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Posted By : redspot321 - 5/14/2008 2:56 PM
How long after your last dose should it take. Im wondering when I should expect to have a problem while weaning, If I do have a problem..

Posted By : Lady G - 5/14/2008 3:25 PM
I know it depends on the individual and thier body but in my own experience it depended how long I was on the pred for. When I took it for a period of two weeks I never had problems with the weaning or after off the pills and I guess it didn't take long to clear at all being that short a period. When I took it just lately for about a 3 month period I did have some problems in the last weaning week and the first week off...so I guess it depends...thats for me anyways. When I did wean off just recently and had problems I was getting nausea and bad headaches every day. But as I said, I think it differs for each individual and potentially how long you were on them...and it took about the week or week and a half before I started feeling normal, and now that its maybe 3 weeks off I think I am finally starting to lose some of the weight and moonface.


27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


Posted By : Kittikatt - 5/14/2008 3:26 PM
Ooh - that's a good question. I'm tapering off my very first round of Pred myself. I'd like to know the answer to this question, too!


Diagnosed in October, 2004 at age 33.
36/F/SC
Currently taking Colazal, Nexium, Ferrous Sulfate, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


Posted By : bektold - 5/14/2008 3:39 PM
A friend with RA who has a lot of experience with Pred told me that it can take 6 months or more for it to totally clear your system.  Last week I finished tapering for the 3rd time in a year.  I've had a headache for days.  The other two times I developed joint pain about two weeks after my last dose, but I haven't been able to stay off the stuff long enough to figure out whether that's my new "normal" due to CD or if it's a reaction to the Pred that will eventually go away.  I'm hoping that it goes away (if it comes back), because my Rheumy's solution was tramadol, which I HATED.

Posted By : redspot321 - 5/14/2008 4:27 PM
Hmmmmm. I read that prednisone has the half life of 1 hour. I would think it would be fairly quick for you body to metabloize it.

Posted By : sjkly - 5/14/2008 4:38 PM
Prednisone has a pre conversion half lifaboute of one hour-Pred's is a converted into prednisolone-then its plasma half life as prednisolone is 2-3 hours. It has a duration of 18-36 hours. But once its out of your system it takes a while for your system to reregulate itself.

Posted By : redspot321 - 5/14/2008 5:36 PM
So basically If I went from 25mg to 20 mg today. I would only be under the influence of 20mg in about 3 days. Then of course my body would need time to catch up to the reduced dose.

Posted By : sr5599 - 5/14/2008 6:14 PM
I think the hardest part of weaning isn't the half-life and how long it's actually in your system. In my experience the hardest part of weaning is getting my own adrenal glands to start up again. That's the cause of mood swings, nausea, rash, exhaution, etc. that I get when I stop taking steroids.


--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


Posted By : Brig - 5/14/2008 6:17 PM

I am waening of pred at the moment also. I started at 30 and every 2 weeks go down 5 or there abouts. I am now on 7.5 and tomorrow go to 5 then 2.5 then 0 woohoo. Every 2 weeks when I decrease I feel a difference in the stomach and also routine of going to the toilet. I though as I was decreasing I was feeling symptoms of the Crohns coming back but by the sounds of it I could be readjusting.

Lady G also good to know it took about 3 weeks to shift some weight. Did you diet or do anything special. I really would like to lose a little weight as since being on the pred I have gained quite a bit and feel horrible alot of the time.


Posted By : sjkly - 5/14/2008 7:32 PM
sr5599 is absolutely right. The hard part is your own body needing time to start regulating itself again.
Also, if the pred has just been masking symptoms and you havent been taking other meds to control the symptoms then the disease can beocme active again as you withdrawl the pred.
Sj

Posted By : AlwaysRosie - 5/14/2008 8:03 PM
I understand that our own body makes about 7 gms of cortisone a day. When our taper gets close to that amount, we need to taper v e r y slowly so our body has a chance to start producing again. It seems that taking prednisone, for more than a short taper, causes our adrenals to stop making our own cortisone and the adrenals need to kick in again to start making the normal 7 gms.

I hope your tapers go well!!

Blessings!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Posted By : broomhilda - 5/14/2008 10:55 PM

While the after effects of a taper can vary from person to person, you are suppose to let any doctors,dentists or surgeons know if you have been on any predinsone within one year of your last dose.  Just a reminder to those of you who may have considered taking this drug off your med alert bracelets and/or wallet cards. 

