|I am brand new to this sight. Both of my children have cystic fibrosis. I work full time and go to school full time. I need advice on how to answer those hard questions like; "why did God give me and my brother cf?" and ; "am I going to die?"
My children have been in excellent health and have not been hospitalized in two years!!! I am crossing my fingers! I am divorced from their father who has no contact with them. So, I deal with all these questions on my own. I ask the advice of professionals, friends, family, and anyone who will listen. Though I appreciate their advice, I feel that they are not dealing with it in everyday life, and I am hoping to have contact with people who do. I feel that the more time that goes by, the harder it is for all involved to deal with this. There was a support group that met a few times a year shortly after my daughter was born. But they do not meet anymore. I found it helpful to talk to those who do deal with this everyday. I would love to hear from anyone who would like to communicate!!!