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Posted By : onthecan - 6/10/2009 5:43 PM
 just had a scope done a week ago now and the doctor called me today to book me for another I wasn't pleased to say the least I do recall waking up in the middle of the scope crying and screaming for them to stop Dr.Williams said the colon went okay but the rest she couldn't even fit the scope through I only have a small amount of bowel left and now I need a dilatation I guess a double balloon I never had one before can anyone shed some light on this for me is it gonna hurt I'm scared this time I hate scopes as it is now I gotta get this?Anyone had this done?My stricture is about 8inches I think that is what she told me?Please help me?Jenn Frustrated In The Anal Area? mad sad redface


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Posted By : gumby44 - 6/10/2009 7:28 PM
I'm sorry you are going through all of this. I can't offer advice on the dilatation, but can the doc give you better drugs so you don't remember it or wake up? That sound like an awful experience!


50 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation


Posted By : onthecan - 6/10/2009 7:43 PM
Hi Gumby I really hope I don't wake up this time that scares the you know what out of ya?They said this time that they would be giving me sedation and if they don't than this kid won't be going I hate laying there waiting 4 something to happen and feeling the pain that is what scares me the most I swear the older I get the worse it gets when I was a lot younger things like this didn't bother me so much I knew I had to have it done but I'm older not wiser and I can refuse these treatments like this I don't want to cause I know they could help I guess with any new procedure its a little worry some y know,thanks 4 listening to me vent?Jenn


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Posted By : tiaeight - 6/10/2009 9:43 PM
I had colonscopy today. My doctor could not get through because of blockage. I was totally sedated and he is a great doc. However, it is now time for surgery...

Posted By : onthecan - 6/11/2009 12:34 PM
tiamarie said...
I had colonscopy today. My doctor could not get through because of blockage. I was totally sedated and he is a great doc. However, it is now time for surgery...
Hi Tia sorry to hear that you have to go to the OR is there nothing else they can do for you instead of operating like the dilatation would that work for you idea   my problem is that I can't have any more surgery at all there just isn't enough bowel left so whats a girl to do?Good luck to ya I hope everything goes well keep me posted I'm curious to see what happens with the surgery will they go in and remove the blockage like another resection or what?Jenn


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Posted By : Skylardaisy - 6/12/2009 10:30 AM
I have a stupid question.
What does it mean when during a colonoscopy, the scope cannot enter the small bowel ? I know these scopes are only meant to see the colon, but twice my doctors have tried to get through to the ileum and couldn't because it was too small of an opening. Does this always mean stricture? They have never really explained this to me and just acted annoyed like it was all my fault ! The pain was horrible. Thanks.

Posted By : onthecan - 6/12/2009 11:07 AM
Skylardaisy said...
I have a stupid question.
What does it mean when during a colonoscopy, the scope cannot enter the small bowel ? I know these scopes are only meant to see the colon, but twice my doctors have tried to get through to the ileum and couldn't because it was too small of an opening. Does this always mean stricture? They have never really explained this to me and just acted annoyed like it was all my fault ! The pain was horrible. Thanks.
Hi Daisy that is what is usally wrong as far as I know anyways but it could also be a blockeage or like I said a narrowing called a stricture which is my case,the scope can't be forced were it can't go the opening is just to narrow so they try a double balloon dilatation first through the scope and hope that will correct the passage through,my belly is swollen everyday it never goes down any more I look like I'm expecting if u know what I mean I'm on Humira now and seem to be resonding to it 4 a change the only problem with that is I always had severe diahrea now I am having formed stools which are as skinny as a noodle but very hard to pass so until this problem gets taken care of I have to go of the humira and run to the bathroom steady again cause I had so many bowel obstructions in my past there worried if I continue with the humira that may happen and I ruptured 3 times now that is also a huge fear of not being able to pass stool through the body so now I'm on a liquid diet again not so bad I got so much pain its not worth eatting any more u know.I hope that answered your question a bite if not feel free to send me an e-mail.Jenn


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Posted By : Skylardaisy - 6/12/2009 11:19 AM
Hi Jenn.
Thanks for your reply. You explained things really well. I never could get an answer from my doctors. I had 2 small bowel follow throughs in 2006. One showed many strictures, the second one showed none. All my doctor said was that no surgeon would touch me now ??
Wow, you have had a really rough go with this disease ! You certainly sound positive and upbeat. How do you do it ?

Posted By : onthecan - 6/12/2009 5:49 PM
Skylardaisy said...
Hi Jenn.
Thanks for your reply. You explained things really well. I never could get an answer from my doctors. I had 2 small bowel follow throughs in 2006. One showed many strictures, the second one showed none. All my doctor said was that no surgeon would touch me now ??
Wow, you have had a really rough go with this disease ! You certainly sound positive and upbeat. How do you do it ?
Hi Daisy beer beer and more beer haha just kidding all though this warm weather just screams beer doesn't it?I can't have surgery any more either they never really gave me a good enough reason other than I wouldn't thrive but I like to think that I'm strong and could pull through any thing headed my way?First they will try the dilatation with me and see how that goes sounds like u know right what I'm talking about do they have the pill-cam were u live I'm from Nova Scotia Canada by the way and u if u don't mind me asking? TTYL Jenn


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Posted By : Skylardaisy - 6/12/2009 10:22 PM
Hi Jenn.
I live in Manitoba. It's nice to meet a fellow Canadian !
Yes, I have had the pill cam twice. All of my other tests were inconclusive but the pill cam very clearly showed Crohn's activity both times. The doctor who read the results said that he thought there were strictures present, but he wasn't positive. I got to see some of the pictures. Those ulcers aren't pretty.

Posted By : onthecan - 6/14/2009 11:44 AM
Hi Daisy wuz up?Its nice to find a Canadian on here there isn't many ah!So how r u feeling?Sou need surgery 4 sure how many did u have so far I had to many to count but you'll do fine I'm sure all us crohns people r tough as nails we learn to be anyway don't u think u learn to live with the pain E.T.C.Ttyl Jenn


Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


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