It took me about 2 weeks of withdrawal, i.e.; joint pain, insomnia, headaches and mood swings after my last dose.  I was on it for 2 years ranging from 60mg to 5mg dosages depending on what my stomach was doing on any given day.


Posted By : beave - 5/15/2008 12:52 PM

AlwaysRosie, I think you meant 7 milli-grams, not 7 grams.

Actually, it's not the same for everybody, and even for an individual, it varies from day to day, depending on health, stress, sleep, diet, etc.  I think a reasonable range is something like 6 to 15 mg's per day of natural steroid production by the adrenal glands.


Posted By : Zanne - 5/15/2008 1:09 PM
As Broomhilda said, a full year.  My doctors, yes all of them, insist that I wear a medic alert braclet for a full year telling everyone that I have been on prednisone. (That would be if I am ever successful with the taper, 4mg, yay).  But in the event of any accident, your adrenal glands might not kick in enough to save your life, and your doctors need to be aware of this.


Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Posted By : bonham1990 - 5/20/2009 8:44 AM
So I'm taking 3 20MG tablets a day of prednisone for only three days so I have 3 questions

1) what's the deal with drinking alcohol while being on prednisone?
2) what would happen if I stopped taking the last dose?
3) how long would that amount of prednisone stay in my system

I have a big party this weekend so I have to know if I can drink or not haha

Posted By : sr5599 - 5/20/2009 9:59 AM
I drink while on methylpred (like pred)... Like anytime you drink and are sick, just keep it moderated.

Take your prednisone exactly as your doctor prescribed it. Any other path could result in very bad outcome. It's not clear if you mean you have just one dose left or one taper week or ?? In any event, it's not safe to mess with doctor's orders on steroids.


--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone, Tysabri
--Prochymal in Phase III study (can't wait til it's approved!)
--currently taking methylprednisolone 40mg-taper.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


Posted By : karendee - 5/20/2009 10:21 AM
My new Doc started me on 40mg yesterday. My old Doc would prescribe a taper, right on the bottle it would have me starting with a higher dose then tapering every 2 weeks... I liked that but this doc is different...
 
I guess time to update my medical alert card again. I have a bracelet but it broke so I have my Med ID on my key-chain. And a card in my wallet.
 
Maybe I should get a new bracelet? I did make some of my own also but they keep breaking.
 
Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


Posted By : Kriss - 5/20/2009 11:51 AM
I'm not sure how long it takes to leave your body, but I know that when listing your meds (for doctors, etc.) you're supposed to list it if you've taken it in the previous 2 years.


32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


Posted By : heatmiser - 5/20/2009 2:15 PM
I had my worst depression when weaning down from 40mg. I thought 5mg wasn't anything to really affect me. Boy was I wrong. I haven't been on it since so I am a little nervous. I think I may get some soon as I'm possible flaring now. Most of the times I was on 20mg and didn't have any problems. My very first time on it after getting diagnosed was the hardest to wean off of as far as getting my symptoms to quiet. It took months and I kept doing this roller coaster thing with my dosage. They finally cut me off at a very low dose and I did fine.

Posted By : moedon1 - 5/27/2009 7:22 AM
Please, please, please follow the directions for weaning. If you do not have any ask your doctor to write them down for you. I have Iatrogenic Cushings Syndrome that is cause by the steroids. I have a Med. alert tag that states "needs stress dose steroids". I have been on Prednisone for close to 15 years now. I have had the experience of withdrawrals when I tapered to quikly. Get an edocrinologist as they can run the tests necessary for treating you. Always let all medical prof. know that your are on stroids.


Donna
 Formal diagnosis 3/2006, IBS 1992, Degenerative Arthritis Facet block and RFA, Seizure Disorder, Severe Carpal Tunnel both hands, SVT arrythmia, 2004 cardiac Ablation
Cushings Syndrome(thanks Prednisone), Asthma, Multiple Laps for ovarian adhesion to bowel, C/5 & 6 disc herniation - plate with screws, resistant to anethesia/most pain meds.  Chronic fungal infections.
Multitude of Meds. Have tried most Crohn's meds.  Gall bladder removal and Intestinal Lap. June 08.- Intestinal blockage July 08 moved on from on Humira..now on Cimzia.
 


