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|Posted By : Screaming Eagle - 11/8/2010 6:37 PM|
|Hello CF members!|
I'm not sure if you all know Vanessa, but in case you do, she is in surgery receiving a set of new lungs at this moment!
She has been visiting the CP forum, but I thought maybe she visited here as well, since she has CF.
I will post more as I receive news on her. We are in touch with her mom and boyfriend.
Thank you for your time,
SE/ Screaming Eagle
"She is a minor, and we do have permission from her parents to post about her here."
Post Edited (Screaming Eagle) : 11/8/2010 5:50:54 PM (GMT-7)
|Posted By : Screaming Eagle - 11/8/2010 7:59 PM|
|OK here is the latest! She is out of surgery, and it looks like it went well. She is by no means out of the woods, so we will keep a watch tonight with her parents.|
They are now in the recovery room with her, as well as her boyfriend. The next 24hrs are critical for her. I, or Pebbles125 will update when we learn more.
Her parents are very well aware of the HW CP forum and many of the members here, and greatly appreciate all prayers for Vanessa and the family.
I have talked to the boyfriend by text, and he has been by her side almost every night.
Thank you so much for your comments here. I call Vanessa our HW CP or CF poster child, and she is such a sweet and very respectful girl. Very polite to say the least!
|Posted By : Gemsi - 11/9/2010 3:54 AM|
|Hi there SE,
The name Vanessa does ring a bell, I'm useless at remembering people as they have passed through, and haven't been on here for a while.
Wow though, what fantastic news! To hear of anyone getting new lungs is great news. People have to wait for years sometimes, and a lot of the time lungs don't come in time. I wish Vanessa the best for a speedy recovery, and lots of fun settling into a new life where her lungs aren't stopping her so much.
All the very best
|Posted By : stingray - 11/9/2010 4:59 AM|
|Thanks for letting us know Eagle. Will keep her and her family in prayer. Please keep us updated. Please send her and her family all my best wishes and prayers. Thanks
|Posted By : Screaming Eagle - 11/9/2010 6:01 AM|
|Hello Ray and Gemsi! |
I just talked with her boyfriend this morning and she is doing well...but they need her to of course keep it up.
There is a little more discussion on the CP forum, so if you all want to, you can visit us there and read up on her.
We don't bite over there on the CP forum, so come visit us! :)
|Posted By : ellie-oop - 11/9/2010 12:52 PM|
|Hey great news SE,just read your post.
Thanks so much for keeping us informed about our lil angle.
|Posted By : Screaming Eagle - 11/10/2010 10:46 AM|
Hello ellie! Van is now awake and breathing on her own!
The surgeons and Dr's are very pleased with her progress!
Such a relief for her family and us as well!
If you wish, please go to the CP forum for the latest updates on her.
SE:) also tell Fishmike I said hello too!
|Posted By : Screaming Eagle - 11/13/2010 4:43 PM|
|Just wanted to post one last update here for the CF members on Vanessa's recovery. |
She is doing fantastic, and should be released from the hospital is she continues to do well.
We actually saw her post on the CP forum today, and I spoke with her by text last night. She is doing wonderful, and enjoying breathing on her own for the first time in a very long time.
I know some of you have been following her progress, and thought you all might be encouraged by the news.
Take care and bless you all!
|Posted By : Gemsi - 11/15/2010 10:34 PM|
|Awsome news, here's hoping to an even speedier recovery once Vanessa is home!!! I'm guessing by this that they have got her antirejection meds spot on, which is fantastic. |
Thanks for updating on here too
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, DNase Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
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Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
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|Posted By : tmjpain - 11/15/2010 9:52 PM|
Vanessa had a turn for the worse yesterday evening. She's back on the ventilator and has six
chest tubes now. We need prayers now. Follow on the chronic pain forum for more updates.
One day at a time!!