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Posted By : Mentalist - 5/14/2014 1:57 PM
rolleyes i'm thinking about getting 'deep brain stimulation' for cervical dystonia and was wondering if anyone out there has had it done? have a perfect evening people

Posted By : BnotAfraid - 11/28/2014 12:57 PM
well Since May, apparently no one in our membership has had it done or are willing to claim it.

I would as the doctor you are going to; if you have not gone through the procedure yet, for references.

If you have gone through the procedure. I ask you to respond and let us know your experience and what you personally thought about it.

I know it would be beneifitial to many people of this forum.

Thank you.
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Posted By : Gemsi - 11/28/2014 6:04 PM
Hi there,

I would like to second what Trina has said and apologise it has taken this long to reply.

I can't really offer any help, I've never heard of cervical dystonia. I do hope you were able to make the best decision about the treatment and that you have found something to help you.

All the best

Hey, I'm Gem with CF, age 28 and diagnosed at 2 years old. I'm from the UK so tell me if I say something you don't understand. I'm no expert but having CF myself I've learnt a few things along the way.
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum, Myopathy.

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