Posted By : cindywchrones - 5/27/2009 10:02 PM

I am currently on 5 mg..I was up to 40 mg at one time..I felt the best I would say at 20mg, but the doctor wanted to taper off..He wanted me on 5 mg for 4 months..I started the predisone around the beginning of January..I had some real side effects, but my CD symptoms improved drastically..I had sweats, mood swings, insomnia..  I noticed a weight shift to my upper body and felt swollen but not a real difference in weight..  My gastro-intestinal inflammation and joint pain improved drastically.  I have been suffering from continual UTIs before and after..I was never told about a medical alert bracelet or having any issues..

 

Cindy


Posted By : Rose Immortal - 1/17/2010 7:29 PM
I have been taking prednisone for skin inflammation, and I was wondering about the weaning period. The prescription was for 1 month only, 10 mg for the first week, and tapering down after that--5 mg wk 2, 2.5 mg wk 3, and 2.5 mg every other day week 4.

Should something with such a short duration (and only 10 mg at the highest dose) be likely to cause major withdrawal problems? Or am I likely to be OK?

Post Edited (Rose Immortal) : 1/17/2010 6:32:13 PM (GMT-7)


Posted By : Nanners - 1/18/2010 9:04 AM
Hey Rose Immortal and welcome to Healingwell. You should be okay with that weaning schedule, it doesn't sound too fast to me. You may have some joint pains for a couple of days afterwards but it should get better pretty quickly. Good luck!


Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Posted By : Rose Immortal - 1/24/2010 6:45 PM
Good God, but the headaches and fatigue are killing me. I think it's the medicine itself, not the withdrawal, though. Down to 5 mg now so at least I'm sleeping at night, but I can't wait to step down my dosage again! Wednesday will not come fast enough...

Posted By : bigalial - 2/28/2011 1:10 PM
I was taking Prednisone 10mg for an unknown sudden severe allergic reaction that I had. Possibly iodine poison from seafood although never been allergic to seafood. Anyhow, my dosage instructions were as followed: 3 tablets 2x/day- 2 days, 2 tablets 2x/day- 3 days, 2 tablets twice/day 3 days, 1 tablet /day- 3 days. I ended up back in the ER twice due to the prednisone. I experienced almost every side-effect there is. I loss feeling in my arms and legs last thurs 2/24/10 while at work, couldn't walk, couldn't feel my tongue and had to be taken away by ambulance. The headaches are like no other. I have to take 3 exedrine extra strength and acid reflux, upset stomach, weight gain, slow movement, blurred vision everything has dam near weakened me. I can't sleep and I experience lightheadedness. The blurred vision is really scary. I had to stop taking the medicine before the last 3 days. Too many effects on me. I wasn't able to use the bathroom for about 5 days.

Posted By : Nanners - 2/28/2011 1:12 PM
Hi Bigalial and welcome to Healingwell. Just wanted to make sure you received a welcome. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!

Posted By : at - 2/28/2011 10:42 PM
I was on pred for around 4 months, had every side affect in the book. Everything but the moon face and the weight have gone. Glad to be off though

Posted By : HURSTY - 2/28/2011 10:52 PM
when i was on pred i started on 60mg for 2 weeks, then 40 for week, the 30 for week, then 35, then 30 and so on taking 5mg less each week till i got to 5mg then i stopped. my gastro nurse said it could take up to 8 weeks to fully get out ur system, eg you could still put weight on ect untill 6-8 weeks. for me i suffered with head aches and swelling in the face, after stopping the prd this stoped after couple of days but the weight still went on till bout 5 weeks after, not much but still abit.
 
iv also been on 40mg of pred for about 10 days and stopped it dead which my doc said i could do if its a short time on the drug, i had no side effects that time.
 
i hope this helps you out

Posted By : Selina32 - 12/11/2011 2:31 PM
I agree with everyone else. I had a lingering cough that got worse and worse over a period of 3 weeks (Also Asthma) to the point of almost passing out.

The doctor prescribed 6 tablets a day for a week then stop! After day two I found I was pinned to the sofa/bed dizzy and feeling sick also a thirst like no other I drank 6 litres of water in a day.

