid complaint, I am just saying I see no neurological problems with you." So I got two things out of the appointment, 1) the pain is in my head, and 2) I am there trying to get money for a settlement.
I left feeling pretty upset because I still have no answers. I am in pain and don't know why. I haven't gone back to the Pain Clinic because none of what he was doing helped. I am not sure what to do at this point. I could try a different doctor but what if I get the same scenario? Or I could see my Primary care doctor and get another MRI. I just don't know what to do. Then there is the problem if I am doing to much and inusrance doesn't want to pay because if they can't find anything wrong. Right now I bought a neck brace and I am doing what a physcial therapist friend of a friend told me to do, wear it for two weeks and rest, try and get better on my own.
|Posted By : abc123 - 8/24/2007 10:33 AM|
|I'd find another neurosurgeon or an orthopedic surgeon. If you live in the Mid-Atlantic, I could recommend a few.|
Dx: FMS/CMP/DDD - 2 ACFs with more to follow, scoliosis, mis-aligned pelvis
Rx: Cymbalta, Flexeril, EC Naprosyn, Ambien CR, Vicodin 5/500, Kadian 60, Buspar, Xanax, Seravent, Albuterol, herbal supplements and vitamins, Lidocaine injections, and Botox injections
|Posted By : straydog - 8/25/2007 7:47 PM|
|Holmes, you are absolutely right. Unfortunately for you, he will have this attitude with any patient that walks in his office and says they have been in an accident. He was not signly you out. There are lot of those kind of drs around, they believe its a money thing and the hell with the patient, no matter is wrong. In fact, many drs will not see a patient if its accident related. This includes PCP's not just specialists.
I have migraines and have spent many a 24 hrs in the hospital having DHE administered to get rid of a migraine. It has always worked wonders for my migraines. Do you know you can now get it by script and you squirt it up your nose. Just wanted you to know that.
How did you find this dr? Did your PCP ref you, if so, I would go back and tell him/her how this dr acted and how he tried intimidating you with the accident theory of his. Please don't give up, he is not the only specialist out there. Susie
|Posted By : holmesla - 8/26/2007 12:23 PM|
I found this doctor just by word of mouth and had my chiropractor refer me so I could get an appointment with him. Many people actually recommended him to me. But now I am spreading the bad word around! I had to go get the x-rays that he wanted and when they asked me who the referring doctor was, it literally made me sick to mention his name. I mean, I understand that if my old MRI did not show anything, there wasn't anything at that very moment he could have done. But he could care less about why I was still in pain. He just automatically labeled me as a money hungry person. Also, what I realized today, I feel that even if I had something that showed up on the MRI,like a bulging disc, I don't think he would have done it. The first thing out of his mouth was that I was young. I am 28 years old. He said tht even if the X-rays show something he probably still wouldn't recommend surgery because every 10 years my chances would increase that I need more surgery. Cervical fusion surgery we are talking.
I was going to try and just go off the meds (which I am titrating down. I am off the Cymbalta and now at 25 g of Topamax) and then rest wearing a neck brace. But the neck brace I have is a soft one and just doesn't give me enough support. I am still waking up feeling horrible. I am thinking its time to go back to my Primary care to let her know what's going on and see what she thinks. I can't go on living like this, and you guys of all people know that this is real pain and not in our heads.
|Posted By : Chartreux - 8/26/2007 1:52 PM|
|Awe Holmesia that was a horrible doctor hun, but not all of them are like that. Try finding another pain management doctor, a good one will be able to help you. Although about the fusion he might have been right from what I've heard from my friends is once you do surgey you'll have to keep going back for more surgery......I really do wish you well hun and that I wish everyone here was pain free!|
|Posted By : painKILLER - 8/26/2007 7:57 PM|
|holmesla, I know exactly what you are talking about. Im your age, and i have been given that exact same line. "You're too young to have the pain that you have," is the standard company line. I have heard that time and time again. Fortunately, American medicine is also free market, which means that we can go to any doctor that we want to; that doctor is not the only game in town and I know you can do better!|
|Posted By : holmesla - 8/27/2007 5:20 AM|
|My new plan of action is to see my primary care doctor and see what she thinks. SHe can refer me to have another MRI and then find a good doctor. I am not giving up. With this paiN i have daily, there is no way I am letting one doctor tell me its in my head or I am too young for surgery. There could be other options out there for me. Someone will be willing to try.
|Posted By : Chartreux - 8/27/2007 6:02 AM|
|Yes there are and good for you!|
|Posted By : holmesla - 9/6/2007 5:27 AM|
I have since went to see my Primary Care Doctor. She basically said the same thing the neuro surgeon did, but in a much nicer way. Since they cannot pinpoint what the cause of my pain is, there is not much they can do. Basically I need to try and move on. She said to lower my expectations about finding the answer and getting better fast. She says I won't be in pain forever, I just need to rewire my pain receptors since they are exaggerated (not me, but the pain receptors) and I shouldn't be in as much pain as I am based on what happened. She put me on tramadol. She also asked me if there is anything I feel wasn't done that should have been done and I mentioned wearing a neck brace. She wrote me a script for it and I have to say that it has worked! I had 4 days without a headache, which has not happened in over 8 months. I took the brace off for a couple hours last night and now my head is hurting, so I have it on and won't take it off for another week or two.
It is sort of sad that there is no answer or solution to my chronic pain, but what can you do when all doctors say the same thing? I have exhausted myself financially and emotionally trying this doctor or this procedure to no avail. So maybe what the doctor said was right, get on with my life and accept the pain as it won't be there forever. Maybe with the Tramadol andneck brace is all I need anyway.
|Posted By : straydog - 9/6/2007 7:11 PM|
|Holmes give it a whirl. You have nothing to lose. But, in a few weeks if you are still needing the brace and meds get back to that PCP. Tell her, ok, I have tried it your way and this is where I am at. Yes, at times pain receprtors do need to be retrained/reworked whatever. I would like to know how this dr proposes to going about reworking the pain receptors so you can get permanent relief. It seems to me she forgot to tell you how to go about that. Susie|