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Posted By : football wife - 3/22/2011 1:55 PM
Has anyone found or heard of any inpatient treatment centers for medical compliance, depression, etc.  We need help for our daughter who refuses to do all she needs to do to stay healthy as possible and so depressed - 19 yrs old.

Posted By : andrdyb - 3/26/2011 8:53 PM
I don't know of any who handle medical compliance, but I know of places who treat depression, etc. Are you in the US?

Posted By : Gemsi - 3/28/2011 8:10 AM
Hi,
 
I'm not sure there would be a place that deals with medical compliance. It's a big problem, but most people go through pahses of it/grow out of it. Most people with CF at some point have gone through stages of missing treatments. Sometimes it's boredom that causes this, immaturity, wanting to be the same as others, or just not feeling the benefit of taking their medication. As a kid I was a nightmare, at school throwing enzymes in the bin so people would think I'd had them. When at home in a morning before school, I'd move really slowely so noone would notice I hadn't done my physio in the rush for school. I've grown out of that now, though sometimes still have bad days.
 
19 years old, you're wanting to mature, but can't be bothered too. Wanting the right sort of responsibility, not the tiresome part that keeps you alive. You want to be like everyone else, and that means no tablets, no physio, no nebulisers. Not that this helps of course, becasue you do need to shake that attitude off pretty quick. I only really took notice a few years ago when I gave up work as I was managing about 4 hours a week in the end and the rest just sleeping and needing IV antibiotics once a month, which wrecked my veins and made me need a port-a-cath. It was a wake up call that I hadn't been looking after myself.
 
Depression can certainly make things worse, and this would need to be jumped on promptly as feeling of worthlessness can certainly make doing treatment a lot harder to manage. I'm in the UK so not sure of the services elsewhere. Think like medical counselors are good for just talking through this. A non-judgemental ear you aren't attached to in anyway can be a god send. Psychiatrists would be good to look at from a medication point of view. I've always found the medication I will not miss is my antyidepressants as once they started to make me feel better, if I miss a dose now I feel how I used to feel and that was a horrible place to be. I'm sure theirs somewhere online that gives you lists of these sorts of people in your area, though I can't remember the website address.
 
Hope this helps and hope things start working out for your daughter soon.
All the best
Gem

Posted By : ~August~ - 8/3/2011 9:39 PM
So I'm not exactly an expert on such things myself- I'm 18, going to college next week (*finally!*) but I know my parents are worried about this, as any other parent would be. This sounds really exaggerated and bragging and *yay me* which is not who I usually am- but I have had ONE episode of non-compliance that was ONE WEEK. Yeah. And it was not taking pills- I still did the treatments. But let me say- parents DO NOT give kids (especially teens) credit for what they do in terms of treatments. My parents never said "hey you've done a good job keeping up with your treatments and stuff this week" until I was non-compliant that time. Yes, I say never. Never never never never never. They just sort of jumped down my throat/flipped out when I stopped doing them. The other thing that REALLY compounded my non-complance was being on prednisone. It was never explained in such a way to me that made the torture I undergo on it worth it. The *slight* chance that there *might* be a *possible* improvement on CT to me will not probably ever justify me poisoning myself and making myself and those around me utterly miserable in the process. It pretty much undermined the anti-depressant meds I was on at the time, and I went into full-blown depression. I couldn't keep going through the miserable life I felt I was leading at a time I was supposed to be most happy. I graduated highschool and was utterly miserable through my own graduation and graduation party due to no fault of those around me. I couldn't keep a straight train of thought. It was awful. And it sapped me of what usually kept me going. So I stopped. Everything.
Non compliance isn't always "I somehow think I'm going to un-give myself CF by not taking my meds". Or something that sounds equally rock-dumb when you actually say it out loud. I don't really think any of us- even and especially teenagers are that dumb. No. Sometimes we just run out of strength. And that's when we stop. If you show us you care and that someone else is there besides us, it can go a long way.

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