I phoned the doctor and he said to stop as I didn't feel any better I have managed to shift my cough almost and the inhalers are working great so maybe it did help a bit however 5 days later I'm still off work (Care Assistant) very giddy no way I can drive my care and unfortnately quite angry/snappy feel quite tense too -

I'm not sure if the side effects are worth it - i'm just worried about loseing my job now still hope to be back in two days.

Posted By : ScaredofPred - 1/9/2012 1:17 PM
PREDNISONE WITHDRAWAL HELL- EVEN WHEN ON LOWEST DOSAGE, EVEN WHEN TAPERED, EVEN WHEN ON IT FOR ONLY ONE WEEK!!! This is scary. I have taken Prednisone many years ago for asthma and never had a problem with it but over the holidays I had a very scary experience with Pred that lasts until today. I had bronchial asthma and did the tapered 10 day regimen with Prednisone and it cured my asthma immediately. Felt great! Followed the directions to taper off slowly and then after the final day (10 days total) I stopped it. That's when I entered and am still suffering in a hell that is Prednisone not wanting to let me go. Here's what has happened in just one week after being off Pred: 1. Gained 15 lbs in 48 hours. 2. Feet, ankles, legs became swollen to twice their size. 3. Extreme fatigue. Can't work. Can't walk more than 10 ft without having to stop. Shortness of breath to the point of feeling like I am going to suffocate. 4. Drowning sensation when trying to drink a glass of water. 5. Nervous tremors. 6. Feel like I might fall with my legs at times becoming very wobbly due to lack of any energy. 7. Lose my breath when trying to tie my shoes. 8. Become faint when leaning over. 9. Stomach distended and bloated. 10. Acid reflux flare up. 11. Have to stand or sit up many times instead of lying down, which will cause me to choke.

The swelling is going down very slowly in my legs and ankles. At this rate I am thinking I might be in withdrawal for a month or longer. I was fine, Prednisone cured my asthma, but now withdrawing from it is a seperate and much more severe problem than why I took it in the first place. Don't want to lose my job but seriously zapped of all energy. I lose my breath talking.

And I took the lowest dosage for the least amt of time it is prescribed. The cure was worse than the original problem.

Posted By : ScaredofPred - 1/9/2012 1:25 PM
 So how long until the withdrawal side effects of prednisone stop?  Was on it at lowest dosage and tapered off for only 10 days but still suffering from withdrawal.  No energy at all.  Almost like mono.

Posted By : expensive2keep - 2/19/2012 9:38 PM
I wound up in the hospital for allergic reaction to Avalox antibiotic and they shot me full of prednisone. Sent me home with 60 mg for 2 days, 40 for 2 days, then 20 for 2 days then stop. I went into anaphylactic shock. In the hospital for four days then they sent me home with the same weaning and on last day I went into shock again with tongue swelling, hives, throat closing, couldn't breathe, etc. I have never, ever been on prednisone in my life. Finally found a doctor who is weaning me off going down 10 mg every four days. While in the hospital and the first two days at home on 60 mg daily.....I was having suicidal thoughts...extreme as well as feet and legs ice cold, dizzy, fuzzy vision, extreme anxiety, acid reflux, extended stomach, swelling in the face and throat, whirring in the ears, numbness in the mouth and chin, extreme hunger and thirst and joint pain as well as headaches. I am slowly dosing down...on day 3 of 40 mg daily. They gave me all my pills at once at the hospital but at home I space them out. 10 mg at 5 am, 11 am, 5pm and 11pm. Thank God the mental side effects are gone and the physical ones aren't as bad with meds spaced apart. I still cannot lie down to sleep.....and cannot sleep for very long either. Half moon face started today. I have found that spacing my pills as well as eating a yogurt or toast or banana right before the meds and drinking milk with the meds helps curb the side effects. I have a friend who just went through the same as me and they just cannot get her off so she will have to take it the rest of her life and right now she has no energy. Someone could make a fortune on opening clinics just to get people off this nasty stuff! One curious side effect no one else has mentioned....I smell popcorn.....everywhere....a really strong smell. Has anyone heard of that? My DR said they cannot check to see if my adrenal glands are working until I am off the stuff. Won't that be too late? Is there no way you can tell if they aren't working when you are on your lowest dose?

Post Edited (expensive2keep) : 2/19/2012 9:00:20 PM (GMT-7)


Posted By : expensive2keep - 2/19/2012 10:01 PM
And why did the DR say I cannot take vitamins while on prednisone? Anyone know?

