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Posted By : gamejunkie - 6/16/2005 11:35 PM
im 14 year old male with cf,diabetes ,nocardia,liver disease,and hypertnsion. but the worst part of it is dealin with it every day. you should the treatments the the pills its enough to drive you insane. also the  times when you forget your pills or something and feel like crap the next day. its so much responsibilaty were only teens i mean my faverit thing to do is play video game and hang out with my friend. and sometimes it stops you from that. the basic right of being normal.  also when i meet some one i dont say anything about me having cf because if you don't let them get to know you they will act like you should live in a bubble and not play contact sports or go out at night and thing like that.
thanks for readin my mesage and if you woulld like to talk my aim acount is teengamer101

Posted By : gamejunkie - 6/16/2005 11:36 PM
sorry i ment you should knew

Posted By : BillyBob55 - 8/4/2005 10:06 AM
u can talk 2 me anytime, i'm 15 nearly 16 and i would like sum1 to talk 2 as can I help?

Posted By : kristins mom - 9/13/2005 2:16 PM
sad   my little girl has been gone for 4 years, 10 months, and 11 days.  She passes away in Ft Worth Texas from CF.  I miss her so bad that I find myself pulling away from my 6 year old son that also has CF.  I love him so much but I'm afraid I will lose him too. My daughter was 10 and I'm so angry with life.  Can anyone help me with suggestions of how I can move on and enjoy my son?  I should add, when my daughter died, I pulled inside myself and tried to never come out.  As a result, my son has developmental disabilities from being secluded from other children, going places, etc.  Now I have such guilt because I love him so much but I'm afrid to expose him to the big world in case his CF starts to progress.  Please help me--not just for my sake but for that of my son.

Posted By : Twinstride - 9/15/2005 12:41 PM
Dear Kristens Mom,

I can certainly feel your sorrow right now in my heart and tears in my eyes. I have twins with CF and feel the same way even tho my twins have yet to pass away. You know, when my boys were first diagnosed, they told me from the moment of diagnosis that this starts the grief process. This is what you are experiencing. May I suggest that you seek counseling or see your doctor to feel better, it's a real diagnosis...greif and loss of a child can take a toll on your health, mentally and physically.

All within a years time, I lost my grandmother, my dad on christmas day, my aunt the next month, my twins were in very bad shape in two different hospitals then their diagnosis which pushed me over the edge almost. I needed some help and I think you do too right now. Your shoulders are heavy right now, please, seek some help to lighten the load.

Let me know if you wish to talk some more in private.


Mom to twins with CF, if there is a cure found would hear this mom "ACROSS AMERICA" YESSSSSSSSSSSSSS!!!

Posted By : Twinstride - 9/15/2005 12:44 PM

I cannot feel your dilemma, but, I can feel your distress. It's good that you have a place to go to seek comfort and make new friends to talk about this to.


Posted By : oppie - 9/18/2005 3:33 AM
hey there.... my names olivia im 18 and i also have cf... i dont have all the thigns you do... but i do do my treatments and i have panceatist? i dont know how  to spell all these stupid names for stuff... u know? anywho.... i totally get what you mean... you just wanan go out and have fun and not worry about all that sutff.... but seriosuly... when you do what ur supposed too dont you feel loads better? i know i do.... i mean trust me i have had my moments when i first got diagnosed at 12 where i said  i have lived without it so long why should i do that now? well i slowly found out that answer was.... bc i dont like being in the hospital. well i think of it as... you want you hair and teeth to look nice right? so just take a lil bit more time to make your lungs and everything else look pretty! cant you play a video game and do your treatment at the same time? i never tried but i used to do homework and what not. well i am now 18 i  am working on getting my diploma in highschool and i work a part time job... if i can do all my pills and treatments i know you can too... if you ever get upset about anything im always here to talk....
or you can email me at i check it everyday
thansk for listening:olivia

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