|The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=18&m=1846824|
|Posted By : clkcf15 - 7/10/2010 9:45 PM|
|hi, my name is kate. I'm new to this site but not to cf. i was diagnosed when i was a few months old. Growing up with cf has certainly been a struggle but it has taught me so much about life that others simply wont understand. i am currently 16 and was curious to see if there is anyone else who is my age because ive never even met another person with cf, ever. (part of the joy in living in a small town...and state haha)|
|Posted By : clkcf15 - 7/13/2010 9:44 AM|
|wow i'd say so! haha. So you probably already know that there are a bunch of different types of cf, so i was wondering how it affects you...|
|Posted By : midge-lea - 3/9/2011 5:03 PM|
|Hey i'v was diagnosed with CF when i was 6 weeks old, although we'r not supposed to mix i have met a few others with CF, i was in doncaster hospital as a child till i was 16 i made an early transition to the adult unit as i had differences with the nursing staff, i had a couple of friends but as it is good to meet and discuss, it can be very upsetting as i lost a close friend with CF he was only 16 when he died, as for the others i lost touch when i swapped hospitals and have no idea how they are now. although i did enjoy spending time with them cos there isnt anyone who gets CF as much as someone else who has it. it can be helpful to chat to someone which is why i feel sites like this are good. if you have any questions just ask, id be happy to answer. xx|
|Posted By : rhi18 - 6/22/2011 6:26 PM|
|Hi Kate, I have CF and i turn 18 in 3 months! |
I lived in a small town, but knew a girl a few years older than me with CF, she has it worse than me and still often goes into hospital. Which is something i have done since 2006, touch wood. We still run into each other at Clinics every 3 months and she's looking healthy.
A doctor told me i should get in contact with a 20 something year old lady in a town 3 hours from me to have someone to talk to, but for me, talking is the last thing i want to do, especially about CF. Makes it all seem to real when I'm living my life just the way i want. As a kid i never really took notice of having it, i did my nebs, took my tablets played sport it was all routine, then i became a teenager and shopping and boys all that stuff became 'important' and i started lacking in my treatment, and to be honest, i still havent picked up the slack! I miss nebs some weekends or when i just 'cant be bothered' i dont do it, bad attitude and i gotta change it. My boyfriends always on my back of a morning when i dont do it or asks if ive had my tablets (which i always do, dont want a sore tummy!) and my friends are really good about it too.
Basically you can live a perfectly normal life (just get up earlier than everyone else!), party, go out with friends, have sleepovers, have a boyfriend!
Just stay positive! Fight everything.