Posted By : dragonfly137927 - 2/20/2012 1:36 PM
I have been told once the taper is complete the side effects begin going away in about 1 week but the med isnt out of your system for 1 year..not sure how accurate that is but it was what I was told
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Posted By : Helmke/lee/c - 2/24/2012 11:47 AM
I was on Predinisone for 7 days 5mg pills 6 the first 3 days, and 4 pills the next 3 days and 2 pills the last day. I was suppose to take two more days of 2 pills each day but was not warned about the side effects. Now I am light headed, have had my pulse race and tired, very tired. Is this suppose to be normal. If I would have realized what this would do to me I would have never taken it. I was struggling with first Bronchitis, than Pneumonia, than pain in the chest. These are the reasons that the doctor put me on this stuff. I had been sick for 7 weeks when he put me on these meds. Will my body come back to normal, even without tapering the two last days? Are there things I need to know about that, could cause more issues? Are the symptoms that I am having normal? What happens when you taper to fast? Need some answers to these questions as I am going back to the doctor in 3 days.

Posted By : colls37 - 2/24/2012 1:42 PM
Sorry havent read the other responses,but i have had real issues with pred.yes,it does the trick for a flare,bv for me-last time,iwas on 40mg for two wks,then reducing by 5mg a week,pretty much the norm,except it totally trnd my head up side down in sideout.i suffer depression,but ths took me to anthr level.paranoia,didnt knw what or who i was, wanted to die,no anythng..,like id just had a stroke.it apparently takes twice as long to leave your system as you are on it.had it many times b4,and not sufrd,but did last time.my g.i has recently put me on budesonide steriod.it works out alot mre expensive acrding to my pharmacist,but didnt give me any issues,and is mre suitable for c.d in termimal illium.comes in capsules.sadly,i have now been placed on pred for a sinus issue for 3 weeks.Good bye sanity.
Crohns since 2000,right side colon removd,
current narrowing on re section
aza 150mg 18mnths
high strngth cod liver caps
B12 3 mnthly.
Fed up with it.was fine for ten years.

Posted By : deltaforce - 2/25/2012 6:06 AM
Looks like many who have posted in this thread don't understand that Pred is a drug you can't live with it and can't live without it. You can't take or withdraw it on whims. You are essentially playing with your adrenal glands here. If you mess them up, boy, you will end up with a lifelong problem. Follow instructions carefully. I mean, really carefully, especially when you are tapering as you want your Adrenal glands to chime in to take over the role/control.

The symptoms of pred can vary from person to person and although pred may be out of the system within a day or two (after last dose), the side effects can liner anytime between 3 months to a year. In my case, I put on a lot of water weight and it takes about 7 months to shed all that weight. This time I am going to try diuretics for the first time (if my GI Rxes me) to see if I can shed that weight rather quickly.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily, Butterbur 150mg daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

Posted By : daisy74 - 3/6/2012 5:00 PM
OK, I was searching online for answers to why I feel so awful and what is wrong with me. I was put on 2-20mg pills per day for 5 days. And then nothing, just cold stopped. I'm a little worried now, as I see that Prednisone is something that I should have been tapered off of instead of abruptly stopping. Of course, the dr never mentioned this at all, nor did she offer to tell me any of this when I called twice to tell them I was having some crazy symptoms, felt terrible, and was concerned about it. I was told that maybe the antibiotic that I was taking along side the Pred didn't cure the ear problem and that could be the cause of my symptoms, so I was given another antibiotic and told that if they didn't clear by the end of this round of antis to make sure I let them know and to def come back in to be seen. Seriously?? Now I'm wanting to call the dr and give her a piece of my mind for not making me aware, at any point, that this is serious medication and that my body should have been weaned off of the 40mg per day. I am a little po'd right now. Actually I'm a lot po'd and would like someone's advice as to what I should do now or how to get over these symptoms...nausea, light headed, dizzy, almost passing out several times, headaches, blurred vision, feeling like my head cannot keep up with my body, crazy appetite and cravings, sudden red and hot face, heartburn, feeling weak and exhausted, just overall feeling not normal in a weird way. I really thought something was terribly wrong with me until I started reading and realized what was going on. Now I'm wondering about this adrenal malfunction thing too? Help!

Posted By : gumby44 - 3/6/2012 7:01 PM
Hi daisy,
My understanding is that if you are only on Pred for 5 days, then you can stop without tapering, and it won't affect your adrenal glands. Those problems happen when you are on Pred for a longer period of time. I am not a doctor though, and if you are having such bad symptoms, then it is time to call your doc and get seen. How long has it been since you stopped the Pred? Try not to get too angry at your doc....it is not unusual to be given a burst of Pred for 5 days and then stop. It depends on what they are giving you the pred for. More importantly, is that you don't feel well and need your doctor's help. I hope you feel better soon.
53 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Also have IBS. Disease spread 12/11 to distal ileum Dx. with c.difficile and gastroparesis 1/12.
MEDS: Pentasa- 6 500mg pills per day, Omeprazole, Xanax for sleep, Phenergan, Domperidone, probiotics

Posted By : Ohheyrachrae - 3/13/2012 6:02 AM
I am so relieved that I found this. 10 days ago I was given Prednisone for an allergic reaction in the emergency room, I was given this once through an Iv then sent home with a perscription 60mg once a day for 5 days. I started feeling absolutely horrible 2 days after starting this medication and every single day it has been worse since then. I feel better for the first hour I wake up and I am hoping that this is almost over, I will never take prednisone ever again. My symptoms have been rapid heart beat, anxiety, dizziness, nausea, head aches, blurred vision, hard time catching my breath, wobbly, I can not stand for more than 30 seconds or I am very afraid I will pass out, numbness of tounge, mental fogginess, extremely emotional, constantly hungry, I really can't explain how I feel. I explained it to my husband as virdigo feeling but i can not describe it I over all feel not myself and out of it. I started experiencing all of these during the 5 days of taking this medicine and after.
I want to know when I am going to start feeling better. I am scared to drive, and I am a stay at home mom of two little girls and I haven't been able to take care of them at all. I am starting to get scared that I will feel this way forever. If anyone that has had these symptoms please respond and let me know how long this lasted and hopefully you don't now. This is such a horrible thing to go through.

Posted By : JustMeSue - 3/16/2012 3:09 PM
Ohheyrachrae...........I started taking prednisone 15 days ago. I was being treated for a very severe allergic reaction to an over the counter supplement. My dosing was 3 10 mg pills per day for 5 days, then 2 10 mg pills per day for 5 days and then 1 10 mg pill for 5 days. This morning I took the last pill.

It helped my allergic symptom s greatly. However, I have experienced shakiness, weakness, excessive urination and feelings of low blood sugar. I am incredibly tired and my arms and legs feel wobbly and it feels like I am just exhausted at the slightest task. I too wonder if I am ever going to feel better/normal. After helping me breathe better initially, now I feel as though I can't breathe all sometimes. I don't know if is the prednisone or the remnants of the histamine response from the allergic reaction.
Even after the offending allergen is out of your system, the histamine reaction symptoms from the allergey can continue for up to 6 weeks. I felt okay on teh prednisone for the first 5 days, too, then felt worse, now feeling better again. The prednisone is taken to calm your body's immune response to the allergen. Are you taking any antihistamines to block the allergen leftover sytmptoms?

Please contact your doctor and verify your symptoms. It may be temporary, or it may be that the pred is making you worse. I called my doctor and told her I was shaking all over and sweating and she assured me that this is just my body coming down from the prednisone. I am better now as the dose as tapered down, ...improving anyway although slower than I expected.

Posted By : rainbow52 - 4/24/2012 4:12 PM
I WAS ON PREDNISONE RANGING FROM 60 MG DOWN TO 5 & 10 MG FOR HIVES AS SOON AS I DROP OFF ALTOGETHER LIKE NOW ITS BEENA YR AND NO DR CAN FIGURE OUT WHY THE HIVES. MY DERMOTOLOGIST TOOK 7 BIOPSY'S ALL IT CAME BACK IS AN ALLERGY TO SOMETHING BUT THEY NEVER FIGURED OUT WHAT ITS VERY FRUSTRATING. I'M OFF IT NOW FOR A WK AND I HACE HORRID JOINT PAIN THEY TESTED ME FOR LUPUS BUT CAME BACK NEG THEY TOOK SO MUCH BLOOD FOR A MYRIAD OF TESTS TO NO AVAIL. SO I HAVE TO BE OFF THE PREDNISONE FOR A MONTH SO THEY CAN TRY A PATCH TESTAND EVERY DAY I WAKE UP WITH HIVES THAT SPREAD AROUND MY BODY DAILY. I TAKE ALLEGRA W/PEPCID (MY ALLERGISTS IDEA) ALSO HYDROXYZ HCL 10MG FOR THE ITCH I'VE SCRATCHED MYSELF TO SCABS AND NOW AM SCARRED UP,

