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Posted By : SickJames - 7/3/2010 6:00 PM
Hello all, I'm James. I'm an Ozzie living in Calafornia, 20 years old and I have Cystic Fibrosis. I'm new to the fourms so I'm unfrimilar on how activly you cysters and fibros use it!!

I was wondering I any of you had any weight gain tips. I'm not to sucessful, my lung function is non existant, but any help I will accept!

I'm also on the transplant list for lungs and liver. Been on the lung list for almost a year and three weeks!

If anyone uses the fourm, I'd love to hear about you and your family/self CF struggle. Keep on breathing!

Posted By : norasmith15 - 7/3/2010 10:34 PM
well im new to this site to but i had to gain like 25 lbs in like 2 months and it took me forever to find something to drink that wasnt nasty! I tried the instant carnation breakfast stuff Nasty! ensure is okay but it gets old after a while so now i drink like 10 a week and that helped me gain my weight in time! Also like Ice cream is good! lol im addictied to the ones at sonic (Butterfinger blast) there awsome and i eat thoughs ALOT! thats alot of weight gain if you eat enough..lol! I always try to add fatting when i excrise so i keep my weight up!
In about 2-3 years im gonna have to be on the liver Transplant list...how did you keep your body in good shape when you were a teenager??!! Im 15 and im pretty sick for my age! turn but anyway hope these tips work for you!

Posted By : loopylass - 7/4/2010 12:39 PM

Hi James!

For over a year now I have been doing NG tube feeding and that has really helped to boost my weight.  In the first five weeks I put on 4kg!  tongue

Some people don't like the idea of passing the tube but it really does get easier with practise and now I can pass it in about 10 seconds!  I really would recommend it to you.  I also have tried various supplements (Calshakes and Fortisip milkshake style drinks) but the NG feeding has really kept the weight on and I am the heaviest I have been for a couple of years.

What have you tried so far?

Leo 


Posted By : norasmith15 - 7/4/2010 3:32 PM
what is the ng tube?? Is it a tube that gets passed through your nose into your stomach??

Posted By : Gemsi - 7/6/2010 6:30 AM
Yep, that's the one.
Means you can have over-night feeds and the like. :)
 
I used to like Skandishake, you can make alsorts out of Skandishakes. Stopped them now, as I'm at a decent weight thanks to anti-depressants. But, they were definately a good weight stabiliser for me, as I could make each one different, so never got bored.


Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, DNase Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.


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