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Posted By : justwondering2 - 8/30/2005 12:08 PM
I was wondering what are some of the symptoms that everyone ere that has cystic fibrosis are? Because I'm wondering if I may have it.... every morning im more stopped up then what I am after I wake up, its just nasty its like im always trying to spit that stuff up... i feel weak soemtimes and the other day i felt short of breath almost like something was filling up in my lungs making it hard to breath that was actually the first time i felt that way... and my legs for some odd reason were swollen a lil on the puffy side... but my main thing is i am always spitting up stuff and its really sticky like and i seem to have to hit my back or chest to help it come up and in the morning i really dont have an appitite because no matter how much i try to spit it up its like when i go to eat im so conjested its like thats all i can feel is that stuff in me.... can someone help me out please and explain to me some of thier symptoms? I'm 21 yrs old, the doctors told me i have asthma but i dont because i dont have the symptoms of asthma and i've taken the med. they dont help and i've never had any type of asthma attack, im confused.

Posted By : justwondering2 - 8/30/2005 1:56 PM

I sure hope someone can help me out because I would really like to know if my sypmtoms are like anyone elses, if maybe I have CF, I'm not sure but really wondering/

Posted By : Twinstride - 9/6/2005 8:31 PM
My name is Kathy and I am new to this forum chat.  I am a parent of twins (9) who both have CF.  I might can answer some things for you.  These are some signs of CF.  Sticky mucous and possibly respiratory distress.  Weightloss (as in starvation appearance).  Digestive problems with distended belly.  Bowel movements will not look normal if not on digestive enzymes and may even appear orange and greasy, if your stool floats its fatty.  All mutations of CF are different and can have a difference in symptoms.  
Let me say that, a sweat chloride test is only a little over 100.00, in most states, so, it would be worth your time and money to find out if you do have it.  But, by now...your doctor would have for sure recognised other symptoms to help rule this out.
Best of luck, and if you have any more questions, feel free to ask.
If there is a cure for CF found, you would hear this twins mom across AMERICA.....YESSSSSSSSSSSSSSS!!.

Posted By : Twinstride - 9/7/2005 6:57 PM

Thanks Jennifer for the welcome.  :-)   


Posted By : fundy - 9/12/2005 10:57 PM

I'm 20 years old with CF.

If you need to find a CF Center closest to you...

If your doctors don't refer you to a cf center, I would recommend simply calling one that's closest to you and scheduling either a blood or a sweat test.  As mentioned above, it's covered by most insurance plans and certainly worth it.


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