Posted By : Luigicody - 5/17/2012 6:39 PM
I was prescribed prednisone 60 mg x 5 days, then 40 mg x 5 days,then 20 mg for 5 days with Valtrex for 7 days for a diagnosis of shingles. I took my meds faithfully for the first seven days but was feeling so horrible from side effects of prednisone that i just had to stop. I was bradycardic (40-50 bpm lower than my normal), felt irritable, my stomach felt bloated like it was going to explode, i couldn't sleep for more than an hour at a time...if that. I felt out of my body and definitely not myself. I gained 4 lbs and feel like it is all in my face and abdomen. What should i expect with my adrenals and return to feeling normal. All the above effects went away except weight and abd bloating within 24-48 hours. I did have muscle achieness, like numerous tetanus shots,but that has also resolved. Should i have the ACTH test done to check adrenal function?

Posted By : sours - 6/8/2012 5:37 PM
My husband was hospitalized in February from the 7th to the 29th, he was neutropenic along with other things. It took them almost the entire stay, and 3 biopsies later, to figure out the problem. He was diagnosed with Non Hodgkins Lymphoma. Before the diagnosis, he had been put on 3 different antibiotics and they had started him on steroids. Once he was discharged he was told to continue the steroids. They started him out on a low dose chemo, and just this month started him on the RCHOP treatment. Part of the treatment is 100 mg of steroids for 5 days. After the first treatment, they had him taper down to 5 mg a day, this last treatment, they had him quit cold turkey. It's a week later and he is showing all of the signs of steroid withdrawal. The oncologist responded by saying, 'the labs were fine Monday.' Everything I've read says that they shouldn't stop cold turkey, especially after being on them for as long as he has been. So far we've been able to treat the symptoms, but when the medicine wears off he is right back to feeling like crap.

Posted By : chrisputt57 - 7/25/2012 9:54 AM
I have been wondering this since I was just diagnosed with a auto-immune/skin issue.  I was given prednisone 8 days ago and stopped taking it 4 days ago (20mg 1x per day).  The Dr says that my condition is likely to flare up again once the prednisone is out of my system.  I'm trying to figure out how long that will be - so I can be somewhat prepared.  THANKS!

Posted By : Somedude - 7/25/2012 11:57 AM
OMG....check out how many views on this thread! Whoa!!!
DX Ulcerative Colitis (panchocolitis) - May 2011.

"Life is like a box of chocolates; you never know what you' gonna get. " by Forrest Gump

Posted By : Ishiman0627 - 7/25/2012 3:46 PM
It's probably the one thing all of us have in common aside from having the disease, which is somewhat different in everyone. But I'm sure we've almost all been on pred at one point.

@chris, if you were only on it 4 days I wouldn't expect it to stay in your system long. I was on it around 9 months, from 40 down to 5, and up and down between those ranges during that period as I had trouble weaning. When I was finally off of it I was on another medication to supres my CD symptoms, I don't know what issue you have but would there be a "maintenance" medication you could be put on? With IBD patients the idea is to get the Pred to quickly calm the inflammation and then switch to something else to keep it at bay.
33 - DX 06/23/11 with Crohns Ilecolitis
Meds - Remicade, Xanax, Zoloft, Prilosec, Coreg, Lisinopril, Lasix, Klor Kon
Drug Allergy to Imuran - Sepsis / Renal Failure / Pancreatitis
Crohn's seems to be doing ok, currently dealing with edema in ankles and feet.

Posted By : WendyV - 8/12/2012 8:09 AM
I can relate to many of the posts regarding w/d symptoms, and relieved that the nasty symptoms WILL recede, given time. Re the post about HIVES, pred was prescribed for me as I developed skin rash following insect bites. I have experimented and found that crushing some tabs and just damping with water...enough to make a paste, and then using topically on rash, gives relief from itching!!!!! Better than swallowing the darned tablets! Hope this is of some help. Best wishes to all of you.

Posted By : WendyV - 8/15/2012 1:53 AM
Just read that vit B5 can assist with kick-starting adrenal glands following w/d of Prednisolone. I'm going to give it a try, although my symptoms aren't dreadful, they are making life a little difficult!

Posted By : dorri - 8/16/2012 8:14 PM
I've been on prednisone for close to 30 years. This pass fall I went off completely. I tried to wean before but was unsuccessful and ended up with intolerable joint pain and constant crohn's flare ups.
This fall I stuck to it, and didn't give in. At first I thought I would die, with weakness, heart palps and caught every little cold, flu, virus and even pink eye. This went on for months and I'm still not 100% like I should be but I'm pretty much pred free but.....
This past month I was put back on pred for a 6 day short term treatment to settle down a small bowel obstruction. I feel better, today is my first day off the medication again, and so far no withdrawal. I was told for short term treatment there wouldn't be any withdrawals.

Posted By : Question Everything - 8/30/2012 8:12 AM
I'm not trying to be smart, have you ever read about Prednisone in the PDR Physicians Desk Reference manual ? I did years ago, from what I read the body stores it in our fatty tissues and it stays there quite a while. To be honest with you I had the book shoved in front of me and was told to read it. I was also shown some of the side effects, but what was pointed out was it was not for general use but was for targeted for the terminally ill. Now that happened over 20 years ago. But still look for a PDR.
I was Lucky I only did a 10 dose, increase to day 5 and decrease to day 10 no side effects that come to mind.

Posted By : Allanlom - 9/17/2012 7:02 PM
Can anyone help me.. I am now stop for using steroid for my toxic optic neuropathy, problem with the eyes.. Has been on steroid from 1 gram of metilprednisolon injection (IV), and using it till the tapering off for about three weeks.. Now im allready stop using it.. The problem is with the moonface, do people here have a bloating under the ear? Right behind the jaw? Is it the moonface blowting looks like this?has anyone experice it??

And why ehen i stop using the steroid theres a lot of acno keep showing in the face and neck and my back, just a red kind of acne.. Has anyone experice this two problem?

Posted By : Question Everything - 9/17/2012 7:18 PM
Allanlom,
check out http://www.webmd.com/a-to-z-guides/moon-facies
The last paragraph is the crux but read the page, it may be what your looking for.

Posted By : Allanlom - 9/18/2012 2:22 AM
Thx sir.. Id been off from the storid for sbout 4 days, but you know how uncomfortable i am with this moon facies,.. How long usualy this moon face take times to become normal again? Since id been using steroid for about 3 weeks..

Posted By : Question Everything - 9/18/2012 5:31 AM
It will take time for your body to purge your system. I know you don't want to hear this, but, there are some things you can control and some you cannot. Stress is not helping, you need to be more relaxed about the time frame.

read this page: http://www.medicinenet.com/methylprednisolone/page2.htm I read it and kept reading following articles and links. give it three weeks The amount of time you took the medication. I read many pages about it. The odd part is understand most of it. That stuff is like a big hammer. smack your thumb and its going to take awhile for the throbbing to diminish.

Posted By : ozonehole - 9/21/2012 5:15 AM
Some people might rake me over the coals for saying this, but I'm convinced that pred is really not worth it. I did try it a few times for a brief periods, and the side effects hit me hard after only a few days. In my case, pred caused glaucoma (excessive eye pressure) which can lead to blindness. I noticed my vision was getting bad so I went to an eye doctor and was told in no uncertain terms that I could never take pred again. And so I haven't. To judge from the horror stories that others are describing here, I count my blessings.

So what to do in a flare? No easy answer, but try any inflammatory except pred.

Wishing you all good health,
Roberto

Posted By : Arya S - 4/5/2013 6:09 PM
I'm about to start my 5th week off of Pred after 8 weeks on, tapering from 40mg down every week. I think people are right that it's different for everyone and that it takes a lot of time for your body to regulate. I personally seem to still be having mood swing & headache issues, though they are becoming less frequent.

Posted By : Ides - 4/5/2013 6:28 PM
Welcome to Healing Well, Arya! You posted on quite an old thread so many might see your post. Feel free to start a new topic and tell us about yourself or ask any questions you might have.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Posted By : Ides - 4/5/2013 6:29 PM
Locking this thread because it has exceeded the total post numbers.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

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