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Posted By : Twinstride - 7/26/2006 8:18 PM
First of all, everyone who is new to HW CF room, welcome!  tongue
I know I have been kinda away a little too long now, but things are so busy for me right now. 
Today, my twins seen a new gastro doc for their elevated liver enzymes.  Their blood test results have come down some which is good news to me!.  They will start a medication for the liver as soon as it gets filled.  So, we will see if it makes a difference for them.
We are headed for vacation tomorrow.  We will visit Sea World in San Antonio Texas, this is one thing the boys asked to do and I will grant their wishes.  I am sure I will be catching some tubing on the crystal clear waters somewhere down that way too...tee hee. 
Gosh, I hope that everyone is doing okay and until I return, ya'll behave yourselves now ya hear me <snickering>.
If you have any questions, concerns, or anything else you need help on, feel free to email co-mod or admin.
ta ta for now!

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough" would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

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Posted By : imondeck - 7/27/2006 9:30 AM

Hello Kathy!  Hope the new meds helps your boys.  Let us know how the appt. went today.  How often do they do the blood test for the liver enzymes?

Sounds like you all have a busy fun filled week ahead!  Stay safe and hope you all have a great trip! 

Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind. ~Dr. Seuss

Posted By : Benny63 - 3/16/2013 1:19 PM
Hi to all Iam a member of healingwell on Hep Thread. My question is purely concerning my cousins daughter who's CF have amused a few problems firstly She had fluid on her lungs which has been drained away, and now they have been told that she has water on the head, am not sure wether my aunt telling me meant water on the brain. Do any of you know what this could be, or have heard of this before, sorry for the intrusion but I was just a little worried and I find healing well very helpful towards my illness

Kindest Regards
Benny 63

Post Edited (Benny63) : 3/16/2013 3:12:18 PM (GMT